Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloated Stomach...still?


Bellasmama

Recommended Posts

Bellasmama Apprentice

Isabella's main symptoms in the beginning were the extremely bloated stomach, constipation and weight loss. Everything has been great since being diagnosed and on a gluten-free diet. However recently Isabella's stomach is getting back to like it was in the beginning. Hard, extended, really noticable. Its been 6 months and this is coming back again. Everything else looks to be fine and still getting better and better except her stomach. I feel horrible. It sucks when she's a tiny lil thing only weighs about 21lbs and should be in size 18month clothing and she is in 2t tops because of her stomach.

What should I do? This is the only thing that is coming back of her symtoms. We have been very careful with what she eats. Her next GI appointment isnt until October.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bellasmama Apprentice

:(

anyone?

happygirl Collaborator

Hi BellasMom,

Your post wasn't originally pinned (its been busy on the board lately, so it probably got overlooked), so thats probably why you didn't get any responses. Hopefully someone will chime in.

Is she eating restaurant food at all? Have you checked her medications for gluten? Is she eating at daycare/school/friend's houses that aren't safe?

Best of luck and I hope you find some answers.

Bellasmama Apprentice

The only thing from FF that she's had were the package apples from McD's. And that's not very often. She stays at my gma's house while I work and I buy all her food for her and so I dont think its happening there. They know very well what she can and cannot have and to be careful. My gma calls me a million times a day asking me if she can have other things even though she already knows the answers. Any other time she goes some where I'm with her. She doesnt take any meds so it cant be that.

Could this be something other than Celiac? Or maybe she's being glutened and I dont even know it....she's not showing any other symtoms though....Why does this have to be so difficult?!?! UGH!

Lisa Mentor

I remember that it was about a year or so when I started having a problem with dairy. Perhaps she is developing a secondary intolerance at this point.

You can try to hold off dairy for a week or so and then reintroduce it and see what happens.

Just a thought :(

taweavmo3 Enthusiast

Ditto about dairy.........that would be my guess too. I have found that with myself, and my kids....we really didn't start making great strides until all casein was removed. Feeling and looking bloated is one of my main symptoms of a dairy infraction.

Hope that helps! If you are already dairy free, I would go over everything she's been eating. Also go over all shampoos, lotions, etc. I'm gluten free as well, but for some reason had never thought to check my bath and body works lotion. It had oats in it, and so did my Cover Girl powder. I finally switched to Bare Minerals, and double checked all my lipsticks. My daughter loves to get into my lip glosses and makeup, plus all the times I give her kisses......it would be easy for her to get glutened. Hope that helps some! The first year can be a little rocky....she is still healing, and she may not be able to tolerate the same foods as she did before. Go to a really bland, easily digested diet (you could also try enzymes, my kids love these) and see if that helps as well. Good luck!

gfpaperdoll Rookie

ditto re dairy, she should be dairy free. Is grandma cooking with wheat flour??? the stuff is awful & poofs up in the air & gets on everything & the child can breathe it in & get very sick. Hard to keep little kids in a house that is not gluten-free. Do you have a local ROCK group or support group???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,832
    • Most Online (within 30 mins)
      7,748

    Duhgirl
    Newest Member
    Duhgirl
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.