Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Results

blue angel

Recommended Posts

blue angel Rookie
blue angel
Posted

I had a biopsy done 5/6 weeks ago after my TTg blood test returning positive for celiac disease.

I have all symptoms except diarroeha ( in fact the opposite). All i get told when i call is no results yet. Has anyone had to wait this long for biopsy results?

I forgot to add that the initial result while i was in the recovery suite was Gastritis and oesophagitis and that i may need rescoping as they didn't retrieve as many samples as they needed. In the mean time i am in constant pain but can't take gluten out in case the rescope (if needed) gives a false result HELP!! :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mama2 Apprentice
mama2
Posted

I would think by now you should be able to call them, they should have called by now. When I had my biop done they only took two and they cam back inconclusive. They never did the blood wrk?. But I had my results within 3wks or so. I hope you get some answers soon. sry I am not much help about the false neg stuff... I am still trying to figure that all out myself.

blue angel Rookie
blue angel
Posted
  • Author
I would think by now you should be able to call them, they should have called by now. When I had my biop done they only took two and they cam back inconclusive. They never did the blood wrk?. But I had my results within 3wks or so. I hope you get some answers soon. sry I am not much help about the false neg stuff... I am still trying to figure that all out myself.

Thanks for your reply but can i just ask are you now diagnosed celiac disease. It's just that you said your biop came back inconclusive. What happened after that if you don't mind my asking?

Bree Newbie
Bree
Posted

After I had my endoscopy and colonoscopy, I had to make an appt. with my GI to get my results from the biopsies for 4-5 weeks later, so I guess it can take awhile. I know when I call the GI's office, you often get a recording and they tell you how unbelievably busy they are, and that they will attempt to return you call within 48 hours, and NOT to leave a duplicate message!! Nice and cozy isn't it? I called last Monday to book my appt to get my results, and had not heard back Thursday, so called and left a duplicate message (rebel I am!) and they called me back in minutes. I told them it was unacceptable and that they should hire more people to work in the office! Anyway, my scopes were done on Sept. 7th and I go for my results on October 18th, so quite a long time!!

tmk Explorer
tmk
Posted

i got my endoscopy done on Aug 23rd and have yet to hear my results -- i went in to ask for a copy of them b/c every time i called, they said -- they're in, the doctor just hasn't looked at them yet. when i went to get a copy, they refused. i think it is so inconsiderate how they treat people, busy or not -- good luck w/ your results. i, myself, decided to go gluten free regardless of the biopsy results -- one week through now, and boy, do i feel tons better! give it a try :)

Best luck to you!!

blue angel Rookie
blue angel
Posted
  • Author
i got my endoscopy done on Aug 23rd and have yet to hear my results -- i went in to ask for a copy of them b/c every time i called, they said -- they're in, the doctor just hasn't looked at them yet. when i went to get a copy, they refused. i think it is so inconsiderate how they treat people, busy or not -- good luck w/ your results. i, myself, decided to go gluten free regardless of the biopsy results -- one week through now, and boy, do i feel tons better! give it a try :)

Best luck to you!!

Hi to all who replied. Just been to see my GP and he has gone mad. he says i should have heard something before now. He has advised me to go as gluten-free as i can,but can't yet give me perscriptions as they have to get the go ahead from the consultants.

He has asked me to make an appointment for next week and was personally chasing up while i spoke to the receptionist. He says they shouldn't have a right to rescope as they have left it for so long and left me getting more ill by the day. He was extremely concerned and also told me a positive ttga would not come back as positive if it was negative or would be highly unlikely. Problem i have now is finding what to eat :unsure:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    2. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Neg for HLA dq8 and dq2
    3. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      How can you be negative for HLA? What markers did you have here? Curiouser and curiouser...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Yes, I have noticed a big difference. I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me. At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university. I went gluten free. I...
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Yes, I would be good with the diagnosis. While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels. Recovery from either disease requires avoiding gluten. celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,746
    • Most Online (within 30 mins)
      7,748
    CarlyRenee
    Newest Member
    CarlyRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Neg for HLA dq8 and dq2
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.