Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Fog


Guest swezzan

Recommended Posts

Guest swezzan

B):huh: I just read a blurb from one of the forums and it was about how we get effected mentally by the gluten...It was put so eloquently that I could not have described it better:

There's also something called 'brain fog' that we all talk about experiencing, it makes us feel stupid, like we can't comprehend anything. This may be contributing to why she doesn't want to research this, it's probably too confusing and overhwelming for her right now.

Keeping in mind the above statement.............Now, that I have been away from gluten for a few yrs.....it is hit and miss at times.......But more times without gluten then with, I am having an extraordinarily hard time getting use to all the input that is coming at me all the time. It is almost like to much simulation at once. I can actually feel my brain stop info from coming in until I have been able to absorb what I have received. Then open up again for more info.

It makes it pure hell learning a new job. Makes me look like I am a dumb person at times......but I call it mind glitches because I don't know when it is going to happen and if I eat some gluten acccidentally........I appear very thick headed and dull...........bordering on stupid.

Now, that I am off SSI for asthma and no longer wheezing through the day.........I have to make a living and this is making it very difficult. Any suggestions. How have others over come this in the work place? Please e-mail me if you have any solutions. Swezzan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rpm999 Contributor

i don't get how people say they feel that off gluten, i feel EXACTLY that way now (not on diet yet)....to the point where once i say something, i know what i'm about to say after but space out, so everythings all broken up and i can't even remember even though i do...hard to explain, but my memory/concentration is shot to hell and emotionally/mentally so off that i can't even explain if i tried....i assume from celiac, but i can't see how it would get anything but BETTER without gluten, or am i wrong?

  • 2 weeks later...
Guest swezzan

:o

I have been on a gluten free diet but every now and then I get glutenized without knowing.

It is like a trial and error thing.

this week I ended up fasting in order not to add any more in my diet. It is playing chaos with my working.

sometimes I am smart enough to do the teller job and other times I am as dumb as a board.

And now that i can see the difference in my mental capacities I am as frustrated as ever.

But hey, I will learn and deal.....that is life. I am healthier and can move and breath so life is good........but challenging. C'est la vive!! :rolleyes:

Yenni Enthusiast

Brain fog is terrible. I feel a bit better, or much better, from it now this far along on the diet.

"Teflon brain" is another thing I notice I get. Things just doesn't stick.

nutralady2001 Newbie

Teflon brain.....I like that. I have the double whammy of being hypothyroid as well as Celiac and brain fog/overwhelming fatigue is a symptom of both although am slowly getting better

  • 3 weeks later...
Joyous Enthusiast

I definitely get this. When I'm like that I feel like I can't talk to people. I won't be able to communicate effectively anyways, and it just feels like trying would take this huge mental effort that I just can't bring myself to make. And if someone tells me I need to run an errand it feels like the end of the world (lol). :o If someone's telling me something that I'm going to need to remember, I ask them to tell me later. :(

  • 2 weeks later...
GregC Rookie

Word people! I go through the fog alot, i guess i'm still eating something with wheat or gluten in it.This is so terrible.. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CuriousOne Apprentice

sorry to hear that Greg. Hope you can find your triggers and get rid of them!!

bigfootme Newbie

Definitely difficult to learn a new job or remember much of anything with this so called "brain fog". My doctor did run a test and found that I had extremely low folate which can lead to memory problems. I have been taking folate now for a couple of months and haven't been retested but I believe that it has helped some.

  • 3 weeks later...
Guest swezzan



Hello everyone,

Ididn't make it as a Teller. Brain Fog and Teflon brain defeated that attempt. But don't worry tomorrow is another day.

Learning our triggers seem to be what we need to do. Dumbie me, a friend of mine had back surgery and I thought I would help by cleaning the cat litter. She had been in the hospital for 5 days and it was pretty awful when we went into the house of 5 cats.

I know she was in misery after back surgery but somehow I still think she should have realized that the litter she chose was "Wheat Litter". Needless to say, I was weakbefore I finished the cat box and after 3 weeks still not fully recuperated. Apparently, it weakened my immune system and I have a good cold and wheezing some. Haven't had either in a few years since not eating gluten. I guess breathing it and for the length of time was drastic to my system. My face broke out with large pimples. Live and Learn I guess. I am glad I helped my friend but next time I will ask questions before I attempt to do something I usually don't do.

I hope all of you are getting some fix on how to avoid the brain fog and teflon thing. I feel better knowing that I am not dumb........just stunned for a time see you all later and good luck and let me know how you are all doing =)

  • 1 year later...
Quasior Rookie

It's frustrating when you KNOW you're smart and your brain fog gets you.

I used to call it my little black cloud.

Now I know what it is.

I feel for anyone with this problem! My sister has it worse than I do...

UnhappyCoeliac Enthusiast

I donty know If I have this but I get basically

I make a statement

its challenged

tough time thinking of reply

I am constantly CONSTANTLY i tell you 'searching for the right word' all theee

Switch2GF Rookie

I found a great article on "brain fog" from Linda "the gluten free homemaker". I reposted it and added my own comments on my blog: Open Original Shared Link

Here is an excerpt and decent medical explanation...

"Intestinal permeability is part of the reaction that takes place when someone with celiac disease eats gluten. To put it simply, molecules that should be kept within the intestines are able to

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,957
    • Most Online (within 30 mins)
      7,748

    Dogdad21
    Newest Member
    Dogdad21
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.