Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed With celiac disease


msaz

Recommended Posts

msaz Newbie

Hello I am new to this site and also newly diagnosed, It took many doctors and many years of pain and confusion to finally find out what was wrong with me. I would greatly appreciate any and all information on this disease as I am just starting to realize how difficult it will be. I am still in pain and was wondering if anyone can tell me how long they continued to have pain after they were diagnosed. I also suffer from chronic neck pain due to hierniated disks. I have also had a lot of lower back pain and osteoarthritis. Does anyone else feel the back pain?

masz


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Hello I am new to this site and also newly diagnosed, It took many doctors and many years of pain and confusion to finally find out what was wrong with me. I would greatly appreciate any and all information on this disease as I am just starting to realize how difficult it will be. I am still in pain and was wondering if anyone can tell me how long they continued to have pain after they were diagnosed. I also suffer from chronic neck pain due to hierniated disks. I have also had a lot of lower back pain and osteoarthritis. Does anyone else feel the back pain?

masz

Welcome,

You have found a wonderful site to learn all that you need to know about Celiac.

The average diagnosis time is eleven years. You are in good company here.

The diet can certainly be overwhelming. But, good words of advise is to start simple. Simple, meaning meat, fish, rice, potatoes, fresh veggies, and fruit. No processed foods for a while. You can add food items a little at a time and more so when you have mastered the art of label reading.

A new toaster is a must, old wooden spoons and cutting boards should be replaced. Gluten can hide everywhere. That way you avoid contaminating your food with pre-celiac utensils.

Undiagnosed Celiac can lead to some unfortunate issues, but many have found that eliminating gluten from their diet, their issues have reversed themselves, or in the least improved. I doublt that the gluten free diet can help your disk issues, but it may very well help with the others.

This is a great site. Take some time to walk around.

luvs2eat Collaborator

And take your time. I was gluten-free for an entire year before my bowels returned to anything I'd consider normal... w/ lapses at any time!

There are plenty of gluten-free foods in your every day diet ... you don't have to go looking for pre-packaged convenience food.

Check out the bread threads... that's always an issue. I don't have a bread machine but make a loaf a week of either Anna's bread mix or Pamela's. They are awesome.

I'm still looking for a gluten-free bagel... haven't had one in more than 5 years!!

elye Community Regular
I'm still looking for a gluten-free bagel... haven't had one in more than 5 years!!

Kinnikinnik makes absolutely delicious bagels and english muffins (brace yourself for the cost, though!) You can order from them online, and they deliver. :)

Kathe Newbie
And take your time. I was gluten-free for an entire year before my bowels returned to anything I'd consider normal... w/ lapses at any time!

There are plenty of gluten-free foods in your every day diet ... you don't have to go looking for pre-packaged convenience food.

Check out the bread threads... that's always an issue. I don't have a bread machine but make a loaf a week of either Anna's bread mix or Pamela's. They are awesome.

I'm still looking for a gluten-free bagel... haven't had one in more than 5 years!!

Try Kinnikinnick sesame bagels. They are awesome! Order at kinnikinnick.com Kathe

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    2. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    3. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    5. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.