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Test Results

kellygirl28

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kellygirl28 Newbie
kellygirl28
Posted

After repeatedly being led to this forum while trying to do online research about why I have felt so crappy for so long, I told my doctor (actually, she is a P.A.) that I wanted to have "the complete celiac panel" done. That was on Wednesday. When I called her office on Friday, they still, "didn't have the results." CAN ANYONE TELL ME HOW LONG IT SHOULD TAKE TO PROCESS THESE TESTS?

I'm worried that my doctor has them, but doesn't know how to interpret them...she didn't know the first thing about this condition, and even less about how to test for it. Can't I just have someone who knows what they should be looking for interpret them? I FEEL LIKE I'M GETTING SICKER BY THE SECOND!

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confused Community Regular
confused
Posted

If they have to send them out which they mostly have to it takes about 7-14 days. Did she say if she has to send them out or not.

paula

kellygirl28 Newbie
kellygirl28
Posted
  • Author

She did senud them out, but to a lab in the area. Normally, when they send my bloodwork there, I have the results the next day.

confused Community Regular
confused
Posted

the celiac panel does take longer then most blood work. So try not to worry to much. I know much easier said then done, I will give her to at least this coming friday. or call her on monday and ask how long til the results will be in.

paula

kellygirl28 Newbie
kellygirl28
Posted
  • Author

Not worrying...that's a toughie! Any suggestions on that?

Thanks,

Kelly

confused Community Regular
confused
Posted

Eat as much gluten as you can handle lol. You can read as much on here as you can handle, so you are not overwhelmed when the test come in. And remember just in case your test comes back negative, dont take that as true, ask for an endoscope to be safe.

paula

ptkds Community Regular
ptkds
Posted

It took 2 wks for mine to come in. Then they only got part of them in and told me it was all normal. So I thought I was safe, until they called a few days later and said the rest of the results were in, and I had Celiac. I was in shock.

Give it about 1-2 wks and then start bugging them. You also have a right to get a copy of them, then you can put the posts on here and someone can interpret them for you!

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Ginsou Explorer
Ginsou
Posted

My blood tests for h.pylori and celiac took about 2 weeks. I had blood drawn at a lab, and the technician said 3 tests would be done there, and two tests would be sent out. I received a letter from the doctor's office saying all tests were negative....but the acutal test result figures were not included in the letter. The negative results shocked me....I've been lactose intolerant for 30 years, and out of the blue became very,very ill this spring.....bloating,gas,nausea,diarrhea,constipation,gut rumbling,abdominal pain/soreness 24/7. I also started to have stinging pains that lasted about 1 second in my abdomen and arms and legs. That progressed to tingling sensation in my arms,back and legs. I was scheduled for a colonoscopy but cancelled because I had no insurance. The fact that I had 3 pain free days in a row led me to believe it was a food problem. I stopped drinking lactaid milk,stopped eating lactose free ice cream, and got slightly better,but was still sick. I purchased several cans of Ensure, and after drinking lactose free Ensure got sicker.That tipped me off.

Did you know that several name brand lactase pills have wheat in them?

I learned of EnteroLab from this website, and since Celiac is an intestinal problem,the logical place to test would be a stool test. I had the tests done, and 3 weeks later my suspicions were confirmed......Celiac,gluten,and casein(cows milk) tests were positive.

Be sure to get the figures from your test and post them here. Now I'm wondering if my blood tests were mis-read. It will cost me $28 for my medical records, so for now I will skip asking for the results.

I'm now gluten,lactose and dairy free. It's tough, but there are many people who have more food problems than me, so I feel fortunate. The diet is very expensive, and I'm fortunate to be able to afford the ingredients and have the time to cook....I'm retired. My mom is 94 and is in assisted living....the residents there with special food needs are ignored and are being served the same food as everyone else. Several residents have been hospitalized because they have been served food they are allergic to.There should be a law against this. I wonder how my special food needs are going to be met when I am older. I just had to turn down a 15 day Hawaiian cruise because my food needs cannot be met. I told my husband we need to win the lottery so we can purchase our own ship......and everyone on this forum will be invited to join us :D

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      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
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