Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results Are In . . .

Shannnn

Recommended Posts

Shannnn Newbie
Shannnn
Posted

Hello! I'm new here and hope I am doing this right. I am seeking information from people who know about blood tests since I am having trouble getting a call back from my Dr.'s office. I am frustrated and tired of living with syptoms. I look normal and SOMETIMES feel normal. Often I feel abnormal and look just fine. It's frustrating because I will confide in a few family members and they are not supportive (I think it is because they don't understand so they don't know how to be supportive). Also, I look fine so it's as if they think I'm imagining these syptoms or making them up to get attention. Believe me, I'm not.

I was tested for celiac disease in 2004. The following tests were taken by blood:

Endomysial AB., IGA-NEGATIVE RESULT

Gliadin AB IGG -NEGATIVE RESULT

Anti Gliadin AB IGA STRONG POSITIVE RESULT

Endoscopy- Normal

With these results it was suggested a gluten free diet might help, but since I had read a lot about Celiac Disease I figured that I didn't have it so I didn't go on the diet.

In 2005 I saw a new GI Doc. A second endoscopy came out normal and I had the following blood test:

HLA-DQ2/HLA-DQ8 (Allelic varients assosiated with celiac disease were not detected).

Present Day: I have had all sorts of different syptoms ranging from nerve pain, sensations, shortness of breath perceived weakness, (all intermittent) for about 6 months and for the past 2 months I have had lower abdominal pain and constipation (also intermittent) I have had normal MRI's and ultrasounds which please me, however,something is wrong and nobody can figure out what. My doctor decided to run the celiac panel since I was a strong positive for the Anti Gliadin AB IGA a few years ago. I got the results back from the lab yesterday. The tests that they ran were for:

Immunoglobulin A, Serum-NEGATIVE and Tissue Transglutaminase AB, IGA-NEGATIVE

My questions are: Since I obviously do not have Celiac Disease as proved by the HLA-DQ2/HLA-DQ8. Could I still have a non celiac gluten intolerance? Also, Did the Immunoglobulin A test take the place of the Anti Gliadin AB IGA test or is this a completely different test? Since the Anti Gliadin AB IGA was the only test that came out positive I am wondering if it could be a marker to a non celiac gluten sensitivity. Do they even run that test anymore (or did this particular lab not test for it because it needs to be ordered specifically)?

In conclusion, I've been reading about food sensitivity and I was surprised to learn that they can cause the same types of symptoms that I am experiencing. I never even thought that food COULD do that. Since nothing else has been suggested,I feel like I'd like to try an elimination diet and start with gluten first. I can't seem to get any good advice so I am turning to the experts on this board who I'm sure have a lot of knowledge. Thank you for taking the time to read my post.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hayley3 Contributor
hayley3
Posted

Hi,

I haven't been tested so can't help there.

I was dx'd with IBS and I just read that they now feel that IBS may be a mild form of celiac disease. I also have constipation.

I've read that grains are bad overall, and eliminating can help you to lose weight, so it's worth giving it a try on that alone. And stomach pain is also a great motivator!

sissyjane Newbie
sissyjane
Posted
Hi,

I haven't been tested so can't help there.

I was dx'd with IBS and I just read that they now feel that IBS may be a mild form of celiac disease. I also have constipation.

I've read that grains are bad overall, and eliminating can help you to lose weight, so it's worth giving it a try on that alone. And stomach pain is also a great motivator!

I'm new around here, and interested in where you read that IBS could be a mild form of Celiac Disease. I'm arming myself with information before I ask my doctor to do the tests on me. I don't think he is going to want to...

CarlaB Enthusiast
CarlaB
Posted

You might also check this out. Open Original Shared Link It has similar symptoms to celiac disease and can cause food sensitivities.

hayley3 Contributor
hayley3
Posted

It's approx in the middle of the page.

Open Original Shared Link

sissyjane Newbie
sissyjane
Posted
It's approx in the middle of the page.

Open Original Shared Link

sissyjane Newbie
sissyjane
Posted
It's approx in the middle of the page.

Open Original Shared Link

Oops! I meant to say thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Joyous Enthusiast
Joyous
Posted
Hello! I'm new here and hope I am doing this right. I am seeking information from people who know about blood tests since I am having trouble getting a call back from my Dr.'s office. I am frustrated and tired of living with syptoms. I look normal and SOMETIMES feel normal. Often I feel abnormal and look just fine. It's frustrating because I will confide in a few family members and they are not supportive (I think it is because they don't understand so they don't know how to be supportive). Also, I look fine so it's as if they think I'm imagining these syptoms or making them up to get attention. Believe me, I'm not.

I was tested for celiac disease in 2004. The following tests were taken by blood:

Endomysial AB., IGA-NEGATIVE RESULT

Gliadin AB IGG -NEGATIVE RESULT

Anti Gliadin AB IGA STRONG POSITIVE RESULT

Endoscopy- Normal

With these results it was suggested a gluten free diet might help, but since I had read a lot about Celiac Disease I figured that I didn't have it so I didn't go on the diet.

In 2005 I saw a new GI Doc. A second endoscopy came out normal and I had the following blood test:

HLA-DQ2/HLA-DQ8 (Allelic varients assosiated with celiac disease were not detected).

Present Day: I have had all sorts of different syptoms ranging from nerve pain, sensations, shortness of breath perceived weakness, (all intermittent) for about 6 months and for the past 2 months I have had lower abdominal pain and constipation (also intermittent) I have had normal MRI's and ultrasounds which please me, however,something is wrong and nobody can figure out what. My doctor decided to run the celiac panel since I was a strong positive for the Anti Gliadin AB IGA a few years ago. I got the results back from the lab yesterday. The tests that they ran were for:

Immunoglobulin A, Serum-NEGATIVE and Tissue Transglutaminase AB, IGA-NEGATIVE

My questions are: Since I obviously do not have Celiac Disease as proved by the HLA-DQ2/HLA-DQ8. Could I still have a non celiac gluten intolerance? Also, Did the Immunoglobulin A test take the place of the Anti Gliadin AB IGA test or is this a completely different test? Since the Anti Gliadin AB IGA was the only test that came out positive I am wondering if it could be a marker to a non celiac gluten sensitivity. Do they even run that test anymore (or did this particular lab not test for it because it needs to be ordered specifically)?

In conclusion, I've been reading about food sensitivity and I was surprised to learn that they can cause the same types of symptoms that I am experiencing. I never even thought that food COULD do that. Since nothing else has been suggested,I feel like I'd like to try an elimination diet and start with gluten first. I can't seem to get any good advice so I am turning to the experts on this board who I'm sure have a lot of knowledge. Thank you for taking the time to read my post.

You could still have Celiac Disease, and it sounds like you are gluten intolerant. Try an elimination diet. There's lists of stuff with and without gluten available online, and taking L-Glutamine is (according to what I've read) good for keeping cravings at bay while you're adjusting. I'm also a fan of DLPA.

Cut gluten out of your diet and see how you feel after a couple of weeks. (It can take a lot longer to totally heal, but I think most people notice a difference within the first two weeks.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Seaperky
      - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease. Thier gluten free options are awesome.
    2. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    3. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    5. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748
    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.