Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Gluten Free... Feeling Spacey


Abbott50

Recommended Posts

Abbott50 Rookie

Another question from a newbie here. It has been about a week and a half now since my daughter and I went gluten free. We both went on a regiment of supplements as recommended as well. We both have adjusted pretty easily and are feeling great. My only side effect has been that I feel a little spacey sometimes during the day. It was especially bad the first three days.... it seems to be getting a little better each day. My energy and mood are great... it is just kind of a cloudy feeling. For example during exercise, biking is easy, but with tennis my focus, timing are cloudy. Is it normal for some people to go through this? Is there something I can do about it or do I just have to wait it out until it goes away?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Apparently you are going through withdrawal. Be glad you are only feeling spacey, some people feel like they are going off hard drugs! Gluten acts like an opioid on the brains of people who are intolerant. Your brain isn't happy with you 'depriving' it of its favourite drug.

I am glad you are otherwise feeling so much better. I am sure the spacey feeling will be gone shortly, and you will feel sharper mentally than you have in a long time.

skinnyasparagus Apprentice

I feel like that too sometimes where it can happen when I simply talk to someone and then embarassingly ask them to repeat the question; but I get dizzy with it too sometimes. It only lasts for a few seconds but it's stupid.

How long do 'withdrawl' symptoms last, in general?

Abbott50 Rookie
Hi - I would add that besides going gluten free you also started taking some supplements and and for some reason one of them may be causing a slight allergic reaction or just not be the right supplement for you. You may not have the same requirements as your daughter. If it doesn't clear up shortly as you feel better yet, look around and see what else might be doing that to you. I find that when my neck muscles tighten up I get a little spacy. It seems to slow the flow of blood to the brain so I massage and relax the muscles and I feel much more alert.

Thanks Marian..... I get the neck thing some times too, so I know what you mean, so I will try that. As far as the supplements go, I have always taken supplemental vitamins for sports etc. I did not add anything I have not taken before, just shifted a little. I will go back to the normal amounts to see, but I dont think that is it..... Another day and another spacey feeling for me today. A couple people have told me this can happen when first going gluten free...... but a week and a half seems long... Fortunately, my body feeling better makes it feel worth it.

AliB Enthusiast

It can take a while for the body to adjust, after all, if you have been loading this stuff into your body for years, it isn't going to change overnight.

I have been off gluten, dairy, most carbs and sugars for nearly 3 weeks and am still getting detox/withdrawal symptoms.

I had a permanent headache for well over a week until 2 days ago, yesterday I also had a fright with a very sore liver, but as it seems a bit better today, I think it had had a 'flush' out and off-loaded a heap of crud as I was 3lb lighter this morning than I was yesterday! Better out than in, as they say and the less fatty and congested it is, the better.

Are you sure also that there is not something else you are also getting a background reaction to? Sometimes it can be difficult to pinpoint, especially if the reaction is delayed.

Abbott50 Rookie

Almost two weeks gluten free now... I feel less spacey today.... definitely getting better, now it is just spells of it here and there, but obviously getting better. Thank goodness....

krebbecca Newbie

I notice the same thing at times - more right after I was diagnosed than I do now. I started checking my blood sugar and found that at the times I felt "spacey" my blood sugar was low. Turned out changing my diet wreaked havoc on my blood sugar. Now that I'm more comfortable with the diet, and eating more variety, I have much more control over it. Anyway, don't want to rain on everyone's parade, but you may want to be careful.

Rebbecca


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yenni Enthusiast

I felt spacey for a long, long time after I stopped with the foods that made me sick. I think I had additional intolerances that took me longer to figure out that prolonged the process though.

I get spacey every time I get cross-contaminated now.

  • 2 weeks later...
detox Rookie
I felt spacey for a long, long time after I stopped with the foods that made me sick. I think I had additional intolerances that took me longer to figure out that prolonged the process though.

I get spacey every time I get cross-contaminated now.

When i feel the brain fog i take a b50 complex vitamin. For me its a complete life saver.

Its actually quite astonishing how fast it works for me. I think its because my body has

issues absorbing all the appropriate b vitamins and i am deficient. B50 vitamin literally works in

about 10 min to clear my mind and make me feel back to earth.

It cant hurt to try it and from what i understand if you body has to much of the b vitamins you will

just get rid of the excess when you pee.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    Sonya Haskin
    Newest Member
    Sonya Haskin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.