Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Had Appendix Out!


noglutee4kt

Recommended Posts

noglutee4kt Newbie

HI-

I was just wondering if anyone else has had their appendix out?!!! I was diagnosed celiac in Oct.06 and have been doing well since about January. I've suffered from abdominal pains here and there and had a bout of colitis in January :huh: , but the past three weeks I haven't been feeling well and all of the sudden on Saturday afternoon while I was working (i'm a nanny) I doubled over with SEVERE lower abdominal pain in my right side. I called my boyfriend who came and got me and (thankfully) insisted I go straight to the ER and after several hours and a cat scan later they took me in for an emergency appendectomy :o (spelling?) anywho- that was saturday and today (thursday) I am still in quite a bit of pain. I was told by the operating doctor that my appendix was very high up and was pressing on my intestines. I was just wondering if anyone else had this surgery and/or words of wisdom on my recovery time. I feel so wiped out and am hoping to get better soon! THanks!!

Kate :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

I am now 60 & had my appendix out when I was 12.

It is major surgery, just take it slow & do not overdue. I am sure you will be soooo much bette soon.

Wishing you a speedy recovery

gfgypsyqueen Enthusiast

Hi, I lost mine too! At least you have one less organ that the drs can claim is causing you problems :blink:

Anyway, the pain the got me the worst was in my shoulder blades. They put some gas into your abdomin to do the laparoscopy (assuming you had the belly button surgery). The best way to make the pain stop is to move around. It is the very last thing you will want to do, but you will feel better. Move your arms in big cirlcles. Walk around. All the movement will help stop the gas from building up and will cause the gas to be absorbed which will make you feel better.

Once you recover fully, you will never notice a diiference with the appendix gone.

Feel better soon

ElenaDragon Explorer

I have not had my appendix out, but my sister did a few years ago. Hers was about to burst, so they had to do emergency surgery. It took her longer to recover without the laparoscopic surgery, and the pain meds made her sick to her stomach. Take it easy and give your body time to heal. Here's wishing you a quick recovery!

NoGluGirl Contributor

Dear noglutee4kt,

I had my gallbladder removed four years ago. I had terrible gas afterward. That is probably what the pain is from. The wounds actually only stung a bit, it was the gas that was so uncomfortable! Thank goodness you got that thing out, it sounded like it was causing as much trouble as my gallbladder had been.

My pal DingoGirl on here had her appendix out. That is what started all of her trouble. She was doing pretty well for a while. Then, she began feeling rough after the surgery. I am not sure how long it has been since she has had it out. You might want to PM her.

Sincerely,

NoGluGirl

Rick45 Rookie

I had mine taken out when I was 9 , I recovered fast , I think, it was along time ago.

Guest thatchickali

Had mine out in April, when I was still diagnosed as "IBS". We were hopeful that it had been causing my suffering all along, but I didn't get better. Got diagnosed celiac disease in July.

It sucks, but the good thing about it is, when you have bad gas pains, you don't have to worry that it's the appendix! Because personally celiac disease causes a lot of gas pains and I feel relieved knowing that even when I'm doubled over, it's not my appendix.

You'll get better soon. I was miserable for about a week, then I started getting some more energy. I was completely myself after a month. (I had an open surgery though...if you had laproscopic it might be different.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 months later...
Lovergirl101 Newbie

Hello my name is Heather, and I do not have Celiac but on Oct. 31 I had emergancy surgery to have my appendix removed. they did it lapiscopicallyI have three insisions sry spelling but i have been in so much pain. i am only 16 and it hurts bad. But it's getting better. Just take it extra slow and I don't know if the hospital told you this or not but they told me that holding a pillow kind of firmly but to to hard against your stomache and lower abdomen will take some of the pain away. And also when you go to sleep i found that holding a pillow on your stomache then also helps. I hope it works for you.

Heather

FootballFanatic Contributor

This is my subject!

Okay I had mine out 6 months ago....4-21-07.

The first thing I would like to research is if it could be related to Celiac Disease in any way, since it is a part of the intestine.

As for recovery - it depends on if you had open or laproscopic. My doctor did open and I could have killed him for it. It took a month to start getting energy back, 2 months to feel pain free and 6 months later I still get some pinching pain in that area. (Doc said it was normal it just takes a long time for things to fall back into place.)

If you had laproscopic you will probably experience more gas because they had you pumped up with air, but you should have a speedier recovery. A friend had has laproscopically removed a month ago and he was back to normal very quickly. Doing daily things after a week and feeling great after 2 weeks.

We're all different. PM me if you have any questions.

jkmunchkin Rising Star

I actually just had an emergency appendectomy 3 weeks ago. So add me to the club of those less an appendix ;)

Luckily they did not burst (although the doctor still seems to be in shock about that), so they were able to remove them laproscopicly. The last of my bandages / tape just came off last night.

The recovery wasn't that bad (except for the 2nd trip back to the hospital, but that's a whole other story). The 1st couple days after was the worst pain wise because all the gas they fill you with radiates up to your chest and shoulders, but other than that it was fine. (Then again I also have an insane tolerance for pain, hence another source of amazement by my doctor).

I have a tiny scar under my belly button that I am pretty sure will fade completely with time and two little scars that are on my lower abdomen, that I am hoping will fade with time. I was pretty tired for the first couple of weeks, but feel fine now.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.