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My Doctor's Daughter Has celiac disease

sparkles

By sparkles
in Coping with Celiac Disease

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sparkles Contributor
sparkles
Posted

I went to the doc the other day and as soon as my doc came in the room, she informed me that her daughter had been diagnosed with celiac disease. I said that is too bad and my doc' response was basically, "It really isn't a big deal. I gave up bread and pasta a long time ago." ..... so all her daughter has to do is the same thing. I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees. It will be interesting to see how the daughter fares giving up JUST bread and pasta! I am tired of the ignorance out there.

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debmidge Rising Star
debmidge
Posted

How old is her daughter? When my husband first was diagnosed 4 years ago we stupidly thought that it was just bread and pasta too; then we thought that well, he could cheat now and then; then a few days into the diet we learned much more about the diet thru the internet and the Celiac Sprue Association (CSA).

As an aside, the CSA has a special packet that they send to doctors....perhaps your doctor would welcome one?

EBsMom Apprentice
EBsMom
Posted
I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees.

My b-i-l was just diagnosed (my in-laws are treating it as a "coincidence", as admitting anything more would mean they'd have to look in a mirror!) I had a phone conversation with him, and he said pretty much the same thing as your Dr. All he thinks he has to give up is beer, bread and pasta - and he thinks it's okay if he cheats from time to time ("It only makes me feel bad for a day or two.") I tried to enlighten him, but it was going to end up as an argument, so I dropped it. Maybe I'll buy him Peter Green's book for Xmas.....

Rho

Gemini Experienced
Gemini
Posted
I went to the doc the other day and as soon as my doc came in the room, she informed me that her daughter had been diagnosed with celiac disease. I said that is too bad and my doc' response was basically, "It really isn't a big deal. I gave up bread and pasta a long time ago." ..... so all her daughter has to do is the same thing. I wasn't up to an argument with her but I thought...."Wait and SEE. It is a whole lot more than just giving up pasta and bread!" Here is an educated person in the medical field who can't see the forest through the trees. It will be interesting to see how the daughter fares giving up JUST bread and pasta! I am tired of the ignorance out there.

I know I was not the one that heard what this doctor said in detail but maybe she just didn't go into detail about the diet as a whole and some of the lifestyle changes that have to occur because of time constraints? Her overall attitude about not making a big deal about this is basically a good one and perhaps her intention is to make sure her daughter deals with change in a positive way. Unless you never cook and go out to eat for every meal, this change is do-able, over time, and it doesn't have to be traumatic.

When smokers have to quit or drinkers have to stop drinking, there is absolutely no substitute for either. They have to learn to live totally without. It's not the same for Celiacs. In the past 10 years or so, there has been an explosion of products to make our lives much easier and enables us to make just about everything you may miss from the old days. It is more than just giving up bread and pasta but even those 2 things you do not have to give up....just buy different brands or make your own from the many types of gluten-free flours. Sure, there is some work in the beginning and a learning curve but once that has been conquered, it really is no big deal. For those that think they can cheat, well....they'll soon find out they cannot or be sick forever.

kbtoyssni Contributor
kbtoyssni
Posted

My first thought was "well, that's a good attitude to have. it really is no big deal". If you have a positive attitude and a good support system I don't think it is too difficult once you learn the diet. If your doctor meant that she ONLY had to give up bread and pasta, then maybe we've got someone who hasn't looked into what gluten is actually in or read about CC. Hard to tell, but hopefully it's the former and your doctor's daughter won't be going gluten-lite and still be sick for years.

FootballFanatic Contributor
FootballFanatic
Posted

I made an appointment with a dietitian and it was going to be a month away, so she told me "just stick with food staples like chicken and fish, but make sure it's not breaded!"

Great advice, since breaded chicken is the only source of gluten......

I cancelled my appointment with her....

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      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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