Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Making Sense Of My Symptoms!


strikerjax

Recommended Posts

strikerjax Newbie

I am doing some research on my symptoms and it led me to this site. I am not exactly sure what I am looking for here, but I guess I am hoping I can make some sense of my symptoms.

I have been pretty lazy since I was kid and was struggling with brain fog, fatigue & anxiety from the last 5 years. (btw, I am 33yrs old)

Also, I have consistently had aches & pains (back & neck)

From the past 2 years I have had trouble with

Rice (chills at night, confusion)

Sugar (Notice numbness in hands when I wake up from sleep) (no problem with sweet Fruits)

Cheese (cant recall a thing when I have it for a few hours)

Bananas, Beer.

Recently, Wheat & other grains are also having similar effect and if I eat a little more that I should, then I develop a weird Fever like feeling inside. It feels hot but don't find any temp. rise on the thermometer. I recently found Licorice tea helpful in reducing the fever.

The worst thing about this is the constant fatigue. I don't have the motivation to do anything ( workwise ).

I took a year off from work to figure this out & generally to de-stress, as I thought the stress from work was getting to me.

Finding the motivation to work again is missing, its almost been 2 years since I worked. thankfully I have some savings.. But i need to get this fixed.

I did a lemon diet a month ago and my brain felt so clear. I am hoping to get on a fruit, veggie based diet, (with nuts) for starters.

Does it look like I am allergic to gluten? (probably others)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mycoastisclear Newbie

I get brain fog all the time...i've had it since i was a teenager (I'm 29 now)

I have inattentive ADD but i havent been medicated for it because i believe my brain fog and inability to concentrate is due to diet...I also feel tired all the time. I recently found out I have anemia (low iron) which is a symptom of Celiac. Maybe that's why I'm so tired all the time. I have a hard time getting out of bed.

I believe food sensitivities dont always show up right away...may take 48 hrs so its hard to predict whats causing it...my main symptoms are brain fog and nasal congestion...i also have constipation and diarrhea but rarely have abdominal pain. I've not sure what foods trigger my sensitivities. HIgh sugar foods may cause brain fog too

I do know that these foods always give me brain fog:

bananas (makes me jittery too)

tuna sandwich

orange pop

big mac

I would suggest that you follow a food illimination diet to find out the culprit.

I know that allergy tests can be accurate but what about food sensitivities...is there a good test for that?

Good luck

I am doing some research on my symptoms and it led me to this site. I am not exactly sure what I am looking for here, but I guess I am hoping I can make some sense of my symptoms.

I have been pretty lazy since I was kid and was struggling with brain fog, fatigue & anxiety from the last 5 years. (btw, I am 33yrs old)

Also, I have consistently had aches & pains (back & neck)

From the past 2 years I have had trouble with

Rice (chills at night, confusion)

Sugar (Notice numbness in hands when I wake up from sleep) (no problem with sweet Fruits)

Cheese (cant recall a thing when I have it for a few hours)

Bananas, Beer.

Recently, Wheat & other grains are also having similar effect and if I eat a little more that I should, then I develop a weird Fever like feeling inside. It feels hot but don't find any temp. rise on the thermometer. I recently found Licorice tea helpful in reducing the fever.

The worst thing about this is the constant fatigue. I don't have the motivation to do anything ( workwise ).

I took a year off from work to figure this out & generally to de-stress, as I thought the stress from work was getting to me.

Finding the motivation to work again is missing, its almost been 2 years since I worked. thankfully I have some savings.. But i need to get this fixed.

I did a lemon diet a month ago and my brain felt so clear. I am hoping to get on a fruit, veggie based diet, (with nuts) for starters.

Does it look like I am allergic to gluten? (probably others)

GlutenWrangler Contributor

Keep in mind that there is a difference between Celiac Disease and a Gluten Allergy. Allergies are histamine reactions, while Celiac Disease is an Autoimmune Disease. An elimination diet will help to identify food allergies, but you need blood tests and a biopsy to identify Celiac Disease. I would recommend seeing an Allergist and a Gastroenterologist. They will be able to provide you some answers. Good luck,

-Brian

elye Community Regular

Be aware, too, however, that the blood panel and the biopsy can rule in the disease, but will not rule it out. False negatives can happen with both of these diagnostic proceedures. The only true diagnostic tool for this illness is dietary response. Good luck! :)

UCDSurvivor Newbie

Just some suggestions as I made my trek for my diagnosis. My problem is more complicated that just gluten. I cannot assimilate any and all protein correctly -- including gluten. This is a urea cycle disorder. As part of this I also have problems with sugars, molds, yeasts and such. Some of your food list indicates that may be an issue.

The lemon cleansing diet is wonderful for your liver. Try looking up the yeast free references and information regarding a Liver Cleansing Diet (it is really a great book or website to read even if you do not do the regime.)

If after taking food challenges and such you still don't have answers. If you live in a town big enough, try a metobolic specialist. There are over 41 different disorders that affect the way we assimilate proteins, carbohydrates, and fats.

Because I don't assimilate protein well, it leaves me with no energy and memory loss. I have to take amino supplements to help the gap.

Good luck and will be thinking of you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.