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Just Got Results In The Mail..i Do Not Have Celiac.


Kara'sMom

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Kara'sMom Explorer

And my polyps were benign and NO evidence of cancer....PRAISE THE LORD.

I actually felt guilty telling DD that I didnt' have it. But said I'd support her and eat what she eats.

And she just smiled and said..."aren't you happy you don't have it?" She is THE BEST.

Doing some surfing on here and see that Maragaritaville in FLordia looks great for gluten-free eating!

Anyway...just wanted to let everyone know since I freaked out and posted that I probably had it earlier this week.

Thanks for all of the support.

Oh...does anyone have a good tasting (as close to "real" as possible) recipe for a pizza crust. Soon we'll be going to Whole Foods and I need to know what to buy. I have one from a recipe book but would like one that's been "kid tested and approved." :P

Mary


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Fiddle-Faddle Community Regular

Here is the recipe I use. I have to fight my gluten-eating family for this, so it must be pretty good!

You will need cornstarch, potato starch, and xanthan gum for this recipe.

The cornstarch and xanthan gum will be at Whole Foods. So will potato starch, but if you have an Asian grocery store, they will have potato starch at about 1/8 the price.

gluten-free Pizza Crust

1 packet yeast (about 1 tablespoon)

3/4 cup milk, room temperature

1/2 cup potato starch

3/4 cup cornstarch

1/4 teaspoon baking soda

1 teaspoons baking powder

1 tablespoon xanthan gum

Kara'sMom Explorer
Here is the recipe I use. I have to fight my gluten-eating family for this, so it must be pretty good!

You will need cornstarch, potato starch, and xanthan gum for this recipe.

The cornstarch and xanthan gum will be at Whole Foods. So will potato starch, but if you have an Asian grocery store, they will have potato starch at about 1/8 the price.

gluten-free Pizza Crust

1 packet yeast (about 1 tablespoon)

3/4 cup milk, room temperature

1/2 cup potato starch

3/4 cup cornstarch

1/4 teaspoon baking soda

1 teaspoons baking powder

1 tablespoon xanthan gum

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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