Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sweating, Blushing And Increased Appetite

Jesse E

By Jesse E
in Coping with Celiac Disease

Recommended Posts

Jesse E Rookie
Jesse E
Posted

.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest thatchickali
Guest thatchickali
Posted

Lucky you. I get completely nonsexual.

About the appetite. I get that sometimes. I don't think I blush or sweat though...

bfarnsworth0709 Rookie
bfarnsworth0709
Posted

I notice that my face looks red alot like I have been sunburned or maybe am blushing. I never thought of it as being glutened! Do you guys think that is what it could be? I didn't use my face wash, Cetaphil, today b/c I thought maybe that's what it was, but it still looks red. I have been hungrier this week too, but I just thought it was a diet thing b/c I am on WW.

Any ideas?

JNBunnie1 Community Regular
JNBunnie1
Posted

If those are symptoms of a high histamine reaction, then they're related to an allergy you have, as opposed to celiac disease, I think. I never got horny when I was sneezing at the cats, though.

Kelli Newbie
Kelli
Posted

I have gotten sick after eating anything with gluten or dairy now....I end up with painful cramps and a long trip to the bathroom followed by complete body sweats and eventually passing out due to my body not being able to take the pain. I know when I'm getting sick because the sweats come on. I've so far been able to conquer the passing out by putting my head down when I feel it coming on. This is my first Gluten free day after 10 years of miss diagnosis and I couldn't be happier to know that I'm not crazy and there's a way out (if you call no fast food a way out!) I've also noticed the increased sexual drive like being 18 again, partially due to being bored out of my mind though because I can't sleep-but then again when I do it's for days. At work I am very sensitive to temp changes and blush very easily-almost like menopause!

barbara123 Apprentice
barbara123
Posted
I have gotten sick after eating anything with gluten or dairy now....I end up with painful cramps and a long trip to the bathroom followed by complete body sweats and eventually passing out due to my body not being able to take the pain. I know when I'm getting sick because the sweats come on. I've so far been able to conquer the passing out by putting my head down when I feel it coming on. This is my first Gluten free day after 10 years of miss diagnosis and I couldn't be happier to know that I'm not crazy and there's a way out (if you call no fast food a way out!) I've also noticed the increased sexual drive like being 18 again, partially due to being bored out of my mind though because I can't sleep-but then again when I do it's for days. At work I am very sensitive to temp changes and blush very easily-almost like menopause!

I sweat profusely when I have been glutened. At first I thought it was menopause cause i had a hysterectomy four years ago. after being gluten-free for about three months the only time i have the hot sweats is when I have made a mistake with food.

  • 2 months later...
Jesse E Rookie
Jesse E
Posted
  • Author
If those are symptoms of a high histamine reaction, then they're related to an allergy you have, as opposed to celiac disease, I think. I never got horny when I was sneezing at the cats, though.

People with celiac may actually have high histamine: Open Original Shared Link

Thanks for all the replies! Just bumping this thread to see if anyone else has these symptoms too...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Joni63 Collaborator
Joni63
Posted

I haven't noticed those symptoms since going gluten free, but my face was always red prior. I also had night sweats and my stomach always felt naggingly hungry. :)

Idiote Savante Goddess Rookie
Idiote Savante Goddess
Posted

I have a few million food allergies. I get that red, instantly sunburned face thing whenever I drink alcohol, eat wheat or rice, or anything super-yeasty. It actually hurts like sunburn.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

These sound like symptoms of too-high thyroid to me. Perhaps you should have your thyroid checked?

It is also possible that when you get glutened, your immune system attacks your thyroid, which then overproduces.

justsomegirl Newbie
justsomegirl
Posted

wow, I have to say reading your symptoms sound so similiar to mine. After eating gluten I would get so sick.....and actually end up in the hospital from being dehydrated and in so much pain. Has anyone heard of being diagnosed with celiac from their biopsy, and not finding it in the blood?? Is that normal? I am so glad I found this forum. I don't feel so alone. I think changing my diet is going to be rather challenging for me.

TestyTommy Rookie
TestyTommy
Posted

I definitely get an increased appetite when I get glutened; I can't stop eating! Red skin, too -- all over, not just my face.

Back before I went gluten-free, I couldn't sweat at all. As I've healed, I begun to sweat more normally. And whenever I get glutened, I'm so tired and foggy that sex is the last thing on my mind. . . . I've never heard of any celiacs who get revved up by gluten; it's usually the exact opposite -- we get chronically exhausted and have severe 'brain fog'.

I agree that these kinds of symptoms are likely connected to hyper/hypo thyroid issues. My doctor had this take:

He said that whenever people have a chronic disease that is undiagnosed/untreated for a long time, glandular systems like the thyroid and adrenal gland will get out of whack. when we start getting sick, our body can tell that something is wrong. So it starts pumping out different hormones in a trial & error manner in an effort to fix the problem. Of course, it doesn't help any. This leads to an oscillation of hyper/hypo symptoms in the early stages, and steady hypo symptoms after a longer period of time after the glands get worn out. As we heal, the glands get in this hyper/hypo oscillation again, until they eventually get back to their normal equilibrium.

How long were you sick before being diagnosed with celiac disease? If you're in the early stages, the increased appetite/drive/sweating could be a hyperthyroid reaction to the gluten.

Jesse E Rookie
Jesse E
Posted
  • Author

I was sick for about a year before figuring out what the problem was. I have major problems with both dairy and gluten. Although in very small amounts, they don't affect me nearly as much.

I recently found this study: Open Original Shared Link

It found that people with celiac have increased plasma testosterone and increased free testosterone...but only when they are eating gluten.

This could explain the whole libido thing...

loco-ladi Contributor
loco-ladi
Posted

Well, the sweating and blushing I have not noticed even after getting a glutening......

the increased appetite heck yeah! gimme food and lots of it however I dont seems to be gaining weight I think I am maintaining quite well right where my dr says I should be...

the increased sexual thing..... yeah hubby is liking that quite well but mostly I figure thats because for so many years I "just didnt feel like it" I am now "catching up" not to mention I dont have to worry anymore about becoming ill at "the wrong time" or being ashamed of what my body had begun to look like.... not that I was "really" fat but compared to what I had been used to most of my life it was a step in the opposite direction..... My current weight is comfortable, I am not a beanpole (like my teen years) but not "malnurished fat" either like I was before I started the gluten-free diet.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
He said that whenever people have a chronic disease that is undiagnosed/untreated for a long time, glandular systems like the thyroid and adrenal gland will get out of whack. when we start getting sick, our body can tell that something is wrong. So it starts pumping out different hormones in a trial & error manner in an effort to fix the problem. Of course, it doesn't help any. This leads to an oscillation of hyper/hypo symptoms in the early stages, and steady hypo symptoms after a longer period of time after the glands get worn out.

This could explain bipolar syndrome, too!!! The oscillation of hyper/hypo symptoms match bipolar symptoms....

Nancym Enthusiast
Nancym
Posted

A big insulin rush can also increase adrenaline, which will also cause those symptoms. Does this happen when you load up on starches and sugars?

saravan1 Newbie
saravan1
Posted

I had similar symptoms without the increased sex drive. I collected a 24 hour urine sample to be tested for Cushings Disease as well as an adrenal tumor. When this came back only slightly elevated, I was told it was either menopause or anxiety. Are you a Jesse man or woman? I experienced menopause at age 50. The fluctuating hormones can really cause a lot of symptoms and provides a convenient diagnosis for just about everything. Most drs. seem to like easy explanations.

As far as the comment about bipolar...this is NOT a symptom of bipolar. Something physiological has to be happening to cause these symptoms. Yes, bipolar is also one of these easy to make diagnoses. I had that one too. Being told you're mentally ill is usually effective in quieting patients at least until they find the symptoms are still there even on psych drugs. I also was told I had CFS, IBS, Crohns, anxiety disorder...just to name a few. No one thought about celiac because I'm about 30 lbs overweight. My symptoms from celiac started in my 20's. I'm just now getting diagnosed. When I think of the time, money and lost quality of life as well as damage done to my body, I could just cry. I have a lot of the problems people encounter with delayed diagnosis. At least celiac disease is something I can have some control over.

Sara

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    3. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    4. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.