Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Osteopenia


Mickide

Recommended Posts

Mickide Apprentice

I had a bone density scan on Monday and my doctor calls today saying it shows Osteopenia (?). I know this isn't uncommon in Celiacs. Aurg.. I am so frustrated all I can do is laugh! Like are you kidding me, here I am 33yrs old, I have lost 35lbs this year, have lost another 8 since I was diagnosed a few weeks ago(there is nothing left to lose), have the issues that come along with Celiacs, diagnosed with a heart condition 2 months ago and now Osteopenia!! What the heck, where do I start?? I am eatting healthier than I ever have. I am gluten-free/DF, now reading about other foods that can inhibit the absorbtion of calcium. I really just don't know where to start. I want to do this naturally, the Dr mentioned Fosomax, which I am not really interested in besides the fact I am breastfeeding my daughter. My Dr did say to take extra calcium and vit D and exercise 40 mins/day 6 days a week. Any ideas on naturally helping this out? Thanks for just letting me vent.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

Good for you for not wanting to be goaded into taking Fosimax! Doctor's and their pills! I also have been told I have osteopenia but will not take bone pills for numerous reasons. I am older than you though, 48, so it should be easier for you to re-build your bones because you still have your hormones.

First off, once you remain gluten-free for awhile, you should start to absorb again. So, make sure you stay gluten-free and do not cheat so this can happen. Next, along with calcium, it's very important for you to take vitamin D3. Make sure it's D3 and not just labeled vitamin D. Research has shown that you can pretty much not overdose on the stuff so I am taking 2000 units per day. I have been told by my doctor it could probably be pushed all the way up to 5000 per day but to start lower. I recently had blood work done to see what my levels where and I could still use some more so that's what I take. As you are breastfeeding, make sure you check with your doctor before taking this amount....I'm sure it will be OK but I'm playing it safe here.

Also very important for calcium absorption is magnesium. I take a supplement for that too and, offhand, cannot remember the dose so could check that for you. All 3 taken together will give maximum effect.

Exercise is great but I am having trouble at the moment finding the time. I am thin anyway but my work schedule makes 6 days a week too difficult. I have to improve on that.

You are young still so you should not have to take Fosimax or anything along those lines. Having just had a baby, your hormone levels should be great and estrogen/progesterone will help build bones. I use bio-identical hormones at the moment and hope they help!

trents Grand Master

I am a 56 year-old male celiac with osteopenia. I'm on calcium and Fosamax and Vitamin D. I certainly can understand your reluctance to take Fosamax if you are breast feeding. I think for you the key would be weight resistance type exercise and Vitamin D supplementation. Celiacs tend not to absorb fat-soluble nutrients well, one of which is Vitaman D which as you probably know, is a key in calcium metabolism and strong bones. I recently started taking a 1000 IU vitamin D tab daily, in addition to what I'm getting from other sources such as milk, multivit, calcium tabs, etc. I think if you keep it under 2000 IU daily its safe. There is a lot of thought among nutritionists these days that most people don't get nearly enough Vitamin D since we work indoors and that the RDA is much too low. As far as calcium supplementation, there is a lot of controversy surrounding its effectivness but one key is to pair it with acidic foods and beverages as it is absorbed better in a low pH environment. A diet too high in calcium can actually inhibit calcium absorbption because calcium is a base mineral (the oppostie of acid) and tends to raise gut pH.

Steve

jkmunchkin Rising Star

If it makes you feel any better I also was told I have osteopenia and I'm 29. My doctor told me to take calcium 600 mg + Vitamin D 3x's a day and do excercise such as pilates. I was so excited to hear that I needed to take calcium 3x's a day, when the recommended dose for senior citizens is 2x's a day. (No, no sarcasm here. LOL)! Did I mention I'm 29!!!! Oh and if I remember correctly I was 28 when I found out I had osteopenia.

I'll be honest, I took 2 reformer pilates classes and it really hurt my back, so I haven't gone back. I had severe scoliosis and wore a back brace for 4+ years. The instructor kept insisting I wasn't on my center so I would shift where he told me to, but I felt centered and I think I was but it just didn't look it from above because I still have a bit of an S curve. I think this is what hurt my back and I'm just not sure if pilates is for me. I'm thinking of giving it another try.

Does anyone know when I should go back for a follow up scan to see if there has been any improvement?

SpikeMoore Apprentice

\\have been told that drinking carbonated beverages (soda pop) depletes calcium stores in your body due to the phosphate in it. So you could cut that out.

Some cities actually have osteoporosis exercise classes. My mom goes to one in London, Ont.

I agree with Steve who said that weight resistance training is important.

To Gemini, I will say to you what my husband says to me which is to ask you why you don't respect yourself enough to make time to do what you should to help your body heal. I have never been able to come up with a reply to that one. Being thin doesn't necessarily mean your bones are ok, apparently they need strong muscles to support them. Maybe you could seek out some sort of a trainer/therapist to get you going. I know that sometimes I feel too busy too, we all do, but do try. Ok, now I've talked myself into doing some weights (small weights). I find I can even accomplish something in as little as 10 minutes. Remember, any amount is better than nothing. You can do it!

Gemini Experienced

To Gemini, I will say to you what my husband says to me which is to ask you why you don't respect yourself enough to make time to do what you should to help your body heal. I have never been able to come up with a reply to that one. Being thin doesn't necessarily mean your bones are ok, apparently they need strong muscles to support them. Maybe you could seek out some sort of a trainer/therapist to get you going. I know that sometimes I feel too busy too, we all do, but do try. Ok, now I've talked myself into doing some weights (small weights). I find I can even accomplish something in as little as 10 minutes. Remember, any amount is better than nothing. You can do it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748

    Jaxon Reed
    Newest Member
    Jaxon Reed
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.