Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors At Dartmouth (dhmc)


sedunk

Recommended Posts

sedunk Apprentice

Greetings,

Does anyone have a great PCP at Dartmouth. I am in major need of a new doctor. My current doctor seems to think I am nuts. She told me I needed sleeping pills and depression medication. I have food allergies and eczema. Great I can sleep through the itching!

Sara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



deesmith Apprentice

Greetings,

Does anyone have a great PCP at Dartmouth. I am in major need of a new doctor. My current doctor seems to think I am nuts. She told me I needed sleeping pills and depression medication. I have food allergies and eczema. Great I can sleep through the itching!

Sara

[/quote

-

uhmmm... good luck with that! I don't mean to sound rude, but I am so upset with dartmouth. I don't want to concern you because everyone has their own stories and experiences with doctors. it's all a matter of personal opinion in choosing a facility and the right doctor. However, here's a short version of my story:

my mom died at dartmouth. She went to the hospital for an emergency surgery for blockage in her intestines. This was at another hospital and all afer years of trying to find out what was wrong with her besides heart disease. She was so anemic, they tested her over and over for leukemia. She had axatia, seizures, thyroid disease, etc. Anyway, after the surgery she didn't get better. She was sent to Dartmouth. She was in and out of there for a year (mostly in) and slowly starved to death. She kept telling them that whatever they were feeding her was making her sick. She has 7 kids and we were all so ignorant about celiac disease at the time. I asked the doctors why it had come to her dying like that... he said "her intestines just never healed after the surgery because she was so deteriorated". All the time she was having these symptoms, I was too. After her death they got really bad. So I went to a pcp at dartmouth. When she ordered an endoscopy for the unexplained amemia, I read up on why they would do one. I came across celiac disease and IT ALL MADE SENSE. But she NEVER told me about celiac disease and NEVER told me to continue to eat lots and lots of gluten for the test. I read about celiac disease the night before the exam. I had fasted for about 3 weeks prior to that because I had been so sick from food. Anyway the biopsy came out negative. I don't know how many biopsies they even took or anything.

So, long story, I went to Dr. Green at Columbia University. He said there are reasons why it could be negative and that doesn't mean I don't have it. (I do and 2 siblings and a niece have since been diagnosed too)

My pcp at Dartmouth REFUSED to work with Dr. Green and said "the biopsy is the gold stanard, yours was negative, so there is no way you have celiac disease"!!!! I begged her to do the blood work and I told her I'd keep eating gluten, at that point, and she refused.

I don't go there anymore and am currently switching pcp again.

I know what an admirable facility DHMC is, but I truly, truly believe that they DO NOT know what they are doing when it comes to celiac disease.

Just my opinion. Sorry to rant so much.

I honestly hope you can find a great pcp that understands you and listens to you. This is so hard, isn't it?

Dee

deesmith Apprentice

Hey Sara:

sorry about my last post, but as you can imagine, it's an emotional issue for me.

I should have just politely said, "No, I don't know of a good pcp at DHMC".

But, if you want, I can tell you where my neice went to get tested. He's a pcp about 40 min south of dartmouth. One of my sisters says he's a granola, but another sister and her kids have been going to him for years. I have never been there and have never met him, so I don't really know. But my neice went and told him about me and all her symptoms (for years) and he immediately did the blood work and genetic testing. So, just let me know.

sedunk Apprentice

Greetings,

I just saw your new post. I would love any information you are willing to provide. I would be very emotional as well. You have every reason to be angry and upset. I completely understand.

I haven't been all that happy with anyone I have seen at any of the hospitals in the upper valley.

I had one doctor that thought it was all in my head. I have a new doctor that thinks I am depressed and wants to give me depression medication and sleeping pills. I asked if that was so I could sleep through my itching!

I have been dealing with this for a long time and really had major problems for the past 4 years. My doctor did a blood test after I had made myself gluten-free for three weeks. You know what happened next, a negative report!

I have had it.

I did find a nutritionist that I really like her name is Gita Patel, she has her own office in Etna. She is really not associated with any of the hospitals.

She told me about a blood test that will actually test you for all different kinds of foods. If you want to I would be more than happy to e-mail you the name of the test. I have all the information in my car.

My e-mail is sedunk@yahoo.com

I really appreciate all your information.

I am really thinking about going to another holistic doctor as well.

Sara

Hey Sara:

sorry about my last post, but as you can imagine, it's an emotional issue for me.

I should have just politely said, "No, I don't know of a good pcp at DHMC".

But, if you want, I can tell you where my neice went to get tested. He's a pcp about 40 min south of dartmouth. One of my sisters says he's a granola, but another sister and her kids have been going to him for years. I have never been there and have never met him, so I don't really know. But my neice went and told him about me and all her symptoms (for years) and he immediately did the blood work and genetic testing. So, just let me know.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.