Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Help!


blondebombshell

Recommended Posts

blondebombshell Collaborator

i do not know whats going on with me!

i was SO careful and ate so carefully yet when i got home i had small itchy bumps on the tops of the backs of my thighs and the fronts of them.

i ate sushi (with NO sauce, no nothing on it)

a few edamame

vanilla and chocolate ice cream with peanut butter

now what gives!!! why am i still breaking out in hives?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Did you make the sushi? I wonder if you got CC'd from it. Perhaps not from the ingredients but from the making.

A lot of us also have other intolerances. I get hives also but I get them from soy, I get blisters from gluten. Have you greatly increased the amount of soy you are consuming? It took me a while to figure out the soy, which was confirmed by Enterolab last summer.

blondebombshell Collaborator

i wouldnt think i was increasing the soy. no, i didnt make the sushi myself. i went to a very high-end fish restaurant.

so you think the soy made me break out in hives?

kenlove Rising Star

This seems to happen to me every few months too. One of the first times it was from licking envelops, another time from going into a friends restaurant kitchen while someone happened to be breading something. It's not always from some eaten with hidden gluten for me.

Also I gave up edamame as most come from China now -- even in high end Japanese places. It would not surprise me if they coat it with a wheat starch prior to packing, freezing and shipping from China.

Ken

i do not know whats going on with me!

i was SO careful and ate so carefully yet when i got home i had small itchy bumps on the tops of the backs of my thighs and the fronts of them.

i ate sushi (with NO sauce, no nothing on it)

a few edamame

vanilla and chocolate ice cream with peanut butter

now what gives!!! why am i still breaking out in hives?!

ravenwoodglass Mentor
i wouldnt think i was increasing the soy. no, i didnt make the sushi myself. i went to a very high-end fish restaurant.

so you think the soy made me break out in hives?

I have no idea if that was the case for you. Hives are a histamine reaction and they usually show up soon after consumption of the offending allergen. One way to find out if it is a problem is to eliminate it for a little while, at least till the hives clear up for a couple days and then add it back in and see if you break out again.

However before you ate the sushi did you ask them to use a clean surface, gloves and utensils ? Even a little gluten residue left on the prep surface could have resulted in cross contamination.

blondebombshell Collaborator
I have no idea if that was the case for you. Hives are a histamine reaction and they usually show up soon after consumption of the offending allergen. One way to find out if it is a problem is to eliminate it for a little while, at least till the hives clear up for a couple days and then add it back in and see if you break out again.

However before you ate the sushi did you ask them to use a clean surface, gloves and utensils ? Even a little gluten residue left on the prep surface could have resulted in cross contamination.

what contains gluten in sushi? tempura? isnt that it?

VioletBlue Contributor

I've known some places to use soy sauce in certain types of sushi, so it's not impossible there was soy sauce in or on the prep area.

Also what brand of ice cream did you have? Some brands have an ingredient list a mile long and could include gluten, particularly barley.

what contains gluten in sushi? tempura? isnt that it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dksart Apprentice
what contains gluten in sushi? tempura? isnt that it?

Surimi, the imitation crab sticks or crab salad that is in most rolls can contain gluten. It is used as a binder along with the fish. Some of it is Gluten-free, you just have to ask them to read the label.

Also, at my local sushi restaurant, there is wheat in their soy sauce so I bring my own. They also use soy in their bbq eel sauce, terriyaki, ponzu and spicy sauces.

Just ask lots of questions and make sure they know to use a clean board, mat and knife.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748

    KP009
    Newest Member
    KP009
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.