Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Was I Thinking?

wowzer

By wowzer
in Coping with Celiac Disease

Recommended Posts

wowzer Community Regular
wowzer
Posted

My dear son works at a pizza place. He comes home and plunks down at the computer. When he was done, I did clean the desk, mouse, keyboard, chair, etc. We were talking in the kitchen and I saw him lean his hand on my coffee cup. I got a new cup for my coffee. As I was sitting here later, I'm feeling glutened. I looked and somehow I was back to the cup that I was trying to avoid. I can't believe I did that. I suppose we all learn from our miseries. Grrrrr

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted

Grr....

annoying as it is this sort of accident will always happen. Its annoying but its just life and no point blaming yourself. You identified the risk so that's a big plus...

darlindeb25 Collaborator
darlindeb25
Posted

Now, after the whole xanax incindent and my knowing now, that I do have a completely different reaction to being glutened now than the reaction I used to have, I actually wonder if I havent been glutened at work and never even knew I was. My xanax glutenings always give me this nervousness the next day, this on edge feeling, a teariness, and the over all achiness--but being achy is so normal for a person with neuropathy, that it's hard to separate the 2. Yet the people at work are always having bagels, cookies, donuts, cakes, you name it and they eat over my invoices, patients bring in donuts for us and they will get sat on our appointment book which I have to use too and I can't get it through their heads that they can have these things, but they have to stay clear of certain areas. They shouldn't sit boxes of donuts on the appointment book anyways and they do not need to eat over the invoices. Finally, I have it understood that NO ONE will eat at my desk.

After Halloween, they brought in left over candy and PAt asked me if I could have a piece and she was reading the ingredients. She read soy lecithin and wouldn't let me have it, stating, "I don't want you to get sick because of me!" Finally, she is paying attention and I figured I didn't need the candy enough to explain that lecithin is safe. The battle isn't over, but I am gaining.

bakingbarb Enthusiast
bakingbarb
Posted
My dear son works at a pizza place. He comes home and plunks down at the computer. When he was done, I did clean the desk, mouse, keyboard, chair, etc. We were talking in the kitchen and I saw him lean his hand on my coffee cup. I got a new cup for my coffee. As I was sitting here later, I'm feeling glutened. I looked and somehow I was back to the cup that I was trying to avoid. I can't believe I did that. I suppose we all learn from our miseries. Grrrrr

Heres a real good one, I bought my daughter some candy and without thinking I popped a couple of em in my mouth! It was chocolate afterall, I mean hello I never think when it comes to chocolate. ARGH About a half hour later I felt like I was gonna hurl! I darnk a ton of water after that!

wowzer Community Regular
wowzer
Posted
  • Author

I know what you mean about work. I am a bank teller at a drive in. I was off yesterday and came into today to find the person who worked in my window's gluten hand lotion. I'm sure she used it all day. I was wiping down anything I thought she touched. Is it asking too much to ask my coworkers to not use lotion that contains gluten? I suppose I could keep throwing it away. I do have a nice big bottle in my window that they are all welcome to use. It sure is an ongoing battle. If I work in the lobby, it's almost worse because we serve cookies. So what can I do?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,282
    • Most Online (within 30 mins)
      7,748
    William Errens
    Newest Member
    William Errens
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • numike
      is my cleiac disease gone?

      By numike · Posted

      69yo M I have had skin cancer basal  I use a higher quality Vit D https://www.amazon.com/Biotech-D3-5-5000iu-Capsules-Count/dp/B00NGMJRTE
    • Wheatwacked
      is my cleiac disease gone?

      By Wheatwacked · Posted

      Your high lactulose test, indicating out of control Small Itenstinal Bacterial O,vergrowth is one symptom.  You likely have low vitamin D, another symptom.  Unless you get lots of sun.   Celiac Disease is a disease of malabsorption, often leading to subclinical vitamin deficiencies.  A lot of people have these symptoms just before an acute phase of Celiac Disease.  Each of the symptoms can have multiple causes that are not celiac disease,  but when you start having multiple symptoms,  and each symptom is treated as a separate disease,  you have to think, maybe these are all one cause. celiac disease. There is a misconception that Celiac Disease is  a gastrointestinal disease and symptoms are only gastro related.  Wrong.  It is an autoimmune disease and has many symptoms that usually are disregarded.  I made that mistake until 63 y.o.  It can cause a dermatitis herpetiformis rash,  white spots on the brain.  It caused my alcoholism, arthritis, congested sineses, protein spots on my contacts lenses, swollen prostate, symptoms that are "part of aging". You may be tolerating gluten, the damage will happen. Of curiosity though, your age, sex, are you outside a lot without sunscreen?  
    • trents
      is my cleiac disease gone?

      By trents · Posted

      It would be interesting to see if you were tested again for blood antibodies after abandoning the gluten free diet for several weeks to a few months what the results would be. Don't misunderstand me. I'm not necessarily suggesting you do this but it is an option to think about. I guess I'm saying there is a question in my mind as to whether you actually ever had celiac disease. As I said above, the blood antibody testing can yield false positives. And it is also true that celiac-like symptoms can be produced by other medical conditions.
    • numike
      is my cleiac disease gone?

      By numike · Posted

      Thank you for the reply In the early 2000's I did not have the endoscopy nor the biopsy I do not have those initial records I have only consulted a GI drs in the USA 
    • trents
      is my cleiac disease gone?

      By trents · Posted

      Welcome to the forum, @numike! We sometimes get reports like yours from community members who believe their celiac disease has "gone away." We think there can sometimes be cases of remission but not long term healing and that continued consumption of gluten will eventually result in a relapse. This is the state of our knowledge at this point but there is still a lot we don't know and celiac disease continues to surprise us with new findings on a frequent basis. So, we would not advise you to abandon a strict gluten-free diet. Perhaps you can draw consolation from the fact that at the present time you seem to be able to consume gluten without consequences when in situations where you do not have the option to eat gluten-free. But I would advise you to not generalize your recent experience such that you throw caution to the wind. But I want to go back to what you said about being diagnosed by blood test in the early 2000's. Did you not also have that confirmed with an endoscopy and biopsy of the small bowel lining? Normally, a celiac disease diagnosis is not concluded based on a blood test alone because there can be false positives. What kind of doctor did this testing? Was it done in the U.S. or overseas? In the last few years, it has become common in the U.K. to grant a celiac diagnosis from blood testing alone if the antibody test scores are 10x normal or greater. But that practice has not caught on in the U.S. yet and was not in place internationally in the early 2000's. Do you have a record of the tests that were done, the scores and also the reference ranges for negative vs. positive for the tests?
×
×
  • Create New...