Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suffolk Group

joelcontrol

Recommended Posts

joelcontrol Apprentice
joelcontrol
Posted

suffolk county nyOur next meeting will be held on Tuesday, September 11th at 7:30 pm (delayed one week because of Labor Day).

This meeting will be dedicated to answering as many questions as we can about Celiac Disease. So, if you are newly diagnosed or are a "seasoned" Celiac, bring your questions, problems, comments, gripes and anything else you can think of and we'll try to help. We'll talk about foods, restaurants, doctors, online vendors and whatever else comes up.

We will also be giving you an update on what's going on with the group and what's in store for future meetings.

We will have two guest vendors:

Keith Kohler from Core Naturals

Nutritious Creations - a gluten-free cookie company located right in Bay Shore

It will be a very informative meeting and we look forward to seeing everyone there.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


de caps Contributor
de caps
Posted

Where is this meeting held?

darlindeb25 Collaborator
darlindeb25
Posted

The meetings are held in: The West Islip Community Center--90 Higbie Lane--West Islip---it's an old elementary school. Our meetings are always toward the back of the building on the right side. We will look forward to seeing you there!

  • 3 weeks later...
joelcontrol Apprentice
joelcontrol
Posted
  • Author

Now something good - a reminder - Dr. Peter Green will be our guest speaker next week, Tuesday, October 2nd. The talk will be in the auditorium (front of the building) and we will have four vendors in the cafeteria for afterwards. There will also be samples from an additional four vendors.

Obviously, we will need some help with this month's meeting. We will need people to collect the admission fee, sell Dr. Green's book, help set up and clean up in the cafeteria. If you can help out, please be at Higbie Lane as early as possible.

We have Dr.Green scheduled for 7:30 pm and would like to start right on time. His talk will run about an hour and then everyone can go to the cafeteria for coffee and check out the vendors/samples.

The price is $5.00 per person. Please make every effort to attend - this is a fund raiser - all proceeds will be given to the Celiac Disease Center and our group will match all admission fees and donations.

See you next week.

Barbara Pepitone

Suffolk County Celiacs

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...