Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Reaction - Need Help!

DebNC84

By DebNC84
in Coping with Celiac Disease

Recommended Posts

DebNC84 Apprentice
DebNC84
Posted

I have been gluten free since june of this year - for the most part doing pretty good - until this week - I purchased some gluten free cookie mix - 365 Gluten Free Chocolate Chip Cookie Mix (it's distributed by whole foods) I know I didn't anything else that could have caused this problem - my gut has been killing me for two days - severe gas and bloating something that seems to be more severe now since I've been gluten free - I think that I'm actually more sensitive to gluten products intestinally. I guess my gut was so dead that it didn't matter so much - but that's another topic my question is

HAS ANYONE HAD A PROBLEM WITH THIS PRODUCT? I eat egg and milk products all the time and don't seem to have any problems with either... SUGGESTIONS? Is it possible that there is something in the product that IS NOT gluten free and they screwed up? I'm telling you - this has been really bad. I'm actually a DH person as well and I've started itching and breaking out a little.

thanks for your input.

Debbie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NorthernElf Enthusiast
NorthernElf
Posted

Did you bake your cookies on glutened pans ??? I glutened myself with Gluten Free Pantry's yummy brownie mix after I made then in a mini muffin tin that had gluten in it. Ugh.

I'd also look at what else you are eating since I'm sure you aren't just eating cookies. ;)

jerseyangel Proficient
jerseyangel
Posted

I know I'm in the minority on this, but I have reacted to every 365 Brand product that I've tried. One of those products was sent to the lab at the U of Nebraska, and tested negative for gluten--but the rep told me that they only tested down to 200 PPM.

This may have changed, so I would suggest you call them and see if the product was made in a facility or on equipment that also processes gluten, and about how/if they check for gluten in the products.

DebNC84 Apprentice
DebNC84
Posted
  • Author
Did you bake your cookies on glutened pans ??? I glutened myself with Gluten Free Pantry's yummy brownie mix after I made then in a mini muffin tin that had gluten in it. Ugh.

I'd also look at what else you are eating since I'm sure you aren't just eating cookies. ;)

nope - brand new cookie sheet. I've learned my lesson on the "used" baking equipment - about 3 weeks ago I made some gluten-free waffles in my old teflon coated waffle iron - BIG MISTAKE - I knew better - I just wanted those waffles so bad!! it was the Kinnikinnick (spelling?) brand and they were great! But this was a mild reaction I had from the waffles... nothing like what I've been going through the last couple days... I'm a little better today and I still have cookies left - I'm almost tempted to wait till I get better and be the martyr and try it again.. just to make sure. sounds dumb huh? They were SO GOOD!

Good idea though... If I hadn't known about using new baking stuff - it could have been the problem...

DebNC84 Apprentice
DebNC84
Posted
  • Author
I know I'm in the minority on this, but I have reacted to every 365 Brand product that I've tried. One of those products was sent to the lab at the U of Nebraska, and tested negative for gluten--but the rep told me that they only tested down to 200 PPM.

This may have changed, so I would suggest you call them and see if the product was made in a facility or on equipment that also processes gluten, and about how/if they check for gluten in the products.

wow - thanks! I don't think i'm going to try that brand again. I made some Bob's Red Mill brownies one time and made a chocolate cake from the back of a tapioca flour box and both were great with no reactions.

it says on the box that it was made in a 100% gluten free facility... but maybe it was the chocolate chips?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
    3. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until...
    5. Scott Adams
      - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,471
    • Most Online (within 30 mins)
      7,748
    Lynda Gibbons
    Newest Member
    Lynda Gibbons
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      My only proof

      By Mari · Posted

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      Stomach hurts with movement

      By Scott Adams · Posted

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.