Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Doctor's Daughter Has celiac disease

sparkles

By sparkles
in Coping with Celiac Disease

Recommended Posts

sparkles Contributor
sparkles
Posted

I went to the doc the other day and as soon as my doc came in the room, she informed me that her daughter had been diagnosed with celiac disease. I said that is too bad and my doc' response was basically, "It really isn't a big deal. I gave up bread and pasta a long time ago." ..... so all her daughter has to do is the same thing. I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees. It will be interesting to see how the daughter fares giving up JUST bread and pasta! I am tired of the ignorance out there.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debmidge Rising Star
debmidge
Posted

How old is her daughter? When my husband first was diagnosed 4 years ago we stupidly thought that it was just bread and pasta too; then we thought that well, he could cheat now and then; then a few days into the diet we learned much more about the diet thru the internet and the Celiac Sprue Association (CSA).

As an aside, the CSA has a special packet that they send to doctors....perhaps your doctor would welcome one?

EBsMom Apprentice
EBsMom
Posted
I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees.

My b-i-l was just diagnosed (my in-laws are treating it as a "coincidence", as admitting anything more would mean they'd have to look in a mirror!) I had a phone conversation with him, and he said pretty much the same thing as your Dr. All he thinks he has to give up is beer, bread and pasta - and he thinks it's okay if he cheats from time to time ("It only makes me feel bad for a day or two.") I tried to enlighten him, but it was going to end up as an argument, so I dropped it. Maybe I'll buy him Peter Green's book for Xmas.....

Rho

Gemini Experienced
Gemini
Posted
I went to the doc the other day and as soon as my doc came in the room, she informed me that her daughter had been diagnosed with celiac disease. I said that is too bad and my doc' response was basically, "It really isn't a big deal. I gave up bread and pasta a long time ago." ..... so all her daughter has to do is the same thing. I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees. It will be interesting to see how the daughter fares giving up JUST bread and pasta! I am tired of the ignorance out there.

I know I was not the one that heard what this doctor said in detail but maybe she just didn't go into detail about the diet as a whole and some of the lifestyle changes that have to occur because of time constraints? Her overall attitude about not making a big deal about this is basically a good one and perhaps her intention is to make sure her daughter deals with change in a positive way. Unless you never cook and go out to eat for every meal, this change is do-able, over time, and it doesn't have to be traumatic.

When smokers have to quit or drinkers have to stop drinking, there is absolutely no substitute for either. They have to learn to live totally without. It's not the same for Celiacs. In the past 10 years or so, there has been an explosion of products to make our lives much easier and enables us to make just about everything you may miss from the old days. It is more than just giving up bread and pasta but even those 2 things you do not have to give up....just buy different brands or make your own from the many types of gluten-free flours. Sure, there is some work in the beginning and a learning curve but once that has been conquered, it really is no big deal. For those that think they can cheat, well....they'll soon find out they cannot or be sick forever.

kbtoyssni Contributor
kbtoyssni
Posted

My first thought was "well, that's a good attitude to have. it really is no big deal". If you have a positive attitude and a good support system I don't think it is too difficult once you learn the diet. If your doctor meant that she ONLY had to give up bread and pasta, then maybe we've got someone who hasn't looked into what gluten is actually in or read about CC. Hard to tell, but hopefully it's the former and your doctor's daughter won't be going gluten-lite and still be sick for years.

FootballFanatic Contributor
FootballFanatic
Posted

I made an appointment with a dietitian and it was going to be a month away, so she told me "just stick with food staples like chicken and fish, but make sure it's not breaded!"

Great advice, since breaded chicken is the only source of gluten......

I cancelled my appointment with her....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.