Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Extent Of This Is Mind-boggling ...


Sailing Girl

Recommended Posts

Gemini Experienced
I'd love to get the name of the speaker/researcher that your doc saw. I was looking around to see if I could find him, and found this about celiac and thyroid disease:

<a href="Open Original Shared Link disease%20and%20Thyroid%20Conditions.pdf" target="external ugc nofollow">Open Original Shared Link disease%2...0Conditions.pdf</a>

Kate

Kate....I have an appointment with her on the day after Christmas and I will ask her the name of the physician who gave the talk. This is not mainstream medicine, obviously, because he wouldn't have been so knowledgeable about it. These are doctor's who have bucked the traditional route and have done their own research and actually listened to their patients. I'll post when I have more information.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sneezydiva Apprentice

Oh I see it everywhere too. My BIL has MS, and I can't help but wonder if a gluten-free diet would help him. My mother suffers from the same fatigue and allergies I do. My MIL has IBS. FIL has GERD and a myrid of health problems. Both inlaws briefly went on low-carb diets and looked and felt great, but didn't make the connection. My DH has GERD also, and IBS like symptoms, though not diagnosed. Because of my new diet, his diet is now essentially gluten-lite, and I've noticed his reflux is a lot better. I'm hoping to convince him to try the diet for 2 weeks.

I'm too new to this to suggest it to other people besides my husband. But eventually, I want to. I'm waiting to feel better so I can be a good example of how gluten-free can help.

nutralady2001 Newbie

I read an article that said only 1 in 10 Celiacs in Australia are diganosed which was me for over 45 years. "IBS" diagnosis is rife however...go figure

Rosebud710 Apprentice
There is a link between a lot of neuro "mental' disorders and gluten. Try putting celiac and neurological manifestations in a search engine. There has been stuff with links posted here and there is quite a bit on the net.

You know, I would get really bad panic attacks while driving. Since I've gone gluten free, it's been a while since I've had one. The real test would be driving on the highway - that's where I'd get the worst attacks. I've got to plan a road trip somewhere . . .

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,651
    • Most Online (within 30 mins)
      7,748

    Mae61
    Newest Member
    Mae61
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.