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How Long Before You See Results From gluten-free Diet?


Kara'sMom

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Kara'sMom Explorer

My 9 yr old DD went from 60lbs to a steady 54 and hasnt' gained weight in months. This was the only sign of something wrong. She pretty much stopped eating a few months ago b/c she said she always felt like she was going to throw up..which she never did. She was diagnosed with acid reflux late August. She's been on Prilosec since then and when I took her back a month and a half later to her Dr...and she STILL hadnt' gained any weight...her Dr. said...time to take action...she's still 54lbs. So with a positive blood test and waiting for biopsy results...shes been gluten-free for two days.

I was wondering when you saw results in your child of feeling better and gaining weight? So far on the gluten-free diet...Kara is hungry constantly! And with the prices of the food....GEESH....I gotta win the lottery just to buy snack bars!!!!!!!!!!!

Thanks!

Mary


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wowzer Community Regular

Hi, I think if your daughter is hungry all of the time, that is a good sign. That was one of the things that I noticed when I first went gluten free. I was feeling pretty good after about 2 weeks. Everyone is different. I noticed some improvements in the first couple of days. Since it is a different way of eating, I sometimes don't know what to eat. It sounds like she is on the mend, so I'm sure she will begin to gain her weight back. Good Luck

jamibrit Newbie

My 3 yo son lost 4 pounds- went from 29 to 25 lbs and gained them back after being gluten free for 2 weeks. He too is hungry all the time it seems. This is all very new to me so I don't know for sure if its a good sign but it seems to be.

Kara'sMom Explorer

I am so new to this, too. Today is Kara's 3rd day gluten-free. Her first school day. She woke up not wanting to go to school...then when I had to read the lunch menu to my 6 yr old...she bursts out crying. Oh how I wanted to cry with her. I packed her a good lunch...but let's face it...it's not the pizza they're having today at school. My stomach is in knots thinking about her and what she's going through.

Do any of you give your kids Trix yogurt? I'm nervous about everything when it doesn't flat out say GLUTEN FREE.

Thanks.

jamibrit Newbie

I bought the shopping guide advertised on here and it says trix yogurt is fine (all the yoplait kids yogurts are ok). I also read on here that trix cereal is ok too, so I bought a box of it for my son to have at school when the kids are eating sugary snacks on someones birthday. Going to the grocery store is a daunting task these days, but the guide is actually very helpful.

shan Contributor

sorry to say this, but my daughter had a reaction both to the trix and to pebbles cereals :(

jamibrit Newbie

oh no! ugh this is so frustrating.


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gfpaperdoll Rookie

Kara's mom, I made this for my grandkids when they were gluten-free (long story, my son's fault they are not now gluten-free)

Take a white corn tortilla & butter one side put a slice of cheese on the other side, top with another corn tortilla, toast both sides in a skillet, just takes a bit, put precooked pizza toppings on top of the tortilla, bake in oven till heated thru, cut into wedges, wrap in foil, put in lunch... or let them have it for breakfast...

ShayBraMom Apprentice

I know the food is carzy expensive! but go here, that is her on CVeliac.com- they have a Shoppingguide about more then 20.000 products off the shelf in our supermakrets, that are naturally glutenfree or point them out with out us having to read uip on it. This should help cut your costs down, I'll buy me one too! https://www.celiac.com/catalog/product_info...products_id=802

good luck!!!!

My 9 yr old DD went from 60lbs to a steady 54 and hasnt' gained weight in months. This was the only sign of something wrong. She pretty much stopped eating a few months ago b/c she said she always felt like she was going to throw up..which she never did. She was diagnosed with acid reflux late August. She's been on Prilosec since then and when I took her back a month and a half later to her Dr...and she STILL hadnt' gained any weight...her Dr. said...time to take action...she's still 54lbs. So with a positive blood test and waiting for biopsy results...shes been gluten-free for two days.

I was wondering when you saw results in your child of feeling better and gaining weight? So far on the gluten-free diet...Kara is hungry constantly! And with the prices of the food....GEESH....I gotta win the lottery just to buy snack bars!!!!!!!!!!!

Thanks!

Mary

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    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
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