Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Please

mouth

Recommended Posts

mouth Enthusiast
mouth
Posted

HI CAN ANYBODY HELP PLEASE??

I AM LOOKING TO MAKE A SAFE MEDICATIONS LIST FOR MYSELF AND MY DAUGHTERS DOCTOR AND FOR "ICE". .. MANY OF THE PARMACOLOGICAL COMPANIES WILL NOT GIVE ME THE INFORMATION. THEY SAY THE DOCTOR HAS TO CALL TO GET IT.. I THINK THAT IS A LOAD OF BALONEY.. WE NEED THIS INFORMATION.

I AM SORRY, I DON'T KNOW ABOUT ANYBODY ELSE, BUT I CAN NOT AFFORD TO JOIN WHAT IS IT?? THAT SITE THAT CHARGES YOU AND GIVES YOU THE MOST UP TO DATE INFORMATION THAT WE NEED.

I DO NOT THINK THAT THEY SHOULD NOT EVEN CHARGE FOR IT.. BUT ANYWAY..

CAN ANYBODY HELP WITH THIS?? IF SO LET ME KNOW, AND I'LL GIVE THE EMAIL ADDRESS I USE JUST FOR CELIAC STUFF.

THANK YOU EVERYBODY!!!!!!!!!!!!! LYNN

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Open Original Shared Link

mouth-

This listing indicates that it is a October 2007 update. Hope this is helpful.

mouth Enthusiast
mouth
Posted
  • Author
Open Original Shared Link

mouth-

This listing indicates that it is a October 2007 update. Hope this is helpful.

THANK YOU VERY MUCH.. I had had this listing, but the last time I was there, it had not been updated.

tyvm

lynn

Guest j_mommy
Guest j_mommy
Posted

The lactaid co...they also are the ones that make tylenol......will send you a complete list of their gluten-free products...with coupons if you call!!!!

mouth Enthusiast
mouth
Posted
  • Author
Open Original Shared Link</a>

mouth-

This listing indicates that it is a October 2007 update. Hope this is helpful.

HI, first off thank you for the link.. But see now here is the thing.. Childrens Grape flavored liquid Tylenol- I was told that IT IS NOT gluten-free... BUT THEY HAVE IT ON THE LIST AS gluten-free..

Also, they have alprazoam (xanex) on the list, and I know that it is not gluten-free.. company told me so, because i ck'd 4 myself..

THAT IS ONE THAT SCARES ME THE MOST..

I just sent an email to the address at the bottom of the site.. Will let you know what answer I get.. tttys..

lynn

barbara123 Apprentice
barbara123
Posted
HI, first off thank you for the link.. But see now here is the thing.. Childrens Grape flavored liquid Tylenol- I was told that IT IS NOT gluten-free... BUT THEY HAVE IT ON THE LIST AS gluten-free..

Also, they have alprazoam (xanex) on the list, and I know that it is not gluten-free.. company told me so, because i ck'd 4 myself..

THAT IS ONE THAT SCARES ME THE MOST..

most of the time if you type in the product and then gluten it will bring up information. But if you still dont believe it then call the company Hope this helps :D

mouth Enthusiast
mouth
Posted
  • Author
most of the time if you type in the product and then gluten it will bring up information. But if you still dont believe it then call the company Hope this helps :D

type it where please ?? in google??

tyvm..

lynn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest j_mommy
Guest j_mommy
Posted

You also have to remember that ingredients always change! That is why I didn't want to spend the money on those lists you pay for(granted they are updated) but I would rather call or email.

Who told you that tylenol product was not gluten-free???? I don't think that one was on the gluten-free list I got a week ago!

Good Luck!

barbara123 Apprentice
barbara123
Posted
type it where please ?? in google??

tyvm..

lynn

I type in the google search bar Gatorade gluten and hit search :D

mouth Enthusiast
mouth
Posted
  • Author
I type in the google search bar Gatorade gluten and hit search :D

TYTYTY :D

bklyn Enthusiast
bklyn
Posted

The drugs on the gluten free drug list are name brands, correct? What about generics? My insurance company pays for generics, but I've found it to be a problem when researching generic drugs.

Any suggestions?

Thanks!

Kathy

mouth Enthusiast
mouth
Posted
  • Author
Open Original Shared Link

mouth-

This listing indicates that it is a October 2007 update. Hope this is helpful.

Thanks much momma goose

mouth Enthusiast
mouth
Posted
  • Author
The drugs on the gluten free drug list are name brands, correct? What about generics? My insurance company pays for generics, but I've found it to be a problem when researching generic drugs.

Any suggestions?

Thanks!

Kathy

Hi Kathy nice 2 meet you.

It is hard with generic companies-- you do the same call them up. But the problem like with Greenstone is that they told me that some of the stuff comes from the outside, and can't guarantee its gluten-free. Like with Zithromax the brand is gluten-free, but the generic one, they cant guarantee- they say the writing on the pill may contain gluten.. ugh i hate dealing with the pharmacological companies..

vvvvvvvvv glgl if you get anywhere, please let me know also.

tyty

lynn

JennyC Enthusiast
JennyC
Posted
HI, first off thank you for the link.. But see now here is the thing.. Childrens Grape flavored liquid Tylenol- I was told that IT IS NOT gluten-free... BUT THEY HAVE IT ON THE LIST AS gluten-free..

Also, they have alprazoam (xanex) on the list, and I know that it is not gluten-free.. company told me so, because i ck'd 4 myself..

THAT IS ONE THAT SCARES ME THE MOST..

I just sent an email to the address at the bottom of the site.. Will let you know what answer I get.. tttys..

lynn

I just went on a company calling spree. Here are my results:

Robitussin/Dimetapp: (800)762-4675 Do not track outside ingredients, so they have no idea if any of their products are gluten free.

Triaminic: (800)KIDS-987 All products are gluten free. (When I called them last March they gave me a short list of gluten free products, so I will be calling them back to double check.)

Banadryl: (800)223-0182 All children's products are gluten free. They track ingredients, but I don't think they test products.

Pediacare: (877)895-3665 Do not track outside ingredients.

Tylenol/Motrin: (888)466-8746 Gluten free lists are of RANDOM products that were tested. Not all products are tested, but none of their (children's) products have gluten added. They also track outside ingredients. Just because one flavor of Tylenol cold is on the gluten free list, does not mean the other varieties are not gluten free.

Tis the season...

mouth Enthusiast
mouth
Posted
  • Author
I just went on a company calling spree. Here are my results:

Robitussin/Dimetapp: (800)762-4675 Do not track outside ingredients, so they have no idea if any of their products are gluten free.

Triaminic: (800)KIDS-987 All products are gluten free. (When I called them last March they gave me a short list of gluten free products, so I will be calling them back to double check.)

Banadryl: (800)223-0182 All children's products are gluten free. They track ingredients, but I don't think they test products.

Pediacare: (877)895-3665 Do not track outside ingredients.

Tylenol/Motrin: (888)466-8746 Gluten free lists are of RANDOM products that were tested. Not all products are tested, but none of their (children's) products have gluten added. They also track outside ingredients. Just because one flavor of Tylenol cold is on the gluten free list, does not mean the other varieties are not gluten free.

Tis the season...

Dear Jenny

this is very odd because i have called triaminic 2 times now. The Purple bottle- NIGHT TIME COUGH AND COLD- IS NOT GLUTEN FREE.

I WENT WAS TOLD THAT THE TYLENOL GRAPES SUSPENSION - ACTUALLY ALL HAVE BEEN REFORMULTATED- THAT THEY HAVEN'T BEEN TESTED YET.. ON THE GLUTEN FREE.COM SITE- THE DRUG LIST PAGE- IT IS LISTED- AND I SENT A LETTER AND WHAT I WROTE ABOVE IS WHAT THE DR. WAS TOLD..

I SWEAR, IT DEPENDS WITH SOME COMPANIES WHO YOU SPEAK WITH - I WAS TOLD ROBITUSSEN WAS SAFE.. SEE? THIS REALLY STINKS WHEN 2 PPL CAN CALL AND GET 2 DIFFERENT ANSWERS.. GLGL AND HAPPY HALLOWEEN

LYNN

JennyC Enthusiast
JennyC
Posted
Dear Jenny

this is very odd because i have called triaminic 2 times now. The Purple bottle- NIGHT TIME COUGH AND COLD- IS NOT GLUTEN FREE.

I WENT WAS TOLD THAT THE TYLENOL GRAPES SUSPENSION - ACTUALLY ALL HAVE BEEN REFORMULTATED- THAT THEY HAVEN'T BEEN TESTED YET.. ON THE GLUTEN FREE.COM SITE- THE DRUG LIST PAGE- IT IS LISTED- AND I SENT A LETTER AND WHAT I WROTE ABOVE IS WHAT THE DR. WAS TOLD..

I SWEAR, IT DEPENDS WITH SOME COMPANIES WHO YOU SPEAK WITH - I WAS TOLD ROBITUSSEN WAS SAFE.. SEE? THIS REALLY STINKS WHEN 2 PPL CAN CALL AND GET 2 DIFFERENT ANSWERS.. GLGL AND HAPPY HALLOWEEN

LYNN

Yes, it is frustrating! If I'm unsure I call companies multiple times to talk to multiple people. Like I said, I plan on calling Triaminic again--I don't believe them! On the gluten-free list from Tylenol there was a blurb about how some grape and very very berry strawberry flavors have been reformulated and have not yet been tested. Even with these reformulations, they do not expect to find gluten in them. All their ingredients are gluten free. What they're really testing against is any possible cross contamination. Out of all the brands I trust Tylenol the most. I will likely stick to their products. On top of not using gluten ingredients, they test random products for cross contamination.

I think I'll call Walmart and get a list of their medications as well. They sell their brand of Robitussin like products. Tylenol does not have products containing expectorants, and sometimes those medications are very helpful.

mouth Enthusiast
mouth
Posted
  • Author
Yes, it is frustrating! If I'm unsure I call companies multiple times to talk to multiple people. Like I said, I plan on calling Triaminic again--I don't believe them! On the gluten-free list from Tylenol there was a blurb about how some grape and very very berry strawberry flavors have been reformulated and have not yet been tested. Even with these reformulations, they do not expect to find gluten in them. All their ingredients are gluten free. What they're really testing against is any possible cross contamination. Out of all the brands I trust Tylenol the most. I will likely stick to their products. On top of not using gluten ingredients, they test random products for cross contamination.

I think I'll call Walmart and get a list of their medications as well. They sell their brand of Robitussin like products. Tylenol does not have products containing expectorants, and sometimes those medications are very helpful.

SEND ME EMAIL.. MY EMAIL IS mightymouth1234@aol.com.

i will send you the letter that i just got !!!!!!!!

IN THE SUBJECT PUT UMM... U'R NAME AND CELIAC.COM AND I WILL KNOW WHO IT IS AND THAT ITS NOT SPAM.

LYNN

lynn

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748
    volivier
    Newest Member
    volivier
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Outgrow celiac?

      By trents · Posted

      @Riley, on this forum we sometimes get reports from people with similar experiences as you. That is, their celiac disease seems to go into remission. Typically, that doesn't last. At age 18 you are at your physical-biological peek in life where your body is stronger than it will ever be and it is able to fight well against many threats and abuses. As Wheatwacked pointed out, absence of symptoms is not always a reliable indicator that no damage is being done to the body. I was one of those "silent" celiacs with no symptoms, or at least very minor symptoms, whose body was being slowly damaged for many years before the damage became pronounced enough to warrant investigation, leading to a diagnosis. By that time I had suffered significant bone demineralization and now I suffer with back and neck problems. Please, if you choose to continue consuming gluten, which I do not recommend, at least get tested regularly so that you won't get caught in the silent celiac trap down the road like I did. You really do not outgrow celiac disease. It is baked into the genes. Once the genes get triggered, as far as we know, they are turned on for good. Social rejection is something most celiacs struggle with. Being compliant with the gluten free diet places restrictions on what we can eat and where we can eat. Our friends usually try to work with us at first but then it gets to be a drag and we begin to get left out. We often lose some friends in the process but we also find out who really are our true friends. I think the hardest hits come at those times when friends spontaneously say, "Hey, let's go get some burgers and fries" and you know you can't safely do that. One way to cope in these situations is to have some ready made gluten-free meals packed in the fridge that you can take with you on the spot and still join them but eat safely. Most "real" friends will get used to this and so will you. Perhaps this little video will be helpful to you.  
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Outgrow celiac?

      By Riley. · Posted

      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.