Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors At Dartmouth (dhmc)


sedunk

Recommended Posts

sedunk Apprentice

Greetings,

Does anyone have a great PCP at Dartmouth. I am in major need of a new doctor. My current doctor seems to think I am nuts. She told me I needed sleeping pills and depression medication. I have food allergies and eczema. Great I can sleep through the itching!

Sara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



deesmith Apprentice

Greetings,

Does anyone have a great PCP at Dartmouth. I am in major need of a new doctor. My current doctor seems to think I am nuts. She told me I needed sleeping pills and depression medication. I have food allergies and eczema. Great I can sleep through the itching!

Sara

[/quote

-

uhmmm... good luck with that! I don't mean to sound rude, but I am so upset with dartmouth. I don't want to concern you because everyone has their own stories and experiences with doctors. it's all a matter of personal opinion in choosing a facility and the right doctor. However, here's a short version of my story:

my mom died at dartmouth. She went to the hospital for an emergency surgery for blockage in her intestines. This was at another hospital and all afer years of trying to find out what was wrong with her besides heart disease. She was so anemic, they tested her over and over for leukemia. She had axatia, seizures, thyroid disease, etc. Anyway, after the surgery she didn't get better. She was sent to Dartmouth. She was in and out of there for a year (mostly in) and slowly starved to death. She kept telling them that whatever they were feeding her was making her sick. She has 7 kids and we were all so ignorant about celiac disease at the time. I asked the doctors why it had come to her dying like that... he said "her intestines just never healed after the surgery because she was so deteriorated". All the time she was having these symptoms, I was too. After her death they got really bad. So I went to a pcp at dartmouth. When she ordered an endoscopy for the unexplained amemia, I read up on why they would do one. I came across celiac disease and IT ALL MADE SENSE. But she NEVER told me about celiac disease and NEVER told me to continue to eat lots and lots of gluten for the test. I read about celiac disease the night before the exam. I had fasted for about 3 weeks prior to that because I had been so sick from food. Anyway the biopsy came out negative. I don't know how many biopsies they even took or anything.

So, long story, I went to Dr. Green at Columbia University. He said there are reasons why it could be negative and that doesn't mean I don't have it. (I do and 2 siblings and a niece have since been diagnosed too)

My pcp at Dartmouth REFUSED to work with Dr. Green and said "the biopsy is the gold stanard, yours was negative, so there is no way you have celiac disease"!!!! I begged her to do the blood work and I told her I'd keep eating gluten, at that point, and she refused.

I don't go there anymore and am currently switching pcp again.

I know what an admirable facility DHMC is, but I truly, truly believe that they DO NOT know what they are doing when it comes to celiac disease.

Just my opinion. Sorry to rant so much.

I honestly hope you can find a great pcp that understands you and listens to you. This is so hard, isn't it?

Dee

deesmith Apprentice

Hey Sara:

sorry about my last post, but as you can imagine, it's an emotional issue for me.

I should have just politely said, "No, I don't know of a good pcp at DHMC".

But, if you want, I can tell you where my neice went to get tested. He's a pcp about 40 min south of dartmouth. One of my sisters says he's a granola, but another sister and her kids have been going to him for years. I have never been there and have never met him, so I don't really know. But my neice went and told him about me and all her symptoms (for years) and he immediately did the blood work and genetic testing. So, just let me know.

sedunk Apprentice

Greetings,

I just saw your new post. I would love any information you are willing to provide. I would be very emotional as well. You have every reason to be angry and upset. I completely understand.

I haven't been all that happy with anyone I have seen at any of the hospitals in the upper valley.

I had one doctor that thought it was all in my head. I have a new doctor that thinks I am depressed and wants to give me depression medication and sleeping pills. I asked if that was so I could sleep through my itching!

I have been dealing with this for a long time and really had major problems for the past 4 years. My doctor did a blood test after I had made myself gluten-free for three weeks. You know what happened next, a negative report!

I have had it.

I did find a nutritionist that I really like her name is Gita Patel, she has her own office in Etna. She is really not associated with any of the hospitals.

She told me about a blood test that will actually test you for all different kinds of foods. If you want to I would be more than happy to e-mail you the name of the test. I have all the information in my car.

My e-mail is sedunk@yahoo.com

I really appreciate all your information.

I am really thinking about going to another holistic doctor as well.

Sara

Hey Sara:

sorry about my last post, but as you can imagine, it's an emotional issue for me.

I should have just politely said, "No, I don't know of a good pcp at DHMC".

But, if you want, I can tell you where my neice went to get tested. He's a pcp about 40 min south of dartmouth. One of my sisters says he's a granola, but another sister and her kids have been going to him for years. I have never been there and have never met him, so I don't really know. But my neice went and told him about me and all her symptoms (for years) and he immediately did the blood work and genetic testing. So, just let me know.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.