Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Doctor's Daughter Has celiac disease

sparkles

By sparkles
in Coping with Celiac Disease

Recommended Posts

sparkles Contributor
sparkles
Posted

I went to the doc the other day and as soon as my doc came in the room, she informed me that her daughter had been diagnosed with celiac disease. I said that is too bad and my doc' response was basically, "It really isn't a big deal. I gave up bread and pasta a long time ago." ..... so all her daughter has to do is the same thing. I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees. It will be interesting to see how the daughter fares giving up JUST bread and pasta! I am tired of the ignorance out there.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debmidge Rising Star
debmidge
Posted

How old is her daughter? When my husband first was diagnosed 4 years ago we stupidly thought that it was just bread and pasta too; then we thought that well, he could cheat now and then; then a few days into the diet we learned much more about the diet thru the internet and the Celiac Sprue Association (CSA).

As an aside, the CSA has a special packet that they send to doctors....perhaps your doctor would welcome one?

EBsMom Apprentice
EBsMom
Posted
I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees.

My b-i-l was just diagnosed (my in-laws are treating it as a "coincidence", as admitting anything more would mean they'd have to look in a mirror!) I had a phone conversation with him, and he said pretty much the same thing as your Dr. All he thinks he has to give up is beer, bread and pasta - and he thinks it's okay if he cheats from time to time ("It only makes me feel bad for a day or two.") I tried to enlighten him, but it was going to end up as an argument, so I dropped it. Maybe I'll buy him Peter Green's book for Xmas.....

Rho

Gemini Experienced
Gemini
Posted
I went to the doc the other day and as soon as my doc came in the room, she informed me that her daughter had been diagnosed with celiac disease. I said that is too bad and my doc' response was basically, "It really isn't a big deal. I gave up bread and pasta a long time ago." ..... so all her daughter has to do is the same thing. I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees. It will be interesting to see how the daughter fares giving up JUST bread and pasta! I am tired of the ignorance out there.

I know I was not the one that heard what this doctor said in detail but maybe she just didn't go into detail about the diet as a whole and some of the lifestyle changes that have to occur because of time constraints? Her overall attitude about not making a big deal about this is basically a good one and perhaps her intention is to make sure her daughter deals with change in a positive way. Unless you never cook and go out to eat for every meal, this change is do-able, over time, and it doesn't have to be traumatic.

When smokers have to quit or drinkers have to stop drinking, there is absolutely no substitute for either. They have to learn to live totally without. It's not the same for Celiacs. In the past 10 years or so, there has been an explosion of products to make our lives much easier and enables us to make just about everything you may miss from the old days. It is more than just giving up bread and pasta but even those 2 things you do not have to give up....just buy different brands or make your own from the many types of gluten-free flours. Sure, there is some work in the beginning and a learning curve but once that has been conquered, it really is no big deal. For those that think they can cheat, well....they'll soon find out they cannot or be sick forever.

kbtoyssni Contributor
kbtoyssni
Posted

My first thought was "well, that's a good attitude to have. it really is no big deal". If you have a positive attitude and a good support system I don't think it is too difficult once you learn the diet. If your doctor meant that she ONLY had to give up bread and pasta, then maybe we've got someone who hasn't looked into what gluten is actually in or read about CC. Hard to tell, but hopefully it's the former and your doctor's daughter won't be going gluten-lite and still be sick for years.

FootballFanatic Contributor
FootballFanatic
Posted

I made an appointment with a dietitian and it was going to be a month away, so she told me "just stick with food staples like chicken and fish, but make sure it's not breaded!"

Great advice, since breaded chicken is the only source of gluten......

I cancelled my appointment with her....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,998
    • Most Online (within 30 mins)
      7,748
    Wendy Jo
    Newest Member
    Wendy Jo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Chances of being coeliac

      By trents · Posted

      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      Chances of being coeliac

      By trents · Posted

      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.