Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doc's Advice?

mama2

Recommended Posts

mama2 Apprentice
mama2
Posted

Today I went to see my doctor b/c I had gluten reaction from CC or maybe the saled dressing I had at bob evans... still not sure, they said the dressing was safe. anyway, I was also having some sort of allergic reaction too. ALong with a DH rash. So my doc gave me a cordizone (sp?) shot to help with the reaction and sending me to get food allergey test done. he also finally gave me celiac spure diag , which I have seen many docs for many years and nothing... so huge weight lifted off my shoulders.. don't feel so crazy anymore!

Well, now for my question I have a 10mth old that I still nurse some and the doc asked me if I was planning to stop soon (gonna take him to a year if my supply lasted)... he does'nt really like the idea of me nursing with the shot but, wants me to decide. Any advice?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I would contact the La Leche League and see what they say--they know WAY more than the docs about anything to do with nursing, including what gets into breast milk and what doesn't.

The website is www.lli.org, I think. If that doesn't work, google "La Leche League."

Good luck, and bravo to you for nursing! I could never understand why anyone would want to wean their baby to chemicals out of a can put into a plastic bottle with a rubber nipple, anyway...

mama2 Apprentice
mama2
Posted
  • Author

Thanks so much. I had already looked at kellymom.com and there was nothing.

mama2 Apprentice
mama2
Posted
  • Author

I think I found the answer to my question.

Open Original Shared Link

I am going to go ahead and nurse him tonight and check with La Leche in the morning.

My doctor never seems toknow what is safe and whats not... I know he thinks its great that i nurse.

loraleena Contributor
loraleena
Posted

I am a lactation counselor, but unfortunealty the book we have on meds and nursing is 3 yrs. old, so I don't feel comfortable giving the advice in there. Calling a local lactation consultant is a good idea. If you can't nurse while on this med, you could at least pump and dump your milk until the med is out of your body. You may have to do the formula for a few days, but at least your milk supply won't decrease.

mama2 Apprentice
mama2
Posted
  • Author
I am a lactation counselor, but unfortunealty the book we have on meds and nursing is 3 yrs. old, so I don't feel comfortable giving the advice in there. Calling a local lactation consultant is a good idea. If you can't nurse while on this med, you could at least pump and dump your milk until the med is out of your body. You may have to do the formula for a few days, but at least your milk supply won't decrease.

Thanks, Under my docs new advice I am giving him mainly formula right now and nursing only some. He said it should be ok... my son seems to be happy with that arrangement. I am trusting the doc is right?. This whole nursing thing on what is safe and whats not is hard and never usually a clear cut answer... esp since I have been adjusting to a gluten-free lifestyle.

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

Just an FYI, call Bob Evans and talkto someone knowledgable about the food. I recently found out that my local Bob Evans home fries arrive seasoned, the chicken arrives frozen with dairy items (my kid is allergic to dairy). I left that day eating an awful burger patty and small side of fruit, and still hungry. I won't be back any time soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mama2 Apprentice
mama2
Posted
  • Author
Just an FYI, call Bob Evans and talkto someone knowledgable about the food. I recently found out that my local Bob Evans home fries arrive seasoned, the chicken arrives frozen with dairy items (my kid is allergic to dairy). I left that day eating an awful burger patty and small side of fruit, and still hungry. I won't be back any time soon.

Thanks I will def do that...won't be going back soon , too.

loraleena Contributor
loraleena
Posted

I would definitely consult with a lactation consultant in a hospital. A lot of docs no little to nothing about breastfeeding. Keep doing what you are doing, but get advice from a real expert. When did the doc say you could start breastfeeding all the time again? You should pump and dump your milk in between nursings so that your milk supply won't decrease.

Nikki'smom Apprentice
Nikki'smom
Posted
I would contact the La Leche League and see what they say--they know WAY more than the docs about anything to do with nursing, including what gets into breast milk and what doesn't.

The website is www.lli.org, I think. If that doesn't work, google "La Leche League."

Good luck, and bravo to you for nursing! I could never understand why anyone would want to wean their baby to chemicals out of a can put into a plastic bottle with a rubber nipple, anyway...

I hope you feel better and get the answers you need. Good for you with nursing and sticking with it.

I do have to comment on Fiddle -Faddle's post. though. I am saddened that some would would make a mom feel bad for NOT BF. there are many reason NOT to BF. I do believe BF is great if it is right for you and your child and do it if you can. I personally did not BF because it wasn't for me and i knew that so to me if I wouldn't be able to handle it then my child was better off being formula feed. I did support any and all of my friends who BF and helped them get past any hurdles when times got rough because that is what friends do. I personally don't think it is fair to talk down formula feeding like you did in your statement. what happens is a new mom was reading that post and was having a hard time BF and was in tears because she couldn't and read what you said and it made it worse? It is a very personal choice and I think ALL mothers should support other mothers in their disicion to do what is best for their families and their children.

I am sure you had no clue you would offend any one with this post and I am very sorry if I took it the wrong way but I just want mothers to support other mothers in how they choose to feed their babies.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I don't know if I am getting sufficient Omega Threes. I read about phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    2. Scott Adams
      0

      Gluten-Free Cantonese Steamed Fish with Ginger, Scallions, and Sizzling Oil

    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue. I have eaten a supposedly high lectin diet (I say supposedly because lectin...
    4. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
    5. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.