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How'd You Inform Family & Friends?

dbuhl79

By dbuhl79
in Coping with Celiac Disease

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dbuhl79 Contributor
dbuhl79
Posted

When you were first diagnosed with Celiac Disease, how did you explain it to family and friends? Any suggestive teaching tools? (i.e, literature etc.)

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Guest PastorDave
Guest PastorDave
Posted

I think the best teaching tool is this discussion board. Find issues that your family doesn't understand, and have them read what others have to say about them. It is also a great place for them to ask questions about how to be supportive of you. Also I like Bette Hagmans cook books, not only are the recipes great, but she goes into Celiac, and the dangers of hidden gluten. There are also Celiac associations both here in the US and in other countries that have great websites and distibute information.

tarnalberry Community Regular
tarnalberry
Posted

I just told them "I found out I'm gluten intolerant, so I can't eat wheat, rye, barley, or oats - or anything that has that stuff in it. It'll make me sick and damage my intestines." And then answer any questions that come up.

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