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Confused On Results

Liviesmom

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Liviesmom Newbie
Liviesmom
Posted

Hello - this is my first venture to this site. My 3 yo daughter got her celiacs results and we can't get to the GI for 2 mos. As mentioned, her total IgA was 59 (range for age group 41-395). But, alleles were detected in the genetic test, giving her a higher risk for celiacs. She has chronic diahera (or just mush, I guess). I know the GI will want to scope her, but in the meantime, should I start going gluten free?? She has some symptoms, but isn't testing positive, except for having the gene. The lab report says no serological markers were detected, but that this test does not rule out a diagnosis of celiacs. Any words of advice would be great.

Thanks,

Karen

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aikiducky Apprentice
aikiducky
Posted

If you want a positive biopsy, which will give you an official diagnosis, you need to keep her on gluten until the biopsy is done.

Pauliina

happygirl Collaborator
happygirl
Posted
Hello - this is my first venture to this site. My 3 yo daughter got her celiacs results and we can't get to the GI for 2 mos. As mentioned, her total IgA was 59 (range for age group 41-395). But, alleles were detected in the genetic test, giving her a higher risk for celiacs. She has chronic diahera (or just mush, I guess). I know the GI will want to scope her, but in the meantime, should I start going gluten free?? She has some symptoms, but isn't testing positive, except for having the gene. The lab report says no serological markers were detected, but that this test does not rule out a diagnosis of celiacs. Any words of advice would be great.

Thanks,

Karen

Hi Karen! Welcome to the board.

A total IgA doesn't diagnose Celiac, but tells if she has an IgA deficiency (which can affect the accuracy of the other Celiac blood tests).

Did she have the other blood tests run: Open Original Shared Link

Do NOT go gluten free until the testing that you choose to have is completed. The testing measures the damage done by gluten and the antibodies your body produces. If you stop eating gluten, and are a Celiac, your body begins to heal and you will test negative. That is the last thing you want---a false negative!

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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    • Ello
      Small Bowel Resection 12 inches

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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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      Small Bowel Resection 12 inches

      By trents · Posted

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