Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Glutened?

Motorboater

By Motorboater
in Coping with Celiac Disease

Recommended Posts

Motorboater Explorer
Motorboater
Posted

Yesterday my husband & I went to Costco and he wanted a hotdog so we both had one, I ordered mine with no bun. Within 4 hours my stomach hurt so bad I thought about going to the ER. This hasn't happened to me as I've just been diagnosed in July '07. I also had diareaha and a headache and couldn't sleep well. I crawled into a ball at 8:00 PM trying to make the pain stop.........is this being "glutened"??? Anyone with suggestions I'm listening as I never want to feel so miserable again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

I want to say I read somewhere here that Nathan's hotdogs are not gluten free, but I could be wrong. It could be anything from CC to the actual brand of hotdog. Do you happen to know what brand you had gotten there?

Guest j_mommy
Guest j_mommy
Posted

Yup I agree...not all brands of hotddogs are gluten-free!!! You could have been glutened or they could have just touched a bun with their hand and picked up your hotdog right after!!!!

Motorboater Explorer
Motorboater
Posted
  • Author
I want to say I read somewhere here that Nathan's hotdogs are not gluten free, but I could be wrong. It could be anything from CC to the actual brand of hotdog. Do you happen to know what brand you had gotten there?

I called Costco this morning and they said Siani, which according to a site I found they are gluten-free, but how does a Celiac know if they've been glutened or possibly just the stomach flu..........? Very frustrating today.

blueeyedmanda Community Regular
blueeyedmanda
Posted

Thats the thing, sometimes there is no way to tell. Quite possibly you could have the stomach flu...where we are it's going around.

The Lovebug Rookie
The Lovebug
Posted
Yesterday my husband & I went to Costco and he wanted a hotdog so we both had one, I ordered mine with no bun. Within 4 hours my stomach hurt so bad I thought about going to the ER. ...is this being "glutened"??? Anyone with suggestions I'm listening as I never want to feel so miserable again.

M

Dear Motorboater,

It sure does sound like what I go through periodically, and I've been as gluten-free as I can get for 4 years! Yesterday, within 5 minutes of finishing breakfast, I began cramping and bloating and, eventually vomiting. I spent the rest of the day, in a weakened state, trying to sit or lie still so the symptoms wouldn't return. Today, I'm trying to trace what it was that caused my reaction. Mine was not the flu -- I now know the symptoms of being glutened and can usually trace it to something I've eaten without checking ingredients. It's just so hard to be on-guard ALL THE TIME!

Did you eat any condiments with the hot dog? Mustard, catsup, relish, kraut, etc.? Maybe that was the source of your glutening. I recently had a "duh" moment when I realized that the mints which I pop into my mouth all the time (Mentos), because they were soothing to my tummy, were actually glutening me! It never occurred to me to check the ingredients because they aren't "food." But I can now attribute several bouts of hanging over the toilet bowl directly to my consumption of Mentos.

Welcome to being a member of the celiac community. This board is a wonderful source of information and support.

blueeyedmanda Community Regular
blueeyedmanda
Posted
M

Dear Motorboater,

It sure does sound like what I go through periodically, and I've been as gluten-free as I can get for 4 years! Yesterday, within 5 minutes of finishing breakfast, I began cramping and bloating and, eventually vomiting. I spent the rest of the day, in a weakened state, trying to sit or lie still so the symptoms wouldn't return. Today, I'm trying to trace what it was that caused my reaction. Mine was not the flu -- I now know the symptoms of being glutened and can usually trace it to something I've eaten without checking ingredients. It's just so hard to be on-guard ALL THE TIME!

Did you eat any condiments with the hot dog? Mustard, catsup, relish, kraut, etc.? Maybe that was the source of your glutening. I recently had a "duh" moment when I realized that the mints which I pop into my mouth all the time (Mentos), because they were soothing to my tummy, were actually glutening me! It never occurred to me to check the ingredients because they aren't "food." But I can now attribute several bouts of hanging over the toilet bowl directly to my consumption of Mentos.

Welcome to being a member of the celiac community. This board is a wonderful source of information and support.

Thanks for the heads up on the Mento's although I do not use them often I will keep this in the back of my mind.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kali-mist Apprentice
kali-mist
Posted

I too have a problem with knowing whether or not I have been glutened. I have knowingly eaten gluten containing food just to see what would happen and nothing did. Maybe at the most I feel tired or rundown for a couple of days but that could be due to any number of things and it's not severe where I'd actually notice it. This scares me because on my quest to become completely gluten-free I could be eating things that are doing damage to me on the inside but there is no outward sign. I try my best by sticking with the basics (rice, potatoes, salad, meat) but it's so tempting to eat a big fat juicy burger or a piece of cake, especially when I know I will not get sick on the outside. I just have to keep telling myself that it's doing long term damage on the inside.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748
    PatBurnham
    Newest Member
    PatBurnham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.