Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Minor Setback


writerscramp

Recommended Posts

writerscramp Rookie

Well, after 2 weeks of feeling great, i had a setback today. Apparently Faygo pop doesnt like me. It is the only new thing i have added this week and i had a visit from the big D and was reunited with the brain fog and fatigue. I know i will have these setbacks, and it is still better than the way things were even 3 weeks ago. I cant wait to try my hand at some baking, because the gluten-free bread i bought is rather yucky. I hope its better fresh, tell me its better fresh.

This forum has been so supportive, thanks to everyone here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loco-ladi Contributor

Its not uncommon to have minor setbacks during not only your first few weeks but it will continue for a long time to come.... 6 years down the road you will become complacient about company "A" and stop reading their label each time you purchace their product and oooops they changed the recipe to now include gluten...

it happens and we get to deal with it, but overall the end result is worth it.

This being your 2 week anniversary (so to speak) I normally suggest getting a fresh start, being that you had brain fog when you started you may have missed something along the way so revisit articles and re-read them, doublecheck all your food items in the cupboard and this time since you will be doing it without "mr brain fog" you may pick up something you missed. Dont forget to check vitamins and prescription meds you may be taking as well as shampoo's, lotion and such if you continue to use them you need to at the very least be aware of which ones contain gluten so you can take the precautions nessasary.

As for the baking.... start small with a batch of cookies or brownies (I started with coffee cake, will send you the recipe if you want) and yeah sure the bread tastes better freshly baked (actually I have no idea as I havent gotten up the nerve myself to find that out yet, lol)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.