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Looking For A Mentor In Austin Or Lubbock, Tx

Guest thatchickali

By Guest thatchickali
in Coping with Celiac Disease

Recommended Posts

Guest thatchickali
Guest thatchickali
Posted

Recently diagnosed, having a hard time figuring this out, and I don't know anyone in my life with celiac disease. I have searched the "Facebook groups" to find someone at Texas Tech to help me and it looks like I'm the only one. I will be in Austin, TX for the next week then moving back to Lubbock, I want to find someone to email or call and even go grocery shopping with once or twice. Just someone to tell me what is okay when I need an immediate answer.

If you live in Lubbock or Austin, please email me at [EDIT] ajarrott@gmail.com - I have made this email address to devote to corresponding with Gluten Free friends. [End Edit]

If not and you want to help I have text messaging on my phone, and I use my email all day, so if you just want to be able to answer questions I may have you can also email me there. I also have AIM, my screen name is 'thatchickali'. Im logged on all the time when my computer is on. I know I'm rambling, I'm sure you get the point.

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Lisa Mentor
Lisa
Posted

Hello and Welcome:

You have just found yourself in the most awsome place to find out all about Celiac Disease. We have some really great folks here who are always willing to help and they give alot of their time to help new people get adjusted.

You are very welcome to post any question about ANYTHING! We can give you some starter products that are safe if you need a place to begin.

Feel free to jump right in! :)

Guest thatchickali
Guest thatchickali
Posted

***

jerseyangel Proficient
jerseyangel
Posted

Hi Ali,

I agree with Momma Goose. If there's anything we can help you with, don't hesitate to ask.

I merged your two threads together to avoid confuson :)

gfpaperdoll Rookie
gfpaperdoll
Posted

I will email you, I am going to Austin tomorrow for the weekend. I will be staying in a hotel on I35... I will also find the number of the support lady there, she is really nice - well I am too!!!

gfpaperdoll Rookie
gfpaperdoll
Posted

Allison, I sent you an email with my phone number & the contacts for the Austin support group.

Just call me & I can call you back, on my phone or email me your phone number & I will call you.

Sorry, I jsut now got it done, I was running late today & had to get off the computer!!!

tiffjake Enthusiast
tiffjake
Posted

There is a support/information group in Austin called Alamo Celiac. Their website is AlamoCeliac.org.

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  • Recent Activity

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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
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      Small Bowel Resection 12 inches

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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