Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ignorant Relative.....


LoveBeingATwin

Recommended Posts

LoveBeingATwin Enthusiast

Hi Everyone!

I haven't checked in for a while but new right where to go to get advise. Last night my ignorant cousin said something to me and I almost fell out of my chair. We were all having dinner...brought my own noodles so I too could enjoy the spahetti dinner. We were eating and she said to me " I cant wait to get sick like you so I can lose weight". I was almost dumb founded at first. I told her first of all I am not "sick" , secondly I have an autoimmune disorder wich obviously like everyone knows a modification in your diet is the only way to go and thirdly, I have never eaten so healthy since being diagnosed that I feel really good and I actually am starting to lose weight from all of the bloating, malabsoption, etc.

She was like "oh". I said you to could lose weight if you wanted to. First you would obviously need to change your diet. I told her I get to treat myself also, but I don't eat near as much junk and I use to. I just thought it was kind of rude, hence the lack of knowledge she has, that she would say I was sick. I have known people that have been sick, my friend with breast cancer, and I told her she should never wish upon herself or anyone for that matter for a sickness, just to lose weight. Let me tell you I piped right up after her comment to inform her of what is "really" wrong with me. I was not rude, yet I new I had to stick up for myself. At the end she was like, "ya, I guess that didn't sound right". I told her she needed to look up Celiac Disease so she new what was going on with me.

Just thought I would share with all of you because I know it has happened to you. Take care.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfgypsyqueen Enthusiast

I get that from my husband! Gain a few pounds, just eat a pizza and there goes the weight. Nice huh!

Family sucks sometimes! Eventually they wake up.

Glad to hear you explained life and included the little -stop eating the junk food and eat healthier and you too can drop some pounds. Perfect!

kbtoyssni Contributor

Nice job explaining why she doesn't want to be sick like you. I think people don't realize that this more than "oh, I got the flu and couldn't eat for three days and lost five pounds." It might be because most people didn't see how sick we were for so long. I used to stay in when I was very sick and tried to put on a happy face when I was just a little sick. The trade-off for losing weight by eating gluten is cancer, depression, brain fog, Alzheimer's, etc. That's not worth the weight lost, imo.

melmak5 Contributor

I second the "you did a great job responding/explaining"

I think it is really telling about our society (I am making a broad-sweeping generalization here) that "thin" is so valuable that sickness and thin is preferable to healthy and fat. (even if there is a misunderstanding about the illness)

I cannot tell you how many people have come up to me and said "you don't LOOK sick" or complimented me on loosing weight or said "well, at least you are loosing weight, you cannot be mad at that"

I was not as classy as you and would respond with an extended fist: "why yes, it is FANTASTIC having to go to the bathroom, with urgency, 5-8x a day, I just LOVE this weight loss plan of eat and it feels like someone is punching me in the gut. Want to try?"

bakingbarb Enthusiast

Very intresting how people respond. I think some people just don't get it. Wonder what else they just don't get. Actully my other half forgets all the time. I am not hurt by it, he is so good to me and I know he doesn't do to be mean. I mentioned that last night to him and his buddy says "you don't know men very well do you." He said they forget stuff literaly all the the time.

My ex husbands mother stayed with us once and I took her to get her hair cut. The girl doing the hair cut says something like, she has a terrible hair cut what do you expect me to do with this. She had been just able to grow her hair to barely neck lenght after cancer treatment. :angry: People choose to be ignorant but men I just don't know about them! LOL

Centa Newbie
I told her first of all I am not "sick" , secondly I have an autoimmune disorder wich obviously like everyone knows a modification in your diet is the only way to go and thirdly, I have never eaten so healthy

This is a hotbutton item for me, too. I've been called "disabled", too, and had my stories of recuperation waved away...creepy: they refused to acknowledge my return to wellbeing. What, they preferred me sickly?? Don't like that attitude....

That hairdresser was pretty insensitive, bakingbarb...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    2. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    3. - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    4. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      EMA Result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,165
    • Most Online (within 30 mins)
      7,748

    AmynDevyn
    Newest Member
    AmynDevyn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
    • Seabeemee
      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.