Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elimination Diet Gone Wrong?

misdiagnosed6yrs

Recommended Posts

misdiagnosed6yrs Apprentice
misdiagnosed6yrs
Posted
  • Author
It makes perfet sense if you are celiac. Oats would be a delayed reaction that may have lead to your symptoms after you ate the next day. The number of folks who can tolerate oats is not real high you should drop those until you are symptom free.

Also the mayo and the salsa, did you make sure that they are derived from non gluten grains? Not all celiacs can tolarate gluten vinagers.

With your tummy being the way it is you shouldn't even consider salsa, whether gluten free or not right now.

You also should be dropping dairy for a couple of months at least. You need the villi that are damaged to digest dairy, without them a couple of hours after consuming it you will have symptoms. Your doctor should have told you about that when you were diagnosed but he probably didn't.

Excellent advice. I'll take it.

But I thought Bob's red mill oats were okay. I don't need to be eating oats, I don't even care for them. It was for a cereal substitute.

The salsa thing was stupid. I realize that. :rolleyes:

The doctor told me to look up a gluten free diet and do it. He told me to go to a dietician but after reading stories about them being uninformed, I didn't go. I did a lot of research but ignored the dairy stuff. Let's be honest, the gluten-free is enough to take in, then add dairy free? ha.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 84
  • Created
  • Last Reply
tarnalberry Community Regular
tarnalberry
Posted

but if you're trying to do an elimination diet, the first things you have to exclude are the top eight allergens, and that includes dairy.

misdiagnosed6yrs Apprentice
misdiagnosed6yrs
Posted
  • Author
but if you're trying to do an elimination diet, the first things you have to exclude are the top eight allergens, and that includes dairy.

I realize I started this thread as an elimination diet and yes I did cut out dairy until my doctor said go back to eating food. Thats when I had string cheese. I was going to start a new thread but I didn't want to have to explain why I was eating the foods I was eating.

If what I am feeling is a reaction from the glutening on dec 22nd.. wow. thats a long time. If what I am feeling is because the plaster in my house has wheat in it, then that's another story. BUT if neither is the case and what I am feeling is because I'm eating something wrong... I stll need the input.

I was getting worse as each day came. Today my stomach is so tight, I can't do anything. I am afraid tomorrow will be the same and I can't sit on my couch all day.

I can't escape from this house that may or may not have gluten in the air. They are sanding tonight and possibly tomorrow. We set up plastic and sheets at four locations to keep the dust from coming upstairs. As soon as the sanding is done, I have a team of people ready to clean it up. Twice.

Is there anything I can put on my rice that will make it taste not so dry and bland? I'm gonna try to stick to the brat diet for a few days.

Isn't that too much fruit though? Bananas and applesauce?

tarnalberry Community Regular
tarnalberry
Posted

can you stay at a friend's house? a hotel? just getting out of that environment might help...

ravenwoodglass Mentor
ravenwoodglass
Posted
I realize I started this thread as an elimination diet and yes I did cut out dairy until my doctor said go back to eating food. Thats when I had string cheese. I was going to start a new thread but I didn't want to have to explain why I was eating the foods I was eating.

If what I am feeling is a reaction from the glutening on dec 22nd.. wow. thats a long time. If what I am feeling is because the plaster in my house has wheat in it, then that's another story. BUT if neither is the case and what I am feeling is because I'm eating something wrong... I stll need the input.

I was getting worse as each day came. Today my stomach is so tight, I can't do anything. I am afraid tomorrow will be the same and I can't sit on my couch all day.

I can't escape from this house that may or may not have gluten in the air. They are sanding tonight and possibly tomorrow. We set up plastic and sheets at four locations to keep the dust from coming upstairs. As soon as the sanding is done, I have a team of people ready to clean it up. Twice.

Is there anything I can put on my rice that will make it taste not so dry and bland? I'm gonna try to stick to the brat diet for a few days.

Isn't that too much fruit though? Bananas and applesauce?

You could try a bit of extra virgin olive oil on the rice, just a small amount. You could also add just a touch of gluten-free cinnamon and a sprinkle of sugar, just a little bit, to make it a bit sweet if you absolutely can't stomach it plain.

I am giving you a link to the NIH website. You can do a search there for the exact brand of drywall compound and drywall that you are using. After you get to the page you need to be sure to look at the whole thing, near the bottom will be a listing of each thing that is in it and what it is made of. For example one brand I looked at yesterday stated starch - tapioca. That particular brand would be safe. Here's the link:

Open Original Shared Link

You may need to go to the home page tab but may be able to just enter the product on the page that comes up.

You should 'hide' while the dusting is going on if you can't do anything else. If you can't leave do let others do the clean up and I would consider getting a respirator at your local home supply company. Don't get the cheapest you can find you want something pretty good to make sure it is filtering what it should. Also I would literally tape off the kitchen if you can. Hang plastic sheets over that door even if it is not adjacent to the work being done. Tape all the way around it and don't remove the sheet until at least an hour after everything has been cleaned up. You also want to ask the folks doing the cleaning to spray the rooms with just a light spray of plain water. It will draw the powder out of the air and make it easier to vacuum up. Make sure you use a shop vac, the dust will ruin your regular vacuum and it will throw particles all over every time you use it after, if it still works. If household members are doing or helping with the process have them remove their clothes and place them immediately in the washer or wear old clothes they can remove and toss. After they are naked have them run through the house and get immediately into the shower. It is to cold to hose them off outside. :D My Dad was a construction worker and although we didn't know at the time we were all celiacs the methods I mentioned were what he had us do on a routine basis when we were doing drywall.

emorgan816 Newbie
emorgan816
Posted

"Within just a few months strictly gluten free the only things I am allergic to now is a few perfumes, cat spit and my yew bushes when they bloom."

How do they test for "cat spit" ?! That cracked me up for some reason :lol:

Elizabeth Secora

emorgan816 Newbie
emorgan816
Posted
Excellent advice. I'll take it.

But I thought Bob's red mill oats were okay. I don't need to be eating oats, I don't even care for them. It was for a cereal substitute.

The salsa thing was stupid. I realize that. :rolleyes:

The doctor told me to look up a gluten free diet and do it. He told me to go to a dietician but after reading stories about them being uninformed, I didn't go. I did a lot of research but ignored the dairy stuff. Let's be honest, the gluten-free is enough to take in, then add dairy free? ha.

I did read in my celiac newsletter this month the Bob's Red Mill did just come out with gluten-free Oats - they are Rolled Oats and the Steel Cut Oats. They are new so I think the oats you are eating may not be totally gluten-free. Here is the link to their exciting news: Open Original Shared Link

Elizabeth Secora

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
"Within just a few months strictly gluten free the only things I am allergic to now is a few perfumes, cat spit and my yew bushes when they bloom."

How do they test for "cat spit" ?! That cracked me up for some reason :lol:

Elizabeth Secora

I have an older kitty that was taken from her mom too soon. She sucks on my hands when she gets the chance, like when I am at the computer. Within minutes my eyes start to water and my nose fills up. That's enough of a test for me. :D If she just sits there quietly I am fine. I had another stray we fostered that did the same thing, and I would react the same way. The cat's are gluten-free so I know it's not the gluten. It's the cat spit. :D

ravenwoodglass Mentor
ravenwoodglass
Posted
I did read in my celiac newsletter this month the Bob's Red Mill did just come out with gluten-free Oats - they are Rolled Oats and the Steel Cut Oats. They are new so I think the oats you are eating may not be totally gluten-free. Here is the link to their exciting news: Open Original Shared Link

Elizabeth Secora

I just got some of those to try. I haven't tried oats since I was diagnosed. For some of us the issue is not just CC but that our guts can't handle the protein in the oats. It is similar to the gluten. Many of us can eat them safely but the only way to know for sure is to challenge them when we are feeling good. They shouldn't be used early in the diet because of the possibility of a reaction.

hathor Contributor
hathor
Posted
I did read in my celiac newsletter this month the Bob's Red Mill did just come out with gluten-free Oats - they are Rolled Oats and the Steel Cut Oats. They are new so I think the oats you are eating may not be totally gluten-free.

This isn't quite right. They sell BOTH gluten-free oats (which say gluten-free in large friendly letters on the package) and regular oats (which are cross-contaminated, like all regular oats). There is no indication that they plan to discontinue selling the regular oats.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.