Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have A Great Doctor - But Im Not Sure?


Poppets

Recommended Posts

Poppets Rookie

Hi Everyone,

Im a 28 year girl in England and i have been unwell now for around 6 weeks. Ive been to the doctor 3 or 4 times now and i finally went back today and saw a different doctor who is sending me for the Coeliac blood test tomorrow to see if this is the problem with me. I wrote out a long list of symptoms ive had and as he read through the list he started smiling and nodding and said "well Miss Collins - i think you may have Coeliac Disease and im getting you a blood test tomorrow to find out!" I almost cried i was so happy that someone was finally listening to me - but im not sure that i have Coeliac? I went to College with a lady who has it and her symptoms were way more serious than me and if she ate any gluten she became very very ill.

Ive been cutting wheat out of my diet and dairy and im not any better than i was when i was eating it! I didnt realise though that Gluten can be in more than just wheat so i may have been eating it and not realising it!

My symptoms are extreme bloating and pain in my abdomen, the longer the day goes on the larger my stomach gets. By the end of the day i feel gassy and the pain goes around my back. I feel exhausted all the time even after 12 hours sleep and im havin a little trouble going to the toilet.

The doctor has given me some fibre drinks to help 'move' things on - he seemed to really know what he was talking about but i just dont believe him! - What do you all think?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

I think your doctor is a keeper! People have varying degrees of symptoms so it's not at all unusual for the lady you know with celiac to have worse symptoms than you. You may be less symptomatic, you may have had celiac for less time and there fore have done less damage to your body, or you may have symptoms that you don't realize are symptoms until you go gluten-free.

If you just go wheat-free, you probably won't feel completely better. You will have been consuming some gluten.

The other thing to note is that blood tests aren't accurate once your go gluten-free. You've been "gluten-lite" with not eating wheat so I would be surprised if you got a positive blood test. Your body won't be producing as many antibodies to gluten now that you're eating a smaller amount so the blood test won't detect the high amount that you need for a positive. Don't worry about it, though. I would try the gluten-free diet and see how you feel. If you feel better, you've found your answer!

Welcome!

Poppets Rookie

Hi!

Thank you for your reply - its all a bit baffling isnt it in this limbo stage. I had cut wheat out a week ago or so and when that didnt work i reintroduced it and then cut out dairy to see if that made a difference so ive been eating wheat s normal for over a week since i cut it out for a week - will that still make a difference? My blood test is 11.30am - if i ate loads of whet in the morning will that help?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.