Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Asthma And Blood Clots


dancer4jc

Recommended Posts

dancer4jc Newbie

Hi,

my mom is Gluten intolerant, and has been dealing with blood clots for the past 4 months, despite being on strong meds, she also noticed that when she accidently eats something "glutenized" the seem to get worse. could there be a relationship

Also I read that people with exercise-induced asthma are more likely to have Celiac? This was not published by a dr, and i couldnt find any other articles relating the two, so is this for real our just fluff?

Many thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Hi,

my mom is Gluten intolerant, and has been dealing with blood clots for the past 4 months, despite being on strong meds, she also noticed that when she accidently eats something "glutenized" the seem to get worse. could there be a relationship

Also I read that people with exercise-induced asthma are more likely to have Celiac? This was not published by a dr, and i couldnt find any other articles relating the two, so is this for real our just fluff?

Many thanks!

I can't answer about the blood clots but I can about the asthma. Myself and DH both have asthma. Mine required a rescue inhalor and a daily med. In 5 years gluten-free I have only felt the need for an inhalor once and that was when trimming bushes I was allergic to. I weaned off and eliminated all drugs under doctors supervision before my elimination diet started, including my asthma drug, I have never had to add any of them back.

lighterthief Newbie

Hi,

Your post leapt out at me, my mother had a problem with blood clots also (she also had asthma), I believe that she had coeliac disease. She had identified that she had a reaction to gluten and cut it out for the most part from her diet, looking back now knowing what I do about coeliac disease I dont believe she was ever strict enough on a gluten-free diet. She never got diagnosed though.

I think she was removing gluten for the most part to avoid the visible symptoms, but didnt have enough knowledge about the condition to cut it out completely. I think she treated it more like an allergy.

She made it through a very rough patch when a bloodclot went to her lung, and then they put her on wafarin to thin her blood. A couple of years later she developed diabetes and the strain was too much for her. I wish she had been diagnosed and had the proper support etc. our family doctor knows practically nothing about gluten intolerence [i have since discovered since wanting to be tested myself].

lighterthief

  • 2 weeks later...
CMCM Rising Star

I most definitely had a non-stop form of asthma for a good 20 years.....but doctors could never seem to diagnose it. But I started using inhalers and later things like Avalide to control symptoms (not very well, I might add). Going gluten free pretty much eliminated the problem, and I haven't used any sort of inhaler for over a year. :D

georgie Enthusiast

I don't know about the Celiac connection but anyone with a family history of clotting should be blood tested for Factor V Leiden ( FVL), and APS (Hughes Syndrome ) as a matter of urgency. Many of these tests are new in the last 10 years or less - so its important to do your own research and be up to date - as your Dr may not be .....

www.fvleiden.org

Open Original Shared Link

APS is considered an autoimmune disease so in theory - could be linked to Celiac which is also autoimmune.

  • 1 month later...
jhill Newbie

I am positive for Factor V Leiden after having a DVT and resulting pulmonary embolism 4 years ago. My brother and my mom are also positive for this genetic condition which causes your blood to clot more easily. It is present in 5% of the population. I have also been gluten free for the past year after having numerous gastric problems as have my mom and my brother. Just this summer my brother had a GIST tumor removed from his stomach and fortunately it was not cancerous which is very unusual for this type of tumor. I had the blood test last year for Celiac but was off of gluten for 2 weeks when this was done and it returned negative.

I definitely am beginning to suspect a link between the Factor V Leiden and gluten intolerance. I wonder if there are any studies being conducted on this.

georgie Enthusiast
I definitely am beginning to suspect a link between the Factor V Leiden and gluten intolerance. I wonder if there are any studies being conducted on this.

I am on a mailing list for FVL - with a Hemo Dr on board - so will ask. I know that there is some link with FVL and APS. And that APS is an autoimmune clotting disorder. And that Celiac is an autoimmune condition. And that autoimmune conditions group together. Sorry to hear about your brother. He doesn't have low B12/ Pernicious Anaemia by any chance ? That is also autoimmune and leads to a greater risk of stomach cancers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - McKinleyWY replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Accuracy of testing concerns

    2. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

    4. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Healthy Gluten Free Foods low sugar that you found?

    5. - Scott Adams replied to lizzie42's topic in Traveling with Celiac Disease
      1

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,245
    • Most Online (within 30 mins)
      7,748

    Christine Ranalli
    Newest Member
    Christine Ranalli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • McKinleyWY
      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those who are just beginning the journey like me. Marilyn 
    • Scott Adams
      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
    • Scott Adams
      This article is a few of years old, but my still be helpful.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.