Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Anyone Translate This Medical Garble?

i-miss-cookie-dough

Recommended Posts

i-miss-cookie-dough Contributor
i-miss-cookie-dough
Posted

heya ...

so i got my test results a few weeks ago.

i have the "sprue."

that's about all my dr said.

thatt, and to not eat gluten anymore : )

so i had my biopsy results faxed

to me, so i could read over them -

"2nd duodenum shows marked attenuation and focal atrophy of the villous processes with moderate expansion of the lamina propria by lumphocytes and plasma cells as well as permeation of the crypt and surface epithelia by lymphocytes that is consistant with sprue."

does ANYONE

know what any of that means?

other than

i can't eat

bread any more?

:o

thanks!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


buffettbride Enthusiast
buffettbride
Posted

Short Version: There is damage to your intestine (the villi in the duodenum) and that damage is consistent with individuals with Celiac Disease.

zarfkitty Explorer
zarfkitty
Posted

It translates to:

Your immune cells (lymphocytes) are tearing up the tiny "fingers" in your intestine called villi. You need your villi to be able to absorb nutrients from your food.

Gluten is the protein that your lymphocytes are trying to get rid of. They will attack your own body tissues to get rid of the gluten.

Please let us know if there is anything we can do to help you as you transition to your new diet! Welcome!

i-miss-cookie-dough Contributor
i-miss-cookie-dough
Posted
  • Author

thanks so mucho for the replies!

i think i get it now.

going on 2.5 weeks of

no gluten and

not feeling any better.

still nauseas.

still tired.

and now i just have this

constant neck ache

and ache at the base of the skull?

i mean..really!

could be my pillow : )

now, how vigilant do i need to be about gluten?

i have read some things that say

to get new wooden spoons

b/c gluten could be lurking?

and i went to a bday thing

on saturday and there

was an ice cream pie

and i know i could eat the

ice cream but it had a cookie

crust and cookie crumbles on top.

from what ihave read,

i CANT just brush the crumbles

off and dig into the ice cream?

(i didn't)

b/c the ice cream is probably contaminated?

and i can't just take the

bread off of a sandwich?

b/c the meat is already contaminated?

REALLY?

that vigilant??

or am i reading too much?

can i relax a bit? :huh:

buffettbride Enthusiast
buffettbride
Posted

sadly, you can't relax at all. crumbs can't even touch your food or you will likely get sick.

if you still are not feeling well, you might consider laying off dairy for a while and making sure none of the products you use that could come in contact with your mouth (shampoo, conditioner, lotion, lipstick, makeup, etc) do not have gluten either.

loco-ladi Contributor
loco-ladi
Posted

My best advice..........

It pays to be paranoid!

teflon pans that are scratched....... replace them

Cast Iron...... cry when you replace them

wooden spoons...... replace them

wooden bowls..... replace them

stainless steel/cooper cookware boil them

toaster........ replace it

cutting boards vary.... see pourous and non pourous instructions below

oil fryer, replace oil and scrub scrub scrub (unless its scratched then replace it)

anything that had gluten that is a solid surface clean repeatedly

anything with a porous surface replace it

gluten sticks to everything! you cant see it but its there, scrub counter tops, stove, cupboards!

storage containers that used to hold gluten containing stuff, pasta, flour etc...... make sure they are thoughly cleaned multiple times, it wont come out in the first scrubbing

Think of gluten as a nasty cold virus.... you need to get rid of every last germ or it could potentially make you ill! With gluten you need to get rid of all possible places it could be hiding or when you are eating your gluten-free food you could inadvertantly cc yourself and have no idea how!

I dont know if you also cut out dairy when you started but it is generally a good idea as the villi are damaged and unable to process it at first, go dairy free for about 3-6 months then slowly add it back in, if you still have a reaction cut it back out again, try again in another few months.

i-miss-cookie-dough Contributor
i-miss-cookie-dough
Posted
  • Author

oh gosh...really?

see, my dr never went over

any of that stuff with me.

just told me to not eat gluten.

didn't go over the extent

or the dangers

or replacing stuff.

i mean i dont throw up

or have any "bathroom"

issues when i do eat gluten.

so i cant tell if anything is gluten-ing me.

i guess i just get

random stomach aches

and then i have my

constant nausea

and fatigue

that are still in full force.

but i hear it takes time...

just a bit overwhelming.

thought that reading the labels

was enough, you know?

but i guess every little bit

can cause more damage?

and i guess i never know what little bit

will be the bit that causes something really bad.

i guess thats how i should think of it.

eh?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted
and i guess i never know what little bit

will be the bit that causes something really bad.

i guess thats how i should think of it.

eh?

Actually, yeah, I used to have like one day of issues when I got glutened, now it takes me a month to recover. The best thing is to go cold turkey no cheating, because the longer you go gluten-free, typically, the worse the symptoms are when you DO get glutened.

i-miss-cookie-dough Contributor
i-miss-cookie-dough
Posted
  • Author

interesting.

why would it take longer to

get over it now?

b/c your body isn't used to it?

Canadian Karen Community Regular
Canadian Karen
Posted
interesting.

why would it take longer to

get over it now?

b/c your body isn't used to it?

That's exactly it. When you are poisoning your body every single day with gluten, your body builds up a tolerance to be able to cope, but damage is still being done inside. When you finally remove the gluten (poison) your body breathes a sigh of relief and starts working on ridding all the crappy toxins out of your system. Once your system is clear, your body gets used to living without the crap you used to feed it. Then, if you give it some, all hell breaks loose! Once you rid yourself of gluten, you become much more sensitive to it. So tomorrow, if you get glutened, no big deal, your body is still in the old mode. Six months from now, you get glutened, it will hit you like a Mack truck.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

You may or may not have symptoms that get worse. Mine are actually less obvious, I had a seizure and mild diarrhea but nothing like it was before where I hurt for days and it took a long time to clear up the vomiting and diarrhea. It had been almost two years since my last time I had been glutened. My daughter is really bad now. Before she had no symptoms (we just went gluten free because she had the genes and no malabsorption yet) Now if she has it she gets a horrible rash, nausea, her stomach hurts, and she has diarrhea.

Yes you have to be extremely vigilant, just the side of paranoia. Even if we bring our own food I have to bring a microwave cover for our bowls and our own silverware and glasses. My daughter has been glutened from a microwave at my inlaws without the cover. I have found its much easier to bring a lunch container that can keep our food warm.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748
    Lizzy W
    Newest Member
    Lizzy W
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jane878
      My mo,ther married a bread making when I was 4

      By Jane878 · Posted

      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Sheila mellors
      Is Toblerone Gluten-Free?

      By Sheila mellors · Posted

      I asked about the new fruit and nut one and the Dietician said yes I could eat it safely. Hooe this helps
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
×
×
  • Create New...