Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My House Is Now Gluten Free With Amazing Results!


Aidans Grandma

Recommended Posts

Aidans Grandma Newbie

I have posted earlier in the child forum regarding my grandson Aidan. All the research I did on Coeliac Disease for him has really enlightened me about my families health.

In the meantime, my house has gone completely gluten/wheat free. After doing all the research, I decided that my husband, myself and my younger daughter might benefit from the coeliac diet.

It has had an amazing impact on my husband!!! :D He has had chronic diarrhea for 30 years (he had all the enemas etc., they removed his gallbladder, all at the age of 20) He was diagnosed in his early 30's with rheumatoid arthritis. I have severe psoriasis and psoriatic arthritis, also diagnosed in my 30's. My youngest daughter has psoriasis on her scalp. My oldest daughter (Aidans Mom) has Samter's Triad ( nasal polyps, asthma and NSAID allergy ).

The good news is my husband was diarrhea free after 3 days on the diet. He had a few beers 5 days into the diet and now says he will never drink another. He had cramps, nausea and the diarrhea was back. My overwhelming fatigue is almost gone. I was having trouble getting through the day at work and I would have to go to bed as soon as I got home. I'm hoping this will help the psoriasis also. I think, my daughter must be feeling better too because she is right into looking up foods and will not eat anything with gluten in it.

Has anyone had remission of the arthrits or psoriasis on the gluten free diet. Right at the moment, after 10 days gluten free, I am almost feeling that I am having a flare of my psoriasis. It is geeting very red and painful. But it might just be the cold weather. Any info on RA or psoriasis and celiac disease is appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I have, my signature is very telling. In doing some research after I got my genes tested (5 years after my diagnosis) I found that the gene I carry is considered a RA gene here in the US. In Eastern medicine it is a recognized celiac gene. My arthritis has been in COMPLETE remission now for almost 5 years. I never in a million years expected anything other than my troubles with my tummy to go away with the diet. I felt reborn when all my other autoimmune problems just went into remission. Problems I had been told I needed to learn to live with as the powerful pain meds just dulled the discomfort.

My DH and DD have had psoriasis for most of their lives. Theirs went away completely, my DH only sees his crop up again when he is glutened. Hopefully your families will do the same.

AliB Enthusiast

Hi. I'm new to all this too, but I'll put my five penn'orth in for good measure!

It is great that you are all seeing a benefit from changing to Gluten. I have just started today so am yet to see the benefit, but I am looking forward to that one.

I was thinking though about your psoriasis that although you have benefitted from cutting out the Gluten, there may be something still in your diet that is acting as a trigger. I am also cutting out dairy along with the gluten as I know I am intolerant, but there are other things. Some are also intolerant of things like, oats, corn, onions, oranges, even obscure like toothpaste (perhaps a reaction to the Sodium Laureth Sulphate) and make-up!

I wonder whether it might not be an idea to follow the exclusion diet for a short while then try introducing other foods in one at a time to see if you can isolate the trigger.

We live in a very polluted and chemical-laden world and our poor immune and endocrine systems have an awful lot to put up with. Some may find that they only need to cut Gluten, others need to look a little further. I have realised due to the fact I can't tolerate Tea, any alcohol except low, and now as I have just discovered, in Slippery Elm of all things, things that contain Tannin. I also sometimes get a reaction if I eat too many fruits and veg, possibly to a build up of Salicylates from them (like Aspirin which I am highly reactive to which is Salicylic Acid. It is not always easy to find, but patience and persistence is the key

Puffin Newbie

[

The good news is my husband was diarrhea free after 3 days on the diet. He had a few beers 5 days into the diet and now says he will never drink another. He had cramps, nausea and the diarrhea was back. My overwhelming fatigue is almost gone. I was having trouble getting through the day at work and I would have to go to bed as soon as I got home. I'm hoping this will help the psoriasis also. I think, my daughter must be feeling better too because she is right into looking up foods and will not eat anything with gluten in it.

Has anyone had remission of the arthrits or psoriasis on the gluten free diet. Right at the moment, after 10 days gluten free, I am almost feeling that I am having a flare of my psoriasis. It is geeting very red and painful. But it might just be the cold weather. Any info on RA or psoriasis and celiac disease is appreciated.

Aidans Grandma Newbie

Hi ravenwoodglass! I'm happy you have had great success! Hopefully, my husband's RA will too and I can't wait to see some results with my psoriasis. I am currently on Enbrel and it just keeps it manageable enough so that I can still carry on with my life. Thanks for your story, it has made me think, that we are headed in the right direction

Aidans Grandma Newbie

Hello AliB!

I see we're in the same boat starting our new way of eating. So far, 11 days in, I am very happy with the way things are going except for the psoriasis. It took many years to get this bad so I am willing to try just the celiac diet for a few months and then graduate onto removing other things if I don't start to get better. I have an idea that I might have a problem with potatoes because I am a chipaholic. I am truly hoping this isn't so!

I hope you do well on the diet and don't find too many things that you have to give up! Hopefully, within a few days you will notice a difference.

Aidans Grandma Newbie

[

All of my relatives, Brothers, Sisters, cousins and an Uncle have seen it disappear unless they eat Gluten which causes a flair up. Mine took a while but after 14 months free mine is completely gone.

My Other problems that cleared up are fatigue, headaches, aphthous ulcers, belly aches, acid reflux, and lung problems.

PS tell your husband that Budweiser sells a beer called Redbridge that is Gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

I was diagnosed with Ankylosing Spondylitis, a type of autoimmune arthritis, and was in terrible pain most of the time. I not only went gluten free but I adopted a paleo style diet which is basically no grains, no dairy, no refined starches or sugars. Pretty much I eat meat, fish, poultry, non-starchy veggies, low sugar fruits (berries being the best of the bunch), coconut products (without sugar). I found that the SE Asians eat pretty much like that (except the rice) so I do a lot of cooking of Thai curries and what not.

Anyway, I quit my AS meds a couple months back and never had the AS pain again. So many health things improved: My mental clarity, my intestines, my sleep... and the list goes on.

Here's to solving the puzzle!

Aidans Grandma Newbie

Hi! Very interesting!! I did some reading on the paleolithic diet and potatoes are a big NO! I am addicted to potatoes and always have been. I am going to have to do some serious thinking about this and some more research. I love hearing stories from people that have rid themselves of their autoimmune disease. It gives us all hope that with some hard work we can all be healthy again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    2. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    3. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.