Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Potato! Bad!


sickchick

Recommended Posts

sickchick Community Regular

HAHAHAHAHAHA my whole face is swelled up :D

my nose is running I am sneezing and I got D .

So I am removing them from my ever-growing list of no no foods ;)

I know you all understand thanks for letting me whine.

lovelove

sickchick


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

(((((((((HUGS))))))))

With a reaction like that please use caution with other nightshades, tomatoes, eggplant, and I think peppers also. I hope your over it soon.

sickchick Community Regular

Yeah I pretty much have eliminated all for now...

thanks! :)

ravenwoodglass Mentor

I just noticed you are newly soy free, the potato was just a potato right? No soy oil or anything like that? Soy still gets me too often, it seems to be in even more stuff than gluten, if that is even possible. I have yet to find a margerine or butter sub that is soy free. I just use olive oil or risk the casien in butter. I get the same sort of allergic reaction you do with the soy, only it's my intestines that swell, I thought I had a 'lump' of some kind for 2 years till I went soy free. Whoops that turned into a bit of a rant, sorry. You most likely challenged with a plain potato but just in case it was chips or something like that I thought I should mention it.

Genie75 Rookie

Hello SickChick,

Sorry to hear you are "sick". I can relate though. I have been sick for, well off and on, mostly on, since May, but the last 2 months or of 2007 were not good for me. I can so relate to the list of foods I can eat, and the list of foods I can't eat. I have a big list I keep modifying as well. Some I have to take off the "can eat" list and put on the "can't eat" list. Gets very frustrating at times.

I just want to say though, that I have experienced that when I am having a bad bout, usually cause I ate glutens (cause I didn't have a diagnosis so I would eat glutens off and on mistakenly), I find that my body rejects everything until whatever is wrong inside heals. Once it heals, and I stay gluten free for a while, like a few weeks or so, then I can start tolerating more (non-gluten foods). It's like you body has to heal first.

Anyways, good luck with that. It is nice to find people who are having the same problems as me :rolleyes:

Genie

HAHAHAHAHAHA my whole face is swelled up :D

my nose is running I am sneezing and I got D .

So I am removing them from my ever-growing list of no no foods ;)

I know you all understand thanks for letting me whine.

lovelove

sickchick

Genie75 Rookie

Hello ravenwoodglass,

I am new here. I don't really want to introduce myself on someone else's thread. I see you have spent a long time getting the Celiac diagnosis. This now gives me hope that maybe I will get a Celiac Diagnosis! LOL. My tests are always negative. Finally, one day I called up the Celiac association, and they said that I have to eat glutens anywhere from 6 weeks to 2 months to get a positive result (I think they mean from the biopsy). Unfortunatelly I can't do that. In the past I have only eaten glutens for a week before the biopsy. Nothing registers.

Anyways, sounds like you have had a long battle. I am back to see the GI on Monday and to get a gastropscopy on Monday. I don't think I will see any positive results for Celiac disease on the biopsy as I am eating gluten free. Too sick otherwise. Just recovering from a very bad bout. I'm finally "eating" again. I am so happy! Anyways, hopefully my GI will consider some rigorous blood testing to try and get a diagnosis. I hope so.

Bye, Genie

I just noticed you are newly soy free, the potato was just a potato right? No soy oil or anything like that? Soy still gets me too often, it seems to be in even more stuff than gluten, if that is even possible. I have yet to find a margerine or butter sub that is soy free. I just use olive oil or risk the casien in butter. I get the same sort of allergic reaction you do with the soy, only it's my intestines that swell, I thought I had a 'lump' of some kind for 2 years till I went soy free. Whoops that turned into a bit of a rant, sorry. You most likely challenged with a plain potato but just in case it was chips or something like that I thought I should mention it.
VioletBlue Contributor

I understand sniiiffffffffffff . . . You have my sincere sympathies.

I had to do the same awhile back. This week I realized peppers have the same effect on me. I LOVE fresh red and yellow peppers. I suspect eggplant has the same effect on me too but I haven't tested it out yet.

It totally sucks. Never to taste a french fry again . . .

Violet

HAHAHAHAHAHA my whole face is swelled up :D

my nose is running I am sneezing and I got D .

So I am removing them from my ever-growing list of no no foods ;)

I know you all understand thanks for letting me whine.

lovelove

sickchick


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Belinda Meeker Apprentice

Hey All.......

I too was having a bad bat with RED ones but switched to white and haven't yet had any prob's it must be something to do with their skins?

Sorry to hear u have been so sickly tho I know it does seem to get overwhelming at times :(

Hang in there and good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.