Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Panhandle Wv


flourgirl

Recommended Posts

flourgirl Apprentice

Hi. I am newly diagnosed, about 3 months ago. Am still really struggling with health issues. I'm wondering if there are any support groups in the Martinsburg WV area? If not, how about any locals wanting to start one? I appreciate this forum, knowing there are people out there going through it too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

Here is a list of support groups by state.

https://www.celiac.com/articles/227/1/A-Lis...ters/Page1.html

  • 6 months later...
Kathinsearch Newbie
Hi. I am newly diagnosed, about 3 months ago. Am still really struggling with health issues. I'm wondering if there are any support groups in the Martinsburg WV area? If not, how about any locals wanting to start one? I appreciate this forum, knowing there are people out there going through it too.

Hi Flourgirl,

I live up near the Berkeley Springs / Hancock area and there is nothing in the way of support groups where we are. You are about 45 mins from me. If you need some support or have questions or concerns, I am most certainly willing to help by telephone and email. Maybe we can meet and go out to Outback or Carabas for a gluten-free meal periodically :) I have never gone out to eat at either one of them but both are in Hagerstown, a good midway spot.

Write me and lets exchange phone numbers. My email address kathinfred at aol dot com

Kathy

  • 3 weeks later...
sixdogssixcats Apprentice

Hi! I don't live in WV but I grew up there so your post caught my eye. My dad and sister still live in the Eastern panhandle. We get back to visit once or twice a year from south Texas. Good luck finding a support group ... I live in a big city and can't find an active one (looking specifically for children).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Fabrizio's topic in Related Issues & Disorders
      15

      Kan-101

    2. - trents replied to Godfather's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Is Caputo gluten free flour really free of gluten?

    3. - trents replied to Dana0207's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac symptoms

    4. - trents replied to Fabrizio's topic in Related Issues & Disorders
      15

      Kan-101


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,258
    • Most Online (within 30 mins)
      7,748

    Miss Betty
    Newest Member
    Miss Betty
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
    • trents
      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
    • trents
      Welcome to the forum, @Dana0207! Another diagnostic approach would be to get biopsied for dermatitis herpetiformis which would not require an extensive exposure to gluten. But it would need to be done during an active outbreak of the rash. Celiac disease is the only known cause for dermatitis herpetiformis so it would be a definitive diagnosis. It might be tricky, however, to time the dermatology appointment with the gluten exposure and outbreak.
    • trents
      Here is another one that is currently active. I know someone who has recently signed up to participate in it: https://celiac.org/aspirion-us/
    • Godfather
      Is “Caputo Fioreglut Gluten Free Flour” truly gluten free?  The main ingredient is supposed to be gluten free wheat starch along with other ingredients.  However, the resulting homemade bread made with this flour so resembles homemade gluten bread that it seems Caputo must have some gluten?    
×
×
  • Create New...