Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh My Goodness...i Probably Have Celiac Too!


Kara'sMom

Recommended Posts

Kara'sMom Explorer

I just got back from my endoscope. This is what it says:

During the procedure we found the following:

Scalloping in the third part of the duodenum compatiable with celiac sprue (they took a biopsy)

and I won't write the rest but OH MY GOODNESS. I had a negative blood test but he said that basically didn't matter.

Has anyone here had a neg blood test but a postive biopsy??? I am freaking out here. My DD has handled it wayyyyyyy better than I could.

Mary


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Joni63 Collaborator
I just got back from my endoscope. This is what it says:

During the procedure we found the following:

Scalloping in the third part of the duodenum compatiable with celiac sprue (they took a biopsy)

and I won't write the rest but OH MY GOODNESS. I had a negative blood test but he said that basically didn't matter.

Has anyone here had a neg blood test but a postive biopsy??? I am freaking out here. My DD has handled it wayyyyyyy better than I could.

Mary

Wow. I can see where you would be surprised. Did you have any symptoms prior to testing or just get tested because your DD has it?

I have heard there is a high rate of false negatives with the blood test results.

I'm sure you will be fine. You just need time to let it sink in. At least your already past the hardest part with knowing more about gluten than most people do when first getting diagnosed. Not that I'm trying to make light of it, it's not an easy diet at all and it takes time to get used to eating and cooking differently. But after a few months it will be a lot easier. And I'm sure you will find that some symptoms you wouldn't even suspect will go away due to not eating gluten. I've had so many positive things come out of getting rid of gluten from my diet. Feeling better is well worth the small sacrifice of not eating some foods. Hang in there!

Ridgewalker Contributor

Yeah, there are lots of people here who had negative blood test/positive biopsy.

Furthermore, if you study people's signatures, you will see that the real-world occurance of 1st degree relatives that have Celiac is MUCH higher than the "studies" that have shown a 10% occurance.

In other words, I think that is one more thing the medical community needs to catch up on. Celiac is much more common in families than what they say.

(((hugs)))

cyberprof Enthusiast

I had a positive biopsy and a negative blood test. I think it's very common.

Mary/Kara's mom, you can do this. Actually, as an adult it may be harder (or easier) than for kids. But at least you don't have to worry about the kids at the lunch table trying to get you to trade a sandwich or friends at the dorm trying to get you to eat pizza and beer! I think I have it much easier than my 14yo son.

~Laura

Kara'sMom Explorer
Wow. I can see where you would be surprised. Did you have any symptoms prior to testing or just get tested because your DD has it?

I have heard there is a high rate of false negatives with the blood test results.

I'm sure you will be fine. You just need time to let it sink in. At least your already past the hardest part with knowing more about gluten than most people do when first getting diagnosed. Not that I'm trying to make light of it, it's not an easy diet at all and it takes time to get used to eating and cooking differently. But after a few months it will be a lot easier. And I'm sure you will find that some symptoms you wouldn't even suspect will go away due to not eating gluten. I've had so many positive things come out of getting rid of gluten from my diet. Feeling better is well worth the small sacrifice of not eating some foods. Hang in there!

Hey..I have ZERO symptoms except for acid reflux which my entire family has and even that is mild. If I can make some good bread...I think I"ll be ok. I gotta have garlic bread with my spaghetti and I LOVE cookies and cakes..whereas DD could care less.

When I came home and told Kara that I probably have it..she's like...."it's me and you". :-)

I PRAY my son doesnt' have it as well. He has always been a MUCH better eater than Kara and would have a much harder time elminating sweets, etc....but I can't even think about that now.

I gotta go lay down for the night. I'm still tired from being knocked out and also from not eating since yesterday at 7pm. I just had a small bowl of soup b/c MAN my throat is sore and DRY.

I'll check back tomorrow. Thanks for the support. If ya'll hear a loud wail....it's me with the positive biopsy results. LOL

mary

dandelionmom Enthusiast

Since my daughter's official diagnosis, I consider myself self-diagnosed. It is actually a bit easier having two of us in the house: Julia has a built-in gluten-free buddy, I feel better than I ever have, and I can eat dairy again (I've had "IBS" and have been severely lactose intolerant and anemic for YEARS). We can vent to each other about missing garlic bread. I'm pretty sure I'm going to have to learn to bake just so I can have garlic bread again. :blink:

Offthegrid Explorer

I'm sure it's impossible to believe this now, but soon you won't even crave bread. In the beginning I was dying for it, or a good bagel, but now I don't even care. What I do enjoy is muffins (although haven't tried that since going soy-free) and yummy banana bread.

Breakfast was definitely the hardest meal for me. These days I usually eat fruit.

But to give you a glimpse of how much easier it gets, today I had to attend a business breakfast and watch everyone eat muffins, donuts and bagels. Didn't even bother me. I just had some orange juice and delicious grapes. yeah, sounds far-fetched to hear it now, but hang in there.

Also, gluten-free brown rice pasta is YUMMY! You won't even notice a difference. I'd avoid the corn pasta.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



EBsMom Apprentice

Oh, my. I know you must be shocked....freaked out....sad. At least you can be gluten-free with your dd. My dd's illness and subsequent diet change are what led first me, and then my ds, to figure out that we, also, can't do gluten. It's easier when you have company. Good luck to you!

Rhonda

cyberprof Enthusiast
I'm sure it's impossible to believe this now, but soon you won't even crave bread. In the beginning I was dying for it, or a good bagel, but now I don't even care. What I do enjoy is muffins (although haven't tried that since going soy-free) and yummy banana bread.

Breakfast was definitely the hardest meal for me. These days I usually eat fruit.

But to give you a glimpse of how much easier it gets, today I had to attend a business breakfast and watch everyone eat muffins, donuts and bagels. Didn't even bother me. I just had some orange juice and delicious grapes. yeah, sounds far-fetched to hear it now, but hang in there.

Same with me! I used to go to business breakfasts and be the one who went back for seconds of bagels, croissants, muffins. (Can you say "addicted"?) Now I go and get the best strawberries, grapes and melons. And go back for seconds of the fruit.

I also go to potlucks and watch other people eat and I'm not even tempted. But I do make muffins to have a quick breakfast (not every day- I freeze them and thaw as needed).

~Laura

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - thejayland10 replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      TTG IgA and IGA elevated mildy

    2. - trents replied to brian weinstein's topic in Coping with Celiac Disease
      3

      Cigars

    3. - brian weinstein replied to brian weinstein's topic in Coping with Celiac Disease
      3

      Cigars

    4. - trents replied to brian weinstein's topic in Coping with Celiac Disease
      3

      Cigars

    5. - brian weinstein posted a topic in Coping with Celiac Disease
      3

      Cigars


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,209
    • Most Online (within 30 mins)
      7,748

    Sara LePore
    Newest Member
    Sara LePore
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • thejayland10
      thank yo, i still eat a bit of dairy and a fair amount of processed foods. I wonder if I have sibo... I will look into that 
    • trents
      I think the best you will be able to do is to find out if gluten, or at least wheat, barley or rye is an intentional ingredient in a smoke product and only the manufacturer can answer that question. Since smokes are regulated by the AFT and not the FDA, allergens are not required to be declared in the labeling.
    • brian weinstein
      yes i understand that pectin is gluten free ty.  i want to know if any cigars are gluten free its a simple question
    • trents
      Welcome to the forum, @brian weinstein! Gluten is a protein found in wheat barley and rye kernels. Pectin is a polysaccharide (a very complex sugar) found in the cell walls of fruits and vegetables. It is most commonly used as a thickening agent in food products, particularly jellies. So, pectin is naturally gluten free. That is not to the same as saying the cigar is gluten free.  Personally, I am reluctant to text you. I think most of us would feel the same way. Too many people already have access to our cell phone numbers.
    • brian weinstein
      i have a question i called 3 cigar manufacturers alec bradley, olivia and camacho to ask if any of their cigars are gluten free?  camacho told me that their cigars are made with pectin does that mean they are gluten free?  does anyone know the correct answer please let me know text me at (347) 219-6325 ty 
×
×
  • Create New...