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Went To The Doctor Today!


blondebombshell

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blondebombshell Collaborator

went to the gastroentenologist today and they scheduled me for a endoscopy. they told me to eat gluten for the next 3 weeks to make sure that my colon/bowel (if i have celiac disease) will be inflamed. so i went and ate mozzarella sticks, onion rings and french fries, lol. i just HAD to. my tummy has been rumbling, and i have been a bit gasy. i also feel bloated. think that it is in fact celiac or that my body just isn't use to eating these foods for a month. my calves also broke-out in some bumpy hives.

any advice before i go for this treatment? i am very nervous that it is going to hurt or i am going to be uncomfortable afterwards.

thanks again!


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Guest j_mommy

I binged before my biopsy too!!!LOL I knew I was going gluten-free after so I had some "last meals"!! Since you have to eat gluten eat somethings you want to!!!

The procedure wasn't bad at all for me! My throat was tender the next day but I had both a colonscopy and endo and they did the endo last so I was strating to "wake" up. They don't put you totally under but you don't feel anything. Make sure they do ALOT(5-10) biopsies.

Good Luck!

Lisa Mentor
went to the gastroentenologist today and they scheduled me for a endoscopy. they told me to eat gluten for the next 3 weeks to make sure that my colon/bowel (if i have celiac disease) will be inflamed. so i went and ate mozzarella sticks, onion rings and french fries, lol. i just HAD to. my tummy has been rumbling, and i have been a bit gasy. i also feel bloated. think that it is in fact celiac or that my body just isn't use to eating these foods for a month. my calves also broke-out in some bumpy hives.

any advice before i go for this treatment? i am very nervous that it is going to hurt or i am going to be uncomfortable afterwards.

thanks again!

If I ate mozzerella sticks, onion rings and french fries - I'd be sick even without Celiac. :blink:

It sounds like you will be uncomfortable eating gluten for three weeks. How long have you been off gluten? Three weeks a relatively little time to re-create an inflamed intestine.

The endoscopy exam is nothing to worry about, at least from my experience. They put you to sleep and then you wake up. Nothing to it. There was no pain.

blondebombshell Collaborator

i havent been eating gluten for about 1 month now.

my stomach as of now, about 8 hours after eating lunch, feels ok. i just feel bloated but my legs are all broken out with itchy red bumps! do you think thats an indicator that i have celiac?

ravenwoodglass Mentor
i havent been eating gluten for about 1 month now.

my stomach as of now, about 8 hours after eating lunch, feels ok. i just feel bloated but my legs are all broken out with itchy red bumps! do you think thats an indicator that i have celiac?

Yes those itchy little bumps are most likely a skin reaction. If your reaction gets very severe make sure you call that GI immediately. Especially if you get a GI bleed. My challenge caused a very severe reaction, yours may not, you may just live in misery for the next three weeks and a few after the test. The dietary challenge and a positive reaction after being gluten free is in some doctors books, the smart ones, diagnostic.

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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