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Hitting A Wall

cmsquyres

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cmsquyres Newbie
cmsquyres
Posted

I've been on the gluten free diet for about a year now, and my dad was diagnosed with Celiac several years ago, so I'm very familiar with the diet and I'm careful not to eat anything with gluten. I felt quite a bit better after I started the diet (I never had many gastrointestinal problems but I did have skin issues) but I feel like I've hit a wall, or even regressed. My eczema, which had gotten better, has gotten worse again. I'm tired all the time and I've had blood tests done and my iron levels were fine and my B12 was just a little bit low, but I've started taking extra liquid supplements. I've even had little phases where I'm just so tired that I feel depressed. My doctor just tells me that because I'm in college I'm automatically supposed to be tired all the time, even though I get at least 8 or 9 hours of sleep every night, I don't party and I eat a lot healthier than anyone else I know my age because of the gluten free diet. Has anyone else had an issue with this kind of thing?

Carly

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ravenwoodglass Mentor
ravenwoodglass
Posted

Your talking about being really strict about the diet, which is good. But have you eliminated it from all your personal care products also? A lot of doctors either don't think to mention it or don't think it matters. Even stuff like hair color, shampoos and face makeup can be an issue. Also have you checked all your scripts and supplements for gluten? It sounds like you have gluten sneaking in somewhere. Even weird stuff like kissing someone who is drinking beer or has eaten a sandwich can get us. Gluten can be really sneaky.

Ursa Major Collaborator
Ursa Major
Posted

Are you still consuming dairy and soy? Either (or both) of those could be your problem. Dairy is known to cause horrible eczema. My oldest granddaughter used to be covered in eczema from head to toe, she looked like she had scales. It completely cleared up within weeks, to where she has the most beautiful skin now, after dairy was removed from her diet (incidentally, she is also gluten and soy intolerant).

gfcookie Newbie
gfcookie
Posted
I've been on the gluten free diet for about a year now, and my dad was diagnosed with Celiac several years ago, so I'm very familiar with the diet and I'm careful not to eat anything with gluten. I felt quite a bit better after I started the diet (I never had many gastrointestinal problems but I did have skin issues) but I feel like I've hit a wall, or even regressed. My eczema, which had gotten better, has gotten worse again. I'm tired all the time and I've had blood tests done and my iron levels were fine and my B12 was just a little bit low, but I've started taking extra liquid supplements. I've even had little phases where I'm just so tired that I feel depressed. My doctor just tells me that because I'm in college I'm automatically supposed to be tired all the time, even though I get at least 8 or 9 hours of sleep every night, I don't party and I eat a lot healthier than anyone else I know my age because of the gluten free diet. Has anyone else had an issue with this kind of thing?

Carly

sounds like fibromyalgia/depression. or, maybe something else is up besides celiac, alot of other autoimmune diseases can cause skin problems.

cmsquyres Newbie
cmsquyres
Posted
  • Author
Hi Carly,

Too bad you are not feeling as energetic as you need to be to do all that studying. You might consider that you have picked up a virus and your immune system is keeping it in control but not able to get rid of it. Echinaceae, a herb, may help a lot. You can buy the herb and make a tea or you can get one of the many preparation availale. The best are combiations of echinaceae, lysine and vitamin C with rose hips. You can also have a blood test for infectious mononudleosis. You might also stop the B12 supplement for a while to see if you feel better. It may claim to be gluten free, and maybe it is but there may be something else that is bothering you in it.

For the eczema you can read about a treatment that works for many people. Go to the Dr. Clark Information Center online and search for eczema.

I have made sure all my personal care products are gluten-free. I

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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