Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Doctor's Daughter Has celiac disease

sparkles

By sparkles
in Coping with Celiac Disease

Recommended Posts

sparkles Contributor
sparkles
Posted

I went to the doc the other day and as soon as my doc came in the room, she informed me that her daughter had been diagnosed with celiac disease. I said that is too bad and my doc' response was basically, "It really isn't a big deal. I gave up bread and pasta a long time ago." ..... so all her daughter has to do is the same thing. I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees. It will be interesting to see how the daughter fares giving up JUST bread and pasta! I am tired of the ignorance out there.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debmidge Rising Star
debmidge
Posted

How old is her daughter? When my husband first was diagnosed 4 years ago we stupidly thought that it was just bread and pasta too; then we thought that well, he could cheat now and then; then a few days into the diet we learned much more about the diet thru the internet and the Celiac Sprue Association (CSA).

As an aside, the CSA has a special packet that they send to doctors....perhaps your doctor would welcome one?

EBsMom Apprentice
EBsMom
Posted
I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees.

My b-i-l was just diagnosed (my in-laws are treating it as a "coincidence", as admitting anything more would mean they'd have to look in a mirror!) I had a phone conversation with him, and he said pretty much the same thing as your Dr. All he thinks he has to give up is beer, bread and pasta - and he thinks it's okay if he cheats from time to time ("It only makes me feel bad for a day or two.") I tried to enlighten him, but it was going to end up as an argument, so I dropped it. Maybe I'll buy him Peter Green's book for Xmas.....

Rho

Gemini Experienced
Gemini
Posted
I went to the doc the other day and as soon as my doc came in the room, she informed me that her daughter had been diagnosed with celiac disease. I said that is too bad and my doc' response was basically, "It really isn't a big deal. I gave up bread and pasta a long time ago." ..... so all her daughter has to do is the same thing. I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees. It will be interesting to see how the daughter fares giving up JUST bread and pasta! I am tired of the ignorance out there.

I know I was not the one that heard what this doctor said in detail but maybe she just didn't go into detail about the diet as a whole and some of the lifestyle changes that have to occur because of time constraints? Her overall attitude about not making a big deal about this is basically a good one and perhaps her intention is to make sure her daughter deals with change in a positive way. Unless you never cook and go out to eat for every meal, this change is do-able, over time, and it doesn't have to be traumatic.

When smokers have to quit or drinkers have to stop drinking, there is absolutely no substitute for either. They have to learn to live totally without. It's not the same for Celiacs. In the past 10 years or so, there has been an explosion of products to make our lives much easier and enables us to make just about everything you may miss from the old days. It is more than just giving up bread and pasta but even those 2 things you do not have to give up....just buy different brands or make your own from the many types of gluten-free flours. Sure, there is some work in the beginning and a learning curve but once that has been conquered, it really is no big deal. For those that think they can cheat, well....they'll soon find out they cannot or be sick forever.

kbtoyssni Contributor
kbtoyssni
Posted

My first thought was "well, that's a good attitude to have. it really is no big deal". If you have a positive attitude and a good support system I don't think it is too difficult once you learn the diet. If your doctor meant that she ONLY had to give up bread and pasta, then maybe we've got someone who hasn't looked into what gluten is actually in or read about CC. Hard to tell, but hopefully it's the former and your doctor's daughter won't be going gluten-lite and still be sick for years.

FootballFanatic Contributor
FootballFanatic
Posted

I made an appointment with a dietitian and it was going to be a month away, so she told me "just stick with food staples like chicken and fish, but make sure it's not breaded!"

Great advice, since breaded chicken is the only source of gluten......

I cancelled my appointment with her....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,698
    • Most Online (within 30 mins)
      7,748
    Nicole Poirier
    Newest Member
    Nicole Poirier
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.