Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cold, Joint Pain, Fatigue

DawnI

Recommended Posts

DawnI Rookie
DawnI
Posted

HELP - My son was formerly very hot....now is cold all the time....

also has fatigue - School thinks he is depressed - he says no just tired....

also has joint pain in the ankle - sprained it a while ago - but should be healed by now.

He is very good (extremely) about his diet. I do not think he got into some gluten - do any of your kids have ongoing symptoms?

Dawn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest jhmom
Guest jhmom
Posted

Maybe you should mention these to the doctor, there could be something else going on besides Celiac.

I know for me I am cold all the time, my hands and feet are always cold and my problem is called Raynaud's Phenomenon , here is a link with info on it:Open Original Shared Link

Fatigue and joint pain is a common symptom for many problems including Celiac, and it should be checked out.

ryebaby0 Enthusiast
ryebaby0
Posted

My son first presented with very rheumatic joints (hands, wrists, ankles, feet,) and those symptoms have subsided on a thoroughly gluten-free diet -- but rheumatoid arthritis is one of those autoimmune diseases that are not uncommon in celiacs. If you have faith in your pediatrician, you might ask. If you are near a big hospital they should have a pediatric rheumatologist. There are some blood tests they can do to check and those are fairly definitive. My son was the first JRA patient his peds group had seen in years (they actually used him as a teaching patient for the younger doctors -- here this is what it looks like in kids).

He also might be anemic. I also have Reynaud's, which sounds scary but it's just a fancy name and there's no actual treatment. I think, however it is fairly uncommon in children. Another possibility might be that his thyroid levels are off (sorry, another blood test....). I don't think you are misguided in wanting to not wait and see what's up, or wait for it to go away. 11 year old boys should not be chronically tired....

Joanna

mom to an 11 yr. old, celiac, egg allergy and autoimmune enteropathy

darlindeb25 Collaborator
darlindeb25
Posted
:D thank you stacie--i went to webmd and checked out the raynauds site--i have had this for years, usually effecting just one finger at a time--my hands and feet do get very cold--i work in a convience store and when i fill the pop/soda cooler i have to wear gloves to keep my fingers warm--thanks for the link--deb :D
  • 2 weeks later...
tammy Community Regular
tammy
Posted

Hi,

The first thing that came to my mind was hypothyroid. How is he doing now?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,012
    • Most Online (within 30 mins)
      7,748
    Anna Costa
    Newest Member
    Anna Costa
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
    • Scott Adams
      Chances of being coeliac

      By Scott Adams · Posted

      It's most likely going to be a celiac disease diagnosis based on your blood test results, but wait for your doctor to give you a green light for going gluten-free, as they may want to do additional testing. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.