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In A Bit Of A Dilemma...

holiday16

By holiday16
in Coping with Celiac Disease

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holiday16 Enthusiast
holiday16
Posted

I see people asking all the time for feedback on what you do that helps get over glutenings and would really like to answer this, but not sure how because with what I take that I have found to work for me are products of a company that I am associated with. Any good way to approach this because I'm not here to "troll" for people, but at the same time would love to share what has worked for me as it may help others?

It really hit home the other night how much I would love to share this here because there is one product I take that really helps calm me down with gluten assocated anger. What happened was we were planning to go to the fair with our youngest daugher. That day the school had called because her stomach hurt really bad so we picked her up and concluded that she must have gotten a small amount gluten at the school the day before as it takes 24 hours before she gets pain. By the time we were ready to leave her stomach was better, but she went into a horrendous outburst which is what happens when she has gluten. She overreacts to every little thing, yells and cries uncontrollably and nothing will calm her down.

I aked dh to give her half of one of these tablets that I take (we had our cardiologist check the bottle before we gave it to our son so we're comfortable giving it to our kids) and told her we would not go until she took it. Left for the fair and actually had a great time with no uncontrollable emotions. On the way home I asked her if she had taken her pill since I didn't see for sure since dh gave it to her and she said she did. Then she added that it was really weird, but before she took the pill she couldn't stop crying, but after she had it she didn't want to cry anymore. That really hit home because that's how I feel when I take it for gluten associated anger. We also give it to our oldest daughter when she goes into the same thing although hers is more depression related. We used it for her before we even knew she had trouble with gluten. It's certainly not a solution for everyone as I know my sister used it for her daughter and didn't have the same success we had, but for us it's been invaluable. We don't go on any trips without it anymore :o)

So, I think you can see why I would love to share this here, but at the same time this board is very important to me and I don't want to be seen as trying to promote what I do. I also have to walk the line of following company rules and guidelines so just naming products isn't a good option either. Any advice? I feel so excited we found something that worked so well for us, but I don't want to violate rules by sharing it!

BTW, totally off topic the highlight of the night was our daughter won one of those huge prizes at the fair which has never happened in all our years of going there. She was so excited she talked for about an hour non-stop, LOL! Very cute and she's been sleeping with this huge cheetah ever since :o)

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mamaw Community Regular
mamaw
Posted

Okay, now please e-mail by private message the name of the pill? Is it a drug or something natural? We also have one that gets very nasty when gluten has been bestowed near him>>>>... He also cries & becomes very negative ...........

I could use your help..

thanks

mamaw

Lisa Mentor
Lisa
Posted

Perhaps those who are interested could get that information from your website, listed on your personal profile page.

Generic Apprentice
Generic
Posted

The only website I saw on her page had to do with a a boy and a heart procedure. Am I missing something? I would love to know what this product is also.

Lisa Mentor
Lisa
Posted
The only website I saw on her page had to do with a a boy and a heart procedure. Am I missing something? I would love to know what this product is also.

I see that now. The only other thing I would suggest is direct contact.

gfpaperdoll Rookie
gfpaperdoll
Posted

a pill??? oh come on, this post sounds a little too scripted for me...

holiday16 Enthusiast
holiday16
Posted
  • Author

Momma Goose, thank you for the suggestion. I added the product page for the supplement I was talking about to my profile as my website. I guess I could leave it there for a while so people can see what I'm talking about. I just really hesitated to link a business page to a site like this as that's really not why I joined the forum.

Like I said in my original post this supplement has been invaluable to us and we can't do without it, but my sister tried it with her daughter and didn't get the same results we did. Personally, there are other things I take as well when I find I've accidentally had gluten. Certainly not a cure, but it seems to make it more bearable and give me a bit more energy. Still very miserable though as I'm sure others can relate.

The site that I had linked in my profile before I changed it was about my son. He was born with a rare heart condition and we use the internet to reach other parents that are getting ready to have a child with the same condition. When our son was born I wanted more than anything to see an example of a successful outcome and give me some hope. I didn't have that and so we decided we would share our sons story to give people hope of what the outcome could be. I was sick for so long (I'm sure others can relate!) that the page is terribly outdated, but as I'm getting better I'm getting more involved again and it's on my to do list to fix up his site. My husband added new pictures, but I haven't done any work on it since I became sick which is why it looks so disjointed.

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