Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Tried Using The Gluten Flow Through Rapid Test


holiday16

Recommended Posts

holiday16 Enthusiast

to test a product for gluten? The webpage to see what I mean is:

Open Original Shared Link

I'm planning on ordering a package of two tests, but was wondering if anyone has ever used it before or has any feedback. I read all the instructions and it seems it will work for my purposes. I used to use a protein drink, but occasionally I'd get a can that has what must be low levels of gluten and after a few days I begin to react. My dd was taking it and the same thing happened with her as well. My plan is to order this kit and test a container and if I can find one that tests o.k. I'll stock up on as many of the ones from that lot number as I can. I haven't been taking it for several months now and I'm not feeling well without it so I'm really hoping this works. I tried a dairy based protein to eliminate grain cross contamination issues, but found I now have a problem with dairy so it's no longer an option.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Please don't waste your money. Learn to read labels instead.

holiday16 Enthusiast
Please don't waste your money. Learn to read labels instead.

It's not to test because I don't know if the ingredients are gluten free ingredients, they are. It's because there must be some level of cross contamination of the ingredients themselves occuring most likely during harvesting. Since the company at this point does not test their ingredients for gluten I'm basically testing the end product myself. I've had this same problem occur before with some cookies that were gluten free because I was eating them everyday and from what I can tell for me is that if it has low levels it accumulates. The cookies however I could live without, but I'm really hurting without this supplement. If the company tested for gluten I wouldn't bother, but they don't at this point. I'm trying not to get into too much detail, but I do have some other good reasons for doing the testing :o)

JNBunnie1 Community Regular
It's not to test because I don't know if the ingredients are gluten free ingredients, they are. It's because there must be some level of cross contamination of the ingredients themselves occuring most likely during harvesting. Since the company at this point does not test their ingredients for gluten I'm basically testing the end product myself. I've had this same problem occur before with some cookies that were gluten free because I was eating them everyday and from what I can tell for me is that if it has low levels it accumulates. The cookies however I could live without, but I'm really hurting without this supplement. If the company tested for gluten I wouldn't bother, but they don't at this point. I'm trying not to get into too much detail, but I do have some other good reasons for doing the testing :o)

Perhaps we could help in finding you an alternative protein supplement, or alternative diet that provides more protein, instead. I'm guessing that would be a thriftier investment of your time. you could even buy rice protein and mix your own drinks?

  • 1 year later...
Travelpals Newbie

I just had success using both the HAVen flow through kit and the EZ Gluten kit. I was interested in testing the gluten and gliadin levels present in a green super-food drink called Tonic Alchemy. Before I was diagnosed with Celiac Disease I enjoyed a variety of different super-food drinks on occasion. It was something I was hoping to incorporate back into my diet. I found both tests easy to use. EZ Gluten was simpler and something you could take with you when you travel to actually test soups & sauces, etc. The HAVen flow through test was a bit more complicated but very precise in it's results.

Both tests are designed to detect between 10-20ppm. The HAVen results are less black & white for a positive read. Open Original Shared Link

In today's testing with the HAVen kit a partial and barely visible positive dot started to show. Based on the interpretation scale this would indicate 25ppm. The EZ Gluten showed a positive result. I plan to test a couple more super-food drinks to see how the results vary. I think it is incredibly cool that you can satiate your curiosity about a product for between $12-$15.

Overall I like both the kits. I feel like the HAVen kit is a little more scientific but I wouldn't take it on my travels abroad because of it's many step process. Honestly, I do a lot of traveling and have never had the need to do a test. I "go without" a lot. Now that I know about the EZ Gluten test I might take it in the event I see something questionable. For tests I do at home I will most likely order more of the HAVen kits.

I can appreciate where you're coming from with your protein drink situation. I've enjoyed Jarro protien powder but I believe that is whey which would not be good for you.

Best of luck-

Martha

dilettantesteph Collaborator

I have had success with the tests. For example, once my son got sick when we hadn't made any changes to his diet. It was a contamination issue of a gluten free food. There was no suspect ingredient in the food. It was labeled gluten free. The company stated that they test to 5 ppm. There was no warning that it was processed in shared facilities. I started testing with the foods I suspected the most and I was able to find it on the second try. I was able to help my son get better without having to go back to basics and adding things one at a time. i was able to feel confident that I was removing the correct food. Well worth the cost.

Mike M Rookie
to test a product for gluten? The webpage to see what I mean is:

Open Original Shared Link

I'm planning on ordering a package of two tests, but was wondering if anyone has ever used it before or has any feedback. I read all the instructions and it seems it will work for my purposes. I used to use a protein drink, but occasionally I'd get a can that has what must be low levels of gluten and after a few days I begin to react. My dd was taking it and the same thing happened with her as well. My plan is to order this kit and test a container and if I can find one that tests o.k. I'll stock up on as many of the ones from that lot number as I can. I haven't been taking it for several months now and I'm not feeling well without it so I'm really hoping this works. I tried a dairy based protein to eliminate grain cross contamination issues, but found I now have a problem with dairy so it's no longer an option.

Holiday 16, in my opinion, you are going to love it (testing that is). You just can't beat having a way to know for sure if a product does/does not have gluten. According to the manufacturer, the EZ gluten is 99% accurate. Be careful as you will get hooked on testing! Welcome to the new, improved, gluten free (because I can test and prove it) modern world! All the best, Mike


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



holiday16 Enthusiast

I have ordered and used the EZ gluten test strips since posting this (I had used the Haven ones before). Unfortunately, the protein drink I want to test overloads the sample. I started using half the amount to test which the company said means I am then testing for 20 ppm and not 10. Seemed to be fine though and it was at least working that way.

I had no positive results on anything I tested so I got lazy and when I opened a new case of protein I didn't test it. I started having the same reaction I did the last time I happened to get a can w/ low levels of gluten. It's not a typical gluten reaction. Over several days I started having essential tremors and began to go into the start of a trigeminal neuralgia episode. The only TN episode I had before this was the last time I had protein w/ low levels of gluten. My dd was also taking it and after a few days it hit her hard.

I tested it and within the 10 minute window it seemed to test neg., but a short while later I noticed it had a very faint positive. I called the company and they said when it's after the 10 min. window they can't guarantee why it does that, but they do suspect it means it contains levels below what the test can test for. I retested using the full amount (remember I used half before) and it did overload the sample, but I let it sit a while and when I was able to read it there was a stronger positive than before. I've done these tests in the past and while I do read them within the time frame I let them sit and look at them later and there was never a positive and I didn't react to the product. This time I had a reaction and after sitting for a while a positive test. I know the company can't say that's a positive, but in my experience at least w/ this product it was.

I stopped taking the protein and the TN went away and the tremors. To be honest after seeing how soybeans are harvested and knowing that farmers use the same equipment to harvest other crops I'm amazed that all soy products aren't contaminated. I grew up in farm country and talked w/ other farmers and they agree.

I'm fortunate that if I get a positive hit when I test this protein I have someone who will take the case back and give me a new one so I can test that. This way I only have to test one can out of 6 rather than testing each one. Much cheaper that way!

The one good thing is I can tell my Drs. for sure that gluten is the cause of the TN. Everyone dismissed it before as a possible cause and now there is no doubt. I googled it at the time and did find this article:

Open Original Shared Link

I was tested for MS because of this and it was negative. Never ceases to amaze me what gluten can do!!!

Paulette

dilettantesteph Collaborator

That is very interesting that leaving it for longer can get a low positive result to show up. From now on, I will look again after longer. I did notice once that when I looked later, I saw a faint positive that I hadn't noticed before, but I thought I just hadn't looked hard enough before. I think weak positives show up better under fluorescent light. I need all I can do to make the test more sensitive. My son and I both react to really small amounts. Thanks for sharing.

dilettantesteph Collaborator

One more thing. Could you compare the EZ gluten with the Haven? Ease of use, sensitivity, cost... Where did you get the Haven? Thanks.

Mike M Rookie
That is very interesting that leaving it for longer can get a low positive result to show up. From now on, I will look again after longer. I did notice once that when I looked later, I saw a faint positive that I hadn't noticed before, but I thought I just hadn't looked hard enough before. I think weak positives show up better under fluorescent light. I need all I can do to make the test more sensitive. My son and I both react to really small amounts. Thanks for sharing.

I always save the strips and look at them the next day. Several times there has been a faint positive (red, not just a white line) Also right after the test is complete, I hold the strip up to a bright light with the test side facing myself, shade my eyes with my hand. This gives a more finite look when wanting to really make sure. Mike

P.S. I also get major shakes and trembling after getting glutened. I hate it when this happens, scares me each time even though I know what it is causing it.....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,335
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.