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Ignorant Relative.....

LoveBeingATwin

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LoveBeingATwin Enthusiast
LoveBeingATwin
Posted

Hi Everyone!

I haven't checked in for a while but new right where to go to get advise. Last night my ignorant cousin said something to me and I almost fell out of my chair. We were all having dinner...brought my own noodles so I too could enjoy the spahetti dinner. We were eating and she said to me " I cant wait to get sick like you so I can lose weight". I was almost dumb founded at first. I told her first of all I am not "sick" , secondly I have an autoimmune disorder wich obviously like everyone knows a modification in your diet is the only way to go and thirdly, I have never eaten so healthy since being diagnosed that I feel really good and I actually am starting to lose weight from all of the bloating, malabsoption, etc.

She was like "oh". I said you to could lose weight if you wanted to. First you would obviously need to change your diet. I told her I get to treat myself also, but I don't eat near as much junk and I use to. I just thought it was kind of rude, hence the lack of knowledge she has, that she would say I was sick. I have known people that have been sick, my friend with breast cancer, and I told her she should never wish upon herself or anyone for that matter for a sickness, just to lose weight. Let me tell you I piped right up after her comment to inform her of what is "really" wrong with me. I was not rude, yet I new I had to stick up for myself. At the end she was like, "ya, I guess that didn't sound right". I told her she needed to look up Celiac Disease so she new what was going on with me.

Just thought I would share with all of you because I know it has happened to you. Take care.

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gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

I get that from my husband! Gain a few pounds, just eat a pizza and there goes the weight. Nice huh!

Family sucks sometimes! Eventually they wake up.

Glad to hear you explained life and included the little -stop eating the junk food and eat healthier and you too can drop some pounds. Perfect!

kbtoyssni Contributor
kbtoyssni
Posted

Nice job explaining why she doesn't want to be sick like you. I think people don't realize that this more than "oh, I got the flu and couldn't eat for three days and lost five pounds." It might be because most people didn't see how sick we were for so long. I used to stay in when I was very sick and tried to put on a happy face when I was just a little sick. The trade-off for losing weight by eating gluten is cancer, depression, brain fog, Alzheimer's, etc. That's not worth the weight lost, imo.

melmak5 Contributor
melmak5
Posted

I second the "you did a great job responding/explaining"

I think it is really telling about our society (I am making a broad-sweeping generalization here) that "thin" is so valuable that sickness and thin is preferable to healthy and fat. (even if there is a misunderstanding about the illness)

I cannot tell you how many people have come up to me and said "you don't LOOK sick" or complimented me on loosing weight or said "well, at least you are loosing weight, you cannot be mad at that"

I was not as classy as you and would respond with an extended fist: "why yes, it is FANTASTIC having to go to the bathroom, with urgency, 5-8x a day, I just LOVE this weight loss plan of eat and it feels like someone is punching me in the gut. Want to try?"

bakingbarb Enthusiast
bakingbarb
Posted

Very intresting how people respond. I think some people just don't get it. Wonder what else they just don't get. Actully my other half forgets all the time. I am not hurt by it, he is so good to me and I know he doesn't do to be mean. I mentioned that last night to him and his buddy says "you don't know men very well do you." He said they forget stuff literaly all the the time.

My ex husbands mother stayed with us once and I took her to get her hair cut. The girl doing the hair cut says something like, she has a terrible hair cut what do you expect me to do with this. She had been just able to grow her hair to barely neck lenght after cancer treatment. :angry: People choose to be ignorant but men I just don't know about them! LOL

Centa Newbie
Centa
Posted
I told her first of all I am not "sick" , secondly I have an autoimmune disorder wich obviously like everyone knows a modification in your diet is the only way to go and thirdly, I have never eaten so healthy

This is a hotbutton item for me, too. I've been called "disabled", too, and had my stories of recuperation waved away...creepy: they refused to acknowledge my return to wellbeing. What, they preferred me sickly?? Don't like that attitude....

That hairdresser was pretty insensitive, bakingbarb...

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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