Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kindergardener Using Her Celiac To Get Out Of School...how Do I Deal With This?


lillybug

Recommended Posts

lillybug Newbie

My daughter who is in Kindergarden is "playing up" her Celiac at school. The school called me to tell me she said her stomach was hurting because of her celiac. She was in the nurses station for about 30 minutes. I ,without thinking, let her have french fries last night from Wendy's...so she truely was probably feeling bad, however, when I picked her up... the second we came home she wanted to play and have a good old time and eat. Then later she said she doesn't like her school. So, I am having trouble with the fine line of wanting to acknowledge her Celiac but also make sure she isn't doing it to get out of something. Whenever she doesn't want to be somewhere she does this. Usually, I know she is doing it because I watch her diet very carefully but this time I messed up. And then there are times when she is not in my care and she might have honestly ate gluten in something and feel really bad. She use to throw up (bial) when she had an episode before we new what was wrong... but now she just feels bad.

I am just wondering if anyone has had a simular problem and how you delt with it? Also, what to tell the school if this happens again? Because usually she feels better after about 1 to 2 hours if it is truely a celiac issue. Do I tell them to keep her there...so she can participate when she feels up to it or what? I certainly can not be taking off work a couple of times a month...just to bring her home and her tell me she is fine now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nic Collaborator

Hi, unless the fries had cc issues they should not be a problem, Wendy's is usually safe. My nephew does not have Celiac went through an issue this past school year (first grade) in which when ever he felt he had enough of being there, he went to the nurse. Now he does not have celiac to play up be he certainly has the sweet factor going on and everyone thought if he is complaining, he must really be sick. The first time he got sent home we knew right away once he was home that he was fine. After the second time the nurse called my sister allerted them to the fact that he just wants to come home and eventually he stopped going (it took a long time though). Maybe remind her that if she uses Celiac to get out of school no one will believe her when she really is sick. Hopefully, she will outgrow this.

Juliebove Rising Star

This sounds familiar. My daugther doesn't have celiac, but food allergies. She would often say she thought she was going to throw up so I wouldn't send her to school. She is very good at faking it and I can never tell if she is really sick or not. And she would usually pull this on a day when I was not feeling well so I'd keep her home rather than risk having to go out to pick her up sick from school when I didn't feel like going out.

In her case, she really didn't like school. Because of issues caused by the undiagnosed allergies, she was put in special ed. That meant pulling her out of her regular class so she missed what was going on in there. I think she felt like she was always trying to play "catch up".

This coming year she will not be in special ed. and she is looking forward to going to school. I hope so! The school was telling me she missed too many days last year. I did mention the problem to the school psychologist. Perhaps you could do the same.

When my daughter was in Kindergarten, there was a serious issue with the teacher and she never got over it. The one they had at the start of the year had only taught Jr. High prior. She didn't understand little kids. Didn't understand how they could not know whether or not they needed to use the bathroom. She laughed at them and yelled at them. I got these same sort of reports from all the parents I spoke to and she even told us she was laughing at them when she called a parent teacher conference at the start of the year. She was replaced within two weeks with what I think was a good teacher, but my daughter never recovered from that first teacher. It took her until second grade before she really started trusting teachers again.

Darn210 Enthusiast

My son visited the nurse a lot when he was in kindergarten (he did not have Celiacs.) Then there was the time when I sent him to school because I thought he was faking it and he wasn't. So after a couple of "is he or isn't he really sick" episodes, I went to talk to the school nurse. She is a wonderful lady. I asked her if she could give me any advice on how to tell if he was truly feeling bad when there is no outward signs (fever or vomitting etc). She told me to not worry about it - if I didn't think he was sick then send him in - if she needed to call me she would. She said that every year she has a few frequent visitors. She thinks part of it is the kids testing the parents to see if they will really come. She said they always outgrow it. A couple of times, my son would maintained that he was sick and she would tell him that she thought that after lunch he would probably be just fine and he should come back to school - and he would. So my recommendation would be to talk to the school nurse and see what her take is on it.

That being said - when one of my kids is home sick (and I don't think they should be), there is no playing on the computer, they might get to watch a little TV while laying on the couch but not much, no talking to friends, and meals are on the bland side. It's not going to be FUN to be at home.

taylor- Rookie
My daughter who is in Kindergarden is "playing up" her Celiac at school.

Haha, once again, I obviously don't have any children, but I had to respond to this because I used to do that all the time. I didn't do it in kindergarden, I was a little goody two shoes...but when I got a little bit older, I did this all time to get out of recess, or going to a birthday party I didn't want to go to, or when I was scared to spend the night at a friends house and didn't want to "look like a baby". This summer at the summer camp I worked at we had a 3rd grader who was diebetic, he used that as an excuse every day to get to go inside early, we had to let him, because we we didn't want to take a chance, even though 98% of the time he wassn't really feeling "low", and as soon as he stepped inside he was running all over the place.

My mom used to tell me to rest for 30-45 minutes in the clinic and see how I felt, and usually by the time a 1/2 hour was over I was either so bored I would say I felt better and go back to class, or I was fast asleep and really didn't feel good, in which case my mom would pick me up. Sometimes if my mom couldn't pick me up after the 45 minutes, and I really didn't feel good, the nurse would get me some fruit from the cafeteria because that always helped my stomache feel better.

mftnchn Explorer

I don't have a celiac child at home, just a few thoughts you might consider:

We all tend to figure out ways to indirectly deal with emotional stressors that have a hard time with or don't know how to deal with directly. So I think as a parent behavior like this is a signal that our kids are struggling. Doing things that help them express the struggle directly may help. Read books about going to kindergarten, dealing with unhappy experiences, etc. Talk about emotions, where you feel them in your body, how to express them, what to do when you feel that way.

Also at this age, attachment issues are normal. I just heard someone talk on this topic. She said a transitional object can be very important, like a favorite blanket, toy, etc. Carrying a picture of mom and dad, home, etc. can also be very helpful. (Pin it on??)

Also if this continues for awhile, you might consider play therapy--maybe family play therapy where parents and child are involved. Children work out their emotional traumas and hurts through play, and a therapist who understands this process might help this happen more easily, and you could learn from the process some new ideas of how to help your child at home.

zarfkitty Explorer

My little girl did this a lot last year. She really did get sick the first time and bonded with the caring, nurturing nurse. After that she wanted to go back again and again and would tell little fibs to get the TLC she wanted. I teach high school, and I can honestly say there are "frequent flyers" in high school for the same reason.

I got her to stop by reminding her that if she faked sick all the time, no one would believe her if she really was sick. I also decided to "believe" her every time she was sick. I got the school to tell me when she visited the nurse and we had "sick rest" those evenings. No games, no TV, no exciting snacks or dessert. BRAT diet (heavy on the plain brown rice!), bedrest, etc. while my husband and I ate normally and engaged in fun activities. She eventually got the point that she didn't want to be "sick" anymore.

I would imagine, even if you did nothing, that she'd grow out of it though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sedunk Apprentice

Greetings,

I am a sixth grade teacher and I will tell you that it doesn't get easier with age. I have had both ends of the spectrum. From students crying wolf, to students who refuse to see the nurse when they really need to.

I would suggest a reward system or sticker chart for good behavior. If she doesn't cry wolf I may offer a special

snack or free time. I would also explain how serious it is to pretend to be sick.

Good luck

gfgypsyqueen Enthusiast

Yup, my kindergartener played the "food allergy" card last year. She is smart and knows how to work the system. She wanted to be home with mommy. I had a discussion with the teacher about her "not allowed to EVER lie about her allergy." We discussed the "other" issues that could be going on. (missing home) Turns out after involving the teacher, who was awsome, the problems stopped. A few times last year I got a call during class where the teacher explained the what she was doing (acting out started once allergies were no longer an option), I spoke to her on the phone and her behavior changed for the rest of the day.

I did find the best way to handle the beginning of school/food allergies game was to talk to the teacher in person, with the kid present. Then I tried to make more hugs and mommy time after school, so she didn't feel like she missed anything. If she did stay home sick, it was not a fun day. It was a boring day and we talked about the stuff the teacher was doing at school that she missed. This year my child has already told me she wants perfect attendance because she wants the award at the end of the school year!!! I'll be using that to my advantage :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    2. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    3. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    5. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.