What Are The Other Possible Symptoms- Who To Get Diagnosed)?

[ShayBraMom]

I know the standart stuff like sever bloading, headaches, irritability and so on! did anyone else notice stuff like splitting, flaking, cracking toenails on their children (before the diet and diagnose), also fingernails that grow wider on top then on the bottom and are thing and splitting!?

I suspect that my kids are non-celiacs. My son has had constipation from birht, back then he got extremely upset stomach if he had somethign with milk that day, he had an strong increase in nightseizures if he had some, so i switched him to Soy Silkmilk extra Vanilla which is peanut, glucose, dairy, GLUTEN, Cholesterol, Casein, Egg and MSG free!!!! He's had a colonoskopy last year and a biopsy as well as another biopsy of the lower instentine this year for Hirschsprungs, all of ti negative, Bloodwork also negative for Celiac.

My daughter now 10 month almost, started getting constipated about a month after birht and it has increased ever since. I just recently realized that she does the same crap my son did back then, when she had something with weat like noodles (one is enough) she'll be up all night every 30-45 minutes screaming, her tummy bloated huge, having just had something with wheat in it seems to also make her have twitches in arms and legs (she has a longterm EEG done on the 4 for 4 days!) she seems to do best if hshe had nothing else but fruits all day and in the evening potatoes for supper. I know that if my children got something that more then likely they got it from me or my hubby, but since I'm the one who gets easily bloated and stuff I thinkit is me, I know ths stuff runs in families.

Even though my son is better then he was under the age of two (he's 4.5 yrs. old) I do see strong similarities beetween my two kids and suspect that my son as well might react to Wheat (or used to-don't know, he's on seizuremeds so I don't know really)!

does any of your kids get musclespasms-twitches after having something with wheat, or have crazy nights, or have seizures???

did any of your kids have flaky, splitting, cracking toenails and very thin fingernails,easily splitting BEFORE being on the diet?

If non-Celiac, how does THAT get diagnosed? WE are meeting with my kids Gastro-ebnterologist next Thursday and I want to be prepared to aks all of the right questions, ask FOR the right things to be done and so on! Yeah, i could just do wheat free and then fine, but I want a diangose in writing bexcause in Daycare or school they want proof of allergies when you aks them to not feed them something, pluas I need to know for my sanity.

[Mickide]

I personally had/have the fingernail issue. I have always had exceptionally hard nails until this past year when they became brittle, soft and split. As for you kids, I don' know my daughter just turned a year yesterday and we are meeting with the ped next week to discuss her. She is failure to thrive.. She has had severe constipation issues since she was about 8 wks old. Goodluck!

[Nic]

Hi, my son's toe nails seem to split and once in a while his finger nails. I don't know if it is Celiac related or not, maybe it is because of the vitamin deficiencies (sp). He was also constipated since birth with the bloated stomach. He has been through a sigmoidoscopy, endoscopy, and 2 colonoscopies. He also had a barium enima done also looking for Hirschsprungs disease. It has been a brutal road to end up here will the diagnosis being Celiac Disease and the treatment being a diet. I didn't know at the time that Celiac symptoms included constipation or I would have focused on it right away as my father has it too (without the constipation). Maybe you should just try the diet and see if everything improves and if it does, no need to look farther.

Nicole

[Darn210]

My daughter's symptoms were not particularly definative. The thing that sent us to the GI was acid reflux that got better but did not go away on medication.

She was diagnosed with Celiacs in April. In hindsight, she was on the constipated side - but I honestly don't know if that was the Celiacs or a diet high in dairy and not enough fluids.

Prior to gluten-free, she could not grow her nails. They seemed to be split/flakey - she chewed them a lot. I never had to cut her nails because whenever I checked, there was nothing to cut. Lately, I have had to start cutting her nails. I didn't even think about the possiblity that it could be related to the diet change until I read your post. I still can't swear that it's the gluten-free diet or that she's finally keeping them out of her mouth.

[ShayBraMom]

Well, originally I did know that something was going on with my son because of the way the nails grow, first his toes and then his naisl! But after we found out that he has seizures (absences) I thought maybe it's somehow connected to that. Then when we found out this year in April that he has this very very rare, genetic Mutation, I thought it's from that (he's Mosaic Trisomie Chromosome 20-NOT Downsyndrom- he seems totally normal). But when my daughter started to get the exact same nails, first the toenails started to get the same riffles, cracks and splits and stuff and then her fingernails also started to grow very thin, splitting and also like my sons wider on top then on the bottom! Since my sons genetic Mutation is so extremely rare, it is very unlikely that she has the same thing. It's gotta have to do something with the sensitivity or something! Shayden has had vitamins ever since he had Seizure-Meds at age 2, so he shouldn really have bad nails due to vitamin deficencies, right, at least not too bad! It is all so weirtd. I really can't wait to see the Gastro next week thursday with the kidas and hear his take on all of this! I'm glad to hear that we are not alone in this!

[2boysmama]

Before we got our son diagnosed and started on the gluten-free diet, his toenails used to crack & peel pretty regularly. His finger nails never did it though. Now that he's been gluten-free about a year his toenails no longer do that.

[Guest j_mommy]

My toenails and finger nails have split since I was a child. They are now getting better since I have been gluten-free since may....my guess is this is due to the nutrient difficency before going gluten-free!!!

Constipation is a symptom of Celiac.....but I would have them both check for gluten intolerance if they have tested negative for celiac.....something is going on there....not normal bowel reactions!!!

Good Luck and I hope your little one's feel better soon!

[ShayBraMom]

mmmh, my son I think has been tested for Celiac and came back negative. He's been constipated since birth, he's been on MiraLax for a while now which helped. My Babydaughter was really colicky the first 3 months, started getting constipated more and more often starting 3 month, as the colicksyptoms got better in the evening her constipation got more and more and then both kicked in, she had just strted sleeping through the night which got slowly very slowly worse and worse over th efolllowing month! I kind of started suspecting wheat for some reason, and had not given her anything whith wheat in it for like two days when she slept really good, then in the evening I had cocked noodles and drained them and I totally forgot, I gave her ONE noodle while getting them ready for supper ( I held her in my arm and I know how much she loves noodles) , not more and that night hell broke loose. She got me up every half hour to 45 minutes that night, aLL night long, screaming, strunggling! Fromt hat day on I made sure to not give her anything with wheat, no bread, no noodle no Babyjars which some of them have some wheat in it too. and she started sleeping better again, her tummy getting nice and relaxed. then my son had Therapy and while we where in the waitingroom I gave her Baby fingerfood Cornpuffs. they got next to no calories at all so I just let her chow away on them practizing her pinchergrasp. She had about 25 of them (they melt in the mouth and there are litterally just traces left). After the two hours of wait until my son had all of his therapies done I talked to the lady at the appt. desk and Brandy started having her weird little twitches, but not just one but for like 2-3 minutes straight, stiffening her legs, making weird distortions with her cute little mouth, distorting her arms. Even the lady at the desk saw it and aksed if that is the reason why I have a longterm-EEG done in September now, I said yes! I mind started racing, what could have beent he culprit. I instantly remembered the Baby cornpuffs adn checked and sure enough- it contains whole grain oat flour AND Wheat Starch AND wheat flour!

While the little puffs do not seem to upset her stomach like eating a piece of bread or noodlesor a Babyjar with traces fo wheat, these little suckers do seem to cause her having some mini-seizures or neurological ourburst! the thing she deals best with seems to be potatoe!

[buffettbride]

Well, I've always had weak fingernails, but that said, my DD who is our Celiac has awesome fingernails--the envy of every little girl. She did have leg pains at night many, many nights.

My DS who we don't know about yet (he's 3.5) has very brittle fingernails and are always becoming ingrown and cracked. We're having him tested in the next few months when we see the allergist again (peanuts are a no-no for him).