Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross Contamination

jstoy

By jstoy
in Introduce Yourself / Share Stuff

Recommended Posts

jstoy Newbie
jstoy
Posted

My daughter is 32, I live with her, I am her mother. She has Celiac and I do not. She was doing very well with her gluten free diet and feeling great. All of a sudden we have 2 new people in the house that do not understand Celiac and apparently are unconcerned. Today my daughter was extremely sick. Now I have seen one of the roommates touching bread and touching my daughters shelf we have seperated in the frig. We have our own shelves, etc. Ever since these two have moved in my daughter has been sick, mostly mild cases but today was tragic. She was crying, I am not into researching page after page to find out how to help her, I am the get the ole pepto bismo mother but she can't. I gave her a banana and some applesauce because I read it somewhere. We both do research all the time. She is researching and her eyes are closing. I feel so bad for her.

Today I seperated some cooking utencils , silverware, dish's, etc. Tomorrow I am buying her bowls, and anything she needs only for her gluten free use. We can't control others in the house. I say ship em out and this is going to happen very soon but until then, we need some help.

AFter all that, any suggestions? We try to seperate but others get into things. I'm getting very upset here watching my daughter feel like she's dying. I am not a stressful person but lately I am getting stressed to the point I think I will be sick.

I can't keep searching pages that lead to other pages, I need to ask a question and get the answer I need, does anyone know a place that will actually help us. Reading forums is not working, I do not have the time for this. She is newly diag Celiac and she needs someone to help her. Please is there anyone that is experienced enough to help or direct us to a place she can simply go to or a phone number to call and talk to someone that actually knows what she needs? Please I am at my ends here. We need help. She is so sick and I am getting so upset.

Merry Christmas and thank you for your help in advance

Dear Santa,

Please bring us an angel to guide my daughter thru Celiac and help her get back to normal.

Thank you

Caring Mother

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Where are you located. There might be a suppot group in your area.

You won't find a better site for information about Celiac then here. Please take some time to read some posts. It has been a lifesaver for me when no one around me knew anything about what they said I had.

jstoy Newbie
jstoy
Posted
  • Author

Hi Thank you for responding so quickly. We are in Manchester, New Hampshire. We have read so many forums and it give us help in advance on some things. Right now she is crying and curled up in a ball and it upsets me. I do not know what to do. We get thru most everything. We have the gluten free shopping down to a science, we do the best in the house but at times like this we need help. Have you ever been glutened and wanna curl up and die? This is how she is feeling. She used a heating pad earlier. She is in so much pain now she won't listen to me or do anything but lay there and cry and she said all she can do is wait it out. I can't believe that is true. I can't relax watching her. I wanna take her to the hospital but they will take forever, we can't afford it and I am sure nothing will be done to help.

Thank you for reading.

Where are you located. There might be a suppot group in your area.

You won't find a better site for information about Celiac then here. Please take some time to read some posts. It has been a lifesaver for me when no one around me knew anything about what they said I had.

kbtoyssni Contributor
kbtoyssni
Posted

Unfortunately, there probably isn't a lot you can do now that she's glutened. Most of us just have to ride it out, and I think everyone has some comfort foods or techniques to make them feel better. Mine is sleeping a lot. And eating way too much cheese and milk. I'm not sure a hospital could do much, either, unless she's getting dehydrated.

You really need to take steps to make sure this doesn't happen again. It seems like she was doing just fine when it was just you living there. I'm a little unclear about where the roommates come from, but you need to get them to follow the house rules about gluten. If they can't stop contaminating things, you could say the whole house has to be gluten-free or not let them stay there anymore. You daughter's health has to be #1.

Lisa Mentor
Lisa
Posted

Open Original Shared Link

Here is some contact information in your area.

Many times once the reaction begins you just have to ride it out. The BRAT diet can be soothing - Bananas, Rice, Apple Sauce and Tea/Toast. Plently of water might help the system flush itself. All this is assuming that her discomfort is caused by gluten or cross contamination. I never had the stomach pains but there are many many here that do.

I hope that she will feel better soon.

jstoy Newbie
jstoy
Posted
  • Author

Thank you for your response and I am sorry you also have this horrible Celiac. She has been sick for over 7 years and just recently found it was Celiac. The roomates are her sister and her sisters boyfriend that had no place to live. They are careless but I am sure it's not on purpose. When my daughter is feeling better, she will need to do as you suggest and have a talk about complete gluten free foods in this house. I say not staying here is the best option. We have talked about just her and me in the house. It is abit expensive but I think we will be ok and she will feel better. I am building a website on Celiac and all gluten free recipes and I have learned alot. I'm kind of lazy in the cooking department but once I buy some of those flours they talk about we can eat quite well. I'm impressed with the foods you can eat.

Merry Christmas and thank you so much.

Unfortunately, there probably isn't a lot you can do now that she's glutened. Most of us just have to ride it out, and I think everyone has some comfort foods or techniques to make them feel better. Mine is sleeping a lot. And eating way too much cheese and milk. I'm not sure a hospital could do much, either, unless she's getting dehydrated.

You really need to take steps to make sure this doesn't happen again. It seems like she was doing just fine when it was just you living there. I'm a little unclear about where the roommates come from, but you need to get them to follow the house rules about gluten. If they can't stop contaminating things, you could say the whole house has to be gluten-free or not let them stay there anymore. You daughter's health has to be #1.

jstoy Newbie
jstoy
Posted
  • Author

Thank you so much. After you mentioned it I went and located a support group in Nashua close by. I think I need it more than she does lol. You are so young to have this and I am sorry you do. You are very lucky not to have the pains, I hope you never do.

It was the BRAT diet I found, she had a banana and some apple sauce. We didn't get to the rice and tea part. She hates tea, I say too bad drink it :-)..She is stubborn..I think when your as sick as she can get she doesn't want to do anything, just curl up. I suppose I can force feed her banana's and dump some apple sauce over her head in hopes she get some in her mouth LOL..we have to joke about it at times.

Thanks for your help.

Merry Christmas

Open Original Shared Link

Here is some contact information in your area.

Many times once the reaction begins you just have to ride it out. The BRAT diet can be soothing - Bananas, Rice, Apple Sauce and Tea/Toast. Plently of water might help the system flush itself. All this is assuming that her discomfort is caused by gluten or cross contamination. I never had the stomach pains but there are many many here that do.

I hope that she will feel better soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

It is horrible that she has been controlling her diet so well and now the new people in the house are not concerned at all. Is there a way you can talk to them and educate them about CC and your daughters health. It might helps things until they move out.

jstoy Newbie
jstoy
Posted
  • Author

Hi

We have told them over and over what it means. They actually went out and bought ingredients for gluten free stir fry once. Then all of a sudden they were making pasta in the microwave and adding it to sauce in the same electric pan she uses for her gluten free foods. How many times have I said what are you doing? It is not registering or one of them just doesn't care.

I won't bore you with the details but because this could get lengthy but soon we will be having a house meeting on gluten free or packing it in and have a nice life somewhere else talk :D

Have a safe and gluten free holiday

It is horrible that she has been controlling her diet so well and now the new people in the house are not concerned at all. Is there a way you can talk to them and educate them about CC and your daughters health. It might helps things until they move out.
WW340 Rookie
WW340
Posted

If it is your house, I would simply make it totally gluten free, period.

I am the only one with celiac disease, yet my house is gluten free except for one loaf of bread that my husband is very careful with and his cereal. My son and husband can eat gluten outside of our home, but at home all cooking is gluten free. My son is not careful enough with gluten food, so he simply is not allowed to have it here.

Cross contamination is a difficult enough issue without someone in your own home sabotaging you.

This is a matter of health, not personal preference. If my husband wasn't as careful as he is with his bread and cereal, that would be gone too. It is no small matter to be sick from a glutening as you are currently witnessing. I am sick for up to 3 weeks from 1 cross contamination.

My husband and son have adapted very well and think that our food is even better than before I was diagnosed. My son's favorite food is Amy's gluten free enchiladas. He likes them better than any other brand.

We don't use a lot of prepackaged foods, so the expense is no more than regular food, because it is regular food.

I hope your daughter gets over her glutening soon.

pixiegirl Enthusiast
pixiegirl
Posted

Boy do I agree with the above poster. Its your house, I'm assuming your doing them a favor by letting them move in... I'd tell them the house is gluten free - period the end. When they want gluten they can go to the grocery store and eat the junk in their car. Or go to a restaurant and have it.

This disease could permanently effect your daughters health, the fact that your other daughter and her boy friend "try" isn't enough. I'd say ok we tried it, its not working and now the house is gluten-free. Done. If they can't abide by the rules of the house, find another house.

Susan

jstoy Newbie
jstoy
Posted
  • Author

You are all so kind to help. I sent your reply's to my daughter. Today would be a great day to say no more gluten in this house period!! I agree. We talked to one of them today, I believe she understands now my daughters health overrides a roof over her head when in fact she has another place to live if necessary. The other will be dealt with when he wakes up. This is frustrating for them also, daily saying this and that and all the notes left around. I had a conversation with my daughter today saying this has to stop, I can't handle this, you are too nice and it's killing you. So mother has to be the meanie today. Gluten Free or Move out, that's it. Thanks for all your advice. I was headed in that direction, just wanted to make sure I wasn't being too mean to people around us. Actually, after what I witnessed last night they are lucky to be in the house at all.

Hope everyone has a Safe, Gluten Free Merry Christmas ;)

pixiegirl Enthusiast
pixiegirl
Posted

i know its hard to do but mom's often have to be meanies, comes with the territory! Again this is about good health so its so important.

Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.