Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Borderline Positive Bloods?


mayakeller

Recommended Posts

mayakeller Newbie

i have been perousing through the topics and reading all these topics about help diagnosing people's results etc., and finding it overwhelming - particularily because my paed didn't give me the values......she called me and said they were positive for celiac and they were referring me to the gastro - called later in the day and said not to stop the gluten yet as specialist said the values were borderline........

so if a result is borderline does it mean there is just an intolerance there and not the disease - i guess what i am getting at is something should be making the results abnormal - so if not celiac then what?

my ds is 2.5 and having many symptoms - we are seeing allergist as allergies are almost a positive just not sure exactly what they are yet and getting results from a sleep study done as ds has major issues with sleeping etc.,

thanks for your time,

beflustered mom of logan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Any result in the positive level is positive. If you are going to chose to biopsy, and that is your choice, you do need to stay on a full gluten diet. If you are chosing not to biopsy then you can go gluten free. However if you are doing the biopsy and have been gltuen free and are challenging for a month or two and you become very ill please be sure to let your doctor know right away.

Also biopsies are hit and miss so even if the doctor says that the endo was fine you should still do the diet for at least a couple of months strictly to see if it helps.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,915
    • Most Online (within 30 mins)
      7,748

    Andreaheath
    Newest Member
    Andreaheath
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Alibu, Migraines ran in my family as well.  Correcting my Thiamine insufficiency made a dramatic improvement in frequency and duration.   If you take Thiamine, B12 and B6 together, they have analgesic (pain relieving) properties.  Taking thiamine every day has cut down on their occurrence and severity for me.   Take Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide).  These forms get into the brain easily.  Magnesium Threonate gets into the brain easily, too, and helps thiamine work.  My gave a sigh of relief when I first took it, and no migraines. Yes, lowering histamine levels helps one feel better, too.  Vitamin C and B12 help reduce histamine.  A low histamine diet can help, too.  DAO supplements lower histamine, as well.  DOA is a digestive enzyme we can run short on.  
    • knitty kitty
      @ehb   Great you're going to start the AIP diet!  I know it's scary and stressful, but you'll soon start feeling better.  It's a challenge, but you can make it.  Do ask for a Erythrocyte Transketolace test which tests for Thiamine level.   I hope your Vitamin D level is between 70 and 100 nmol/L.  In this optimal range, Vitamin D can act like a hormone and regulate the immune system.  Vitamin D 3 is the form that the body can utilize well.  I was prescribed the synthetic firm D2 and my body didn't like it.  I know getting my Vitamin D up in the eighties made a world of difference to me.  My depression improved and I felt so much better at higher levels.   I prefer Life Extension brand for many vitamins.  The important thing is to read the label and watch out for fillers like rice flour.  This may help. Keep us posted on your progress!  
    • ehb
      @knitty kitty I have an appointment to go over the results tomorrow. Vitamin D was in the normal range. I’ve decided to start the gluten contamination elimination diet, while avoiding nightshades as recommended by the AIP. I am still hoping to get support from a nutritionist or advice from the doctor about supplements to make sure I’m getting enough nutrients. I’m still having a hard time sorting through all of the different brands and possible combinations
    • cristiana
      We've definitely all had such thoughts.  But as Scott says, it does get easier with time.  I'm not sure where you are posting from but in England where I live, over the last ten years or so most things I missed at first now have gluten free substitutes.   I still miss Twix bars, and chocolate Penguins (a type of biscuit) but I'm hoping sooner or later someone will create a decent substitute for them! One thing that I remember my husband said to me when I was feeling down one day  was: "Why don't you try to think of all the things you can still eat, rather than the things you can't?"  The list is long, and it did help - sort of!  
    • Scott Adams
      It looks like they are naturally gluten-free, but not labeled gluten-free. https://www.quakeroats.com/products/hot-cereals/grits/instant-grits-plain
×
×
  • Create New...