Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Asthma And Blood Clots


dancer4jc

Recommended Posts

dancer4jc Newbie

Hi,

my mom is Gluten intolerant, and has been dealing with blood clots for the past 4 months, despite being on strong meds, she also noticed that when she accidently eats something "glutenized" the seem to get worse. could there be a relationship

Also I read that people with exercise-induced asthma are more likely to have Celiac? This was not published by a dr, and i couldnt find any other articles relating the two, so is this for real our just fluff?

Many thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Hi,

my mom is Gluten intolerant, and has been dealing with blood clots for the past 4 months, despite being on strong meds, she also noticed that when she accidently eats something "glutenized" the seem to get worse. could there be a relationship

Also I read that people with exercise-induced asthma are more likely to have Celiac? This was not published by a dr, and i couldnt find any other articles relating the two, so is this for real our just fluff?

Many thanks!

I can't answer about the blood clots but I can about the asthma. Myself and DH both have asthma. Mine required a rescue inhalor and a daily med. In 5 years gluten-free I have only felt the need for an inhalor once and that was when trimming bushes I was allergic to. I weaned off and eliminated all drugs under doctors supervision before my elimination diet started, including my asthma drug, I have never had to add any of them back.

lighterthief Newbie

Hi,

Your post leapt out at me, my mother had a problem with blood clots also (she also had asthma), I believe that she had coeliac disease. She had identified that she had a reaction to gluten and cut it out for the most part from her diet, looking back now knowing what I do about coeliac disease I dont believe she was ever strict enough on a gluten-free diet. She never got diagnosed though.

I think she was removing gluten for the most part to avoid the visible symptoms, but didnt have enough knowledge about the condition to cut it out completely. I think she treated it more like an allergy.

She made it through a very rough patch when a bloodclot went to her lung, and then they put her on wafarin to thin her blood. A couple of years later she developed diabetes and the strain was too much for her. I wish she had been diagnosed and had the proper support etc. our family doctor knows practically nothing about gluten intolerence [i have since discovered since wanting to be tested myself].

lighterthief

  • 2 weeks later...
CMCM Rising Star

I most definitely had a non-stop form of asthma for a good 20 years.....but doctors could never seem to diagnose it. But I started using inhalers and later things like Avalide to control symptoms (not very well, I might add). Going gluten free pretty much eliminated the problem, and I haven't used any sort of inhaler for over a year. :D

georgie Enthusiast

I don't know about the Celiac connection but anyone with a family history of clotting should be blood tested for Factor V Leiden ( FVL), and APS (Hughes Syndrome ) as a matter of urgency. Many of these tests are new in the last 10 years or less - so its important to do your own research and be up to date - as your Dr may not be .....

www.fvleiden.org

Open Original Shared Link

APS is considered an autoimmune disease so in theory - could be linked to Celiac which is also autoimmune.

  • 1 month later...
jhill Newbie

I am positive for Factor V Leiden after having a DVT and resulting pulmonary embolism 4 years ago. My brother and my mom are also positive for this genetic condition which causes your blood to clot more easily. It is present in 5% of the population. I have also been gluten free for the past year after having numerous gastric problems as have my mom and my brother. Just this summer my brother had a GIST tumor removed from his stomach and fortunately it was not cancerous which is very unusual for this type of tumor. I had the blood test last year for Celiac but was off of gluten for 2 weeks when this was done and it returned negative.

I definitely am beginning to suspect a link between the Factor V Leiden and gluten intolerance. I wonder if there are any studies being conducted on this.

georgie Enthusiast
I definitely am beginning to suspect a link between the Factor V Leiden and gluten intolerance. I wonder if there are any studies being conducted on this.

I am on a mailing list for FVL - with a Hemo Dr on board - so will ask. I know that there is some link with FVL and APS. And that APS is an autoimmune clotting disorder. And that Celiac is an autoimmune condition. And that autoimmune conditions group together. Sorry to hear about your brother. He doesn't have low B12/ Pernicious Anaemia by any chance ? That is also autoimmune and leads to a greater risk of stomach cancers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.