Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waaaaahhhhhh........

JNBunnie1

By JNBunnie1
in Coping with Celiac Disease

Recommended Posts

JNBunnie1 Community Regular
JNBunnie1
Posted

So I thought it was safe to use a particular face lotion on my lips when I couldnt find my chapstick the other day, and I was wrong......... So now I'm in for a month of yuk. For the first week I'm all dizzy and feverish and headachy and brain dead, then I get lactose intolerant for a week or so, then I get the DH for a few weeks. I'm so jealous of all the people who have a day of diarrhea and that's it......

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aikiducky Apprentice
aikiducky
Posted

Hey, I saw no one replied to this post yet... I guess because there's really nothing we can do except for sympathize... :o

I hope you feel a little bit better!

Pauliina

JNBunnie1 Community Regular
JNBunnie1
Posted
  • Author
Hey, I saw no one replied to this post yet... I guess because there's really nothing we can do except for sympathize... :o

I hope you feel a little bit better!

Pauliina

HAhahhahah! Yeah, that was flat out whining. I actually do feel a bit better than the last time I got glutened, not sure why. I'm just hoping the DH will be less severe too, that was the worst bit. Had it for the first time a few months ago, and WOW does that suck! And here I am complaining and I've only had it once, some people have had it for years!

Thanks for the kind words......

NoGluGirl Contributor
NoGluGirl
Posted

Dear JNBunnie1,

I am sorry to hear you got glutened! :( I get a severe reaction, too. I get violently ill from even the most microscopic speck of the crap. I break out in a sweat, get terribly nauseated, start shaking, sometimes my hands go numb, have the sudden need for a bowel movement, and start getting horrible dry heaves that make me feel as if my insides are going to implode if I do not get a promethazine down quick enough. One stupid little thing is all it takes. We can only be as careful as possible. Do not beat yourself up, because there is so much needing considered, it is difficult to remember every little thing.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,790
    • Most Online (within 30 mins)
      7,748
    shannonbaldock
    Newest Member
    shannonbaldock
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      That is a very good point I do not know if they truly ever went down. With my nutrient levels all being good, CBC, metabolic panel I assumed everything was fine over the years. Now Im worried this is refractory celiac or something else 
    • RMJ
      TTG IgA and IGA elevated mildy

      By RMJ · Posted

      I don’t know how common it is, but it happens.  Total IgA going up is not necessarily celiac related.  The body can make IgA antibodies against all sort of things.   But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to the normal range? That also can happen, although not too common. Some people with celiac disease do react even to purity protocol certified gluten free oats. Removing oats from your diet for a few months and retesting is probably a good idea.
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      interesting I did not know that was that common or could take that long.  When I was diagnosed 15 yrs ago I was told just follow gluten-free diet and follow up with primary care doctor (who never checked celiac panel again). I felt way better and all the major symptoms went away. It wasn't until recently at 25 (14 yrs after diagnosis) that I thought to follow up with a gastro doctor who then did a celiac panel and noted those minor elevations 3 months ago then I got them checked again by another doctor the other week and were showing roughly the same thing.  I am very strict with what I eat and dieitican was maybe thinking it could be oat flour. I do eat a fair amount of processed food but I will not touch anything unless it is certified gluten free.  Do you see this pretty commonly with others? Having mild rises in TTG IGA and IGA who have been on gluten-free diet for years? 
    • RMJ
      TTG IgA and IGA elevated mildy

      By RMJ · Posted

      Do you have any other results from either of the two labs where you’ve been tested recently?  If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range.  I realized that I had started baking with a different brand of gluten free flour.  When I stopped using that flour the level went back to normal.  Has something changed in your diet, environment, activities, medications or other areas where you could possibly be exposed to gluten? 
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      Thank you for the clarifcation, how can I get to the bottom of this as to why they may be elevated even on a super strict gluten-free diet? 
×
×
  • Create New...