Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nasty, Horrible Headache -- Help!


Sailing Girl

Recommended Posts

Sailing Girl Apprentice

I glutened myself accidentally (well, sort of) on New Year's Eve. A friend put a *huge* amount of time and effort into producing what she said was a "gluten-free" meal in her gluten-filled kitchen, even after I asked her not to do so and told her I would bring food for me and for my DD.

I knew the huge chance I was taking by eating any of it (and did check on all the ingredients), but in the end decided not to offend her and hurt her feelings. I ate very lightly and stuck to stuff like the plain broccoli and the roast. Didn't chance the gravy (which she made with rice flour), nor the dessert (said I was full and gosh that was good and thank-you-so-much-for-making-it-all-gluten-free). <sigh>

Well, the rest is predictable. Sick sick sick since about 3a that morning.

I'm mostly over it, but I can't seem to shake the headache/migraine. This is the worst one I've had since last summer (probably the worst glutening I've had since then, too). I've tried lots of caffeine, I've tried raising my blood sugar, and I don't have any meds in the house.

Does anyone have any sure-fire headache remedies to pass along? I'm desperate to shake this thing!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

If this is a confirmed migraine that has lasted for 3 days you may want to consider calling the doctor. Mine, thank goodness never lasted more than a day, I really feel for you. A friend used to get ones that would go on for days and often her doctor would be able to give her something that would stop the pain quickly and not have it recur on waking. I hope you get over yours soon.

Glutenfreefamily Enthusiast

I would call your dr. My dr prescribes imitrex or sometimes darvocet for migraines. I have yet to take either since my headaches only usually last a day or two and caffeine usually helps.

GlutenWrangler Contributor

If it gets too severe, don't hesitate to go to the ER. They'll probably give you morphine. I had an extremely bad migraine once. I couldn't even walk and my father had to wheel me in to the ER in a wheel chair. But they really helped me out, so I'm sure they can help you out too. I hope you feel better soon.

-Brian

Sailing Girl Apprentice

Thanks for all your replies and concern!

It hasn't been severe enough to prod me into seeing an MD or going to the ER. It's just ... there, in a constant, annoying kind of way. It improved enough yesterday that I was able to ignore it (mostly), and it's *almost* gone today. But for future reference, I would dearly love to know how to knock it out before it's run its course -- the three-day marathon headache (combined with fatigue) is my worst glutening symptom.

Jane

lizard00 Enthusiast
I'm mostly over it, but I can't seem to shake the headache/migraine. This is the worst one I've had since last summer (probably the worst glutening I've had since then, too). I've tried lots of caffeine, I've tried raising my blood sugar, and I don't have any meds in the house.

I get the same headache... I know exactly how horrible it is. Mine usually starts within 30 minutes to an hour. I have tried all the same things, thinking if I drink more water or eat some fruit I can flush it out faster and unfortunately, it doesn't work. I've tried all types of meds I could find... aspirin, tylenol, excedrin (pick a type) got a head/neck massage, ANYTHING. so i've decided that rather than take drugs that don't work and have to rid my body of THAT too, i just have to let it run through. it's awful though.

the headaches and my extreme exhaustion were actually the reason I went gluten-free. Both have cleared up since then.

i really hope you are feeling better!!

hayley3 Contributor

I would do anything to never have another migraine! Mine normally lasted 3 days. Unbearable. I started noticing that my stomach was involved and figured they must be related. I just got over one.

I have tried everything. I managed to make mine shorter but I was never sure which one did it. I started keeping a headache diary. I went back and forth between a muscular reaction or swollen sinuses from an allergic reaction, and I'm still not sure which it is.

I normally do a Neti pot first, then Motrin, then Nerve Control herbs (that's what they are called by Nature's Sunshine), I double up on my magnesium/potassium pills, and drink Chamomille tea. I also rub my scalp. I used to take Petadolex by Enzymatic Therapy but it was too expensive, it relaxes your blood vessels.

When I gave up coffee, if I got a headache, I could just drink a cup of coffee. Even Dr. Weil recommends this, but since I drink coffee regularly, it doesn't work for me. The caffeine shrinks the blood vessels.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
I would do anything to never have another migraine! Mine normally lasted 3 days. Unbearable. I started noticing that my stomach was involved and figured they must be related. I just got over one.

I would also get the multi-day, sometimes incapacitating migraines. I was getting them often enough - at least once a week, often multiple times a week (which is a problem when they last 2-4 days) - that I ended up going on Topomax as a preventative. It's been quite effective, and I now get migraines on the order of a handful a year.

(I developed migraines long after going gluten free, and they became much more frequent long after going dairy free. I tested out dietary triggers and environmental triggers I could control. All with no luck. And caffeine didn't work for me either.)

hayley3 Contributor

I think when the caffeine worked for me, I was on a very strict vegetable/fruit only diet. So maybe that's why it worked. It's interesting that you say you were still getting the headaches even though you were gluten free. Very interesting..... I just got one and traced it to consuming corn syrup. Last night I got a bad case of gerd, and I had ate some corn, and also had some peppermint candy with corn syrup. It's so hard to narrow it down unless that's all you ate, but the connection is making me wonder if it's the corn instead of the wheat. I can dream, can't I! :D

tarnalberry Community Regular
I can dream, can't I! :D

Better than that! You can test it!

Make sure to eat foods that you *know* you're fine with for at least two or three days, then try corn, and plenty of it. (That's a quick and dirty way to test one item, anyway.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,078
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.